Welcome to —Let’s Talk about Epilepsy - your podcast to hear real stories, expert insights, and honest conversations about life with epilepsy. Whether you’re living with epilepsy, supporting a young person who is, or just want to understand more, we’re here to help you feel informed, empowered, and connected. We bring together the voices that matter—young people, families, and experts—to share experiences, tackle challenges, and celebrate wins. Tune in and be part of something bigger!
In this episode of the Young Epilepsy Podcast, we explore Vagus Nerve Stimulation (VNS) therapy and how it can help children and young people with harder to manage epilepsy. Host Kirsten McHale, Head of Healthcare at Young Epilepsy, is joined by Dr Das, Paediatric Consultant Neurologist at Great Ormond Street Hospital, and Hattie, a member of the Youth Voice Network who has been living with a VNS device for several years. Together, they explain how VNS works, who it might be suitable for, and what life is really like with the device. Whether you're considering VNS therapy yourself, supporting a young person with epilepsy, or simply want to understand more about treatment options, this episode provides expert information alongside real-life experience. NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support. If you’re feeling sad, worried, or lonely, text ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout 🔗 Support and signposting If you'd like to learn more about VNS therapy or other treatment options for epilepsy: Visit the Young Epilepsy website for trusted information and support: https://www.youngepilepsy.org.uk/about-epilepsy/treatments Find out more about Young Epilepsy Youth Support: https://www.youngepilepsy.org.uk/what-we-do/support-inclusion/youth-support Join the Youth Voice Network: https://www.youngepilepsy.org.uk/youth-voice-network Follow Young Epilepsy: Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy
PLEASE NOTE: Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. ⚠️ Please proceed with care: This episode discusses SUDEP (Sudden Unexpected Death in Epilepsy) and includes references to bereavement and loss, which may be distressing for some listeners. For more information: https://www.youngepilepsy.org.uk/about-epilepsy/sudden-unexpected-death-in-epilepsy-sudep If you’re feeling sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: Shout support service: https://www.youngepilepsy.org.uk/shout/ In this special live episode, actress and Young Epilepsy supporter Ellie Henry and broadcaster Jennie Gow host a series of powerful conversations bringing together women, young people and families to share their experiences of epilepsy. We hear deeply personal stories from Young Epilepsy ambassador Sam Bailey and autism and epilepsy advocate Holly Steer, who open up about the reality of supporting children with epilepsy, from diagnosis to navigating complex needs and daily life. The conversation continues with young people sharing their own journeys. Youth Voice Network member Elina reflects on growing up with epilepsy and the pressures of feeling different, while Olivia speaks about independence, education and managing epilepsy through key life milestones. In a powerful mothers’ panel, Nicole Ronson Allalouf, Clare Scheckter and Emma O’Brien share honest and emotional accounts of caring for children with complex epilepsy, highlighting the challenges families face across healthcare, education and wider support systems. Throughout the episode, we explore the emotional realities of epilepsy, the importance of being heard, and the strength that comes from shared experience and community. Hear Her Voice centres the voices of women and girls living with epilepsy and shows just how impactful it can be when those voices are heard. ________________________________________ Useful Links: Young Epilepsy website: https://www.youngepilepsy.org.uk/ SUDEP information: https://www.youngepilepsy.org.uk/about-epilepsy/sudden-unexpected-death-in-epilepsy-sudep Information about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy Youth Voice Network: https://www.youngepilepsy.org.uk/youth-voice-network Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/youth-support ________________________________________ Social Media: Facebook: https://www.facebook.com/YoungEpilepsy/ Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/young%20epilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy Spotify: https://open.spotify.com/show/0Rd6NvABed0T1gvQGYju0x?si=ddb31e5b7a774664 Contact: communications@youngepilepsy.org.uk
In this episode, host Dr Lara Carr is joined by Professor Helen Cross and Tanisha from the Youth Voice Network to talk about epilepsy brain surgery. They explain when surgery might be considered, what the process involves, and how it can change a young person’s life, alongside real reassurance and support for families. NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support. If you’re feeling sad, worried, or lonely, text ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout 🔗 Useful links Visit the Young Epilepsy website for trusted information: https://www.youngepilepsy.org.uk/about-epilepsy/treatments/neurosurgery Contact Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/what-we-do/voice-support/youth-support Look for peer support from others with lived experience: https://www.youngepilepsy.org.uk/youth-voice-network Follow Young Epilepsy: Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy
In this episode, Ree is joined by Milla, a young person with epilepsy, and her brother Harry to talk honestly about sibling experiences. They share what it’s like growing up with epilepsy in the family, the emotional impact on siblings, and why support and understanding matter for everyone. NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support. If you’re feeling sad, worried, or lonely, text ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout 🔗 Useful links: Visit the Young Epilepsy website for information and support: https://www.youngepilepsy.org.uk/what-we-do/voice-support/youth-support Find out more about the Youth Voice Network and peer support: https://www.youngepilepsy.org.uk/youth-voice-network How to respond to seizures: https://www.youngepilepsy.org.uk/about-epilepsy/epileptic-seizures/how-can-i-help-someone-having-seizure Safety equipment for seizures: https://www.epilepsy.org.uk/living/safety-equipment Follow Young Epilepsy: Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy
In this episode, we introduce Harder to Manage Epilepsy, a new podcast series from Young Epilepsy exploring the challenges faced by children, young people and families living with epilepsies that don’t respond to medication. Around 1 in 3 young people with epilepsy continue to have seizures despite treatment. These epilepsies are often described as harder to manage or drug‑resistant and can come with additional challenges, including difficulties with learning, development, behaviour and everyday family life. This series is about shining a light on those experiences, challenging misconceptions, and sharing clear, trustworthy information and support. NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support. If you’re feeling sad, worried, or lonely, text ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout 🗣️ Meet our guests: Lara Carr, Head of Research at Young Epilepsy – Host Professor Helen Cross, The Prince of Wales’s Chair of Childhood Epilepsy and Head of the Developmental Neuroscience Programme at UCL–Great Ormond Street Institute of Child Health Honorary Consultant in Paediatric Neurology, Great Ormond Street Hospital Young Epilepsy Lindsay, Mum to Jess, who has lived with epilepsy since early childhood, sharing an honest parent perspective on diagnosis, treatment journeys and family life. 💜 Why this series matters If you’re living with harder to manage epilepsy – or supporting someone who is – it can feel isolating and overwhelming. This series aims to help you: Understand that epilepsy looks different for everyone Feel less alone, more informed and more hopeful Know where to find trusted support and information 📍 Support and further information If you or someone you care for is affected by harder to manage epilepsy, help is available: Young Epilepsy website: https://www.youngepilepsy.org.uk/ Information about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy Support for parents and carers: https://www.youngepilepsy.org.uk/parents-and-carers Support and inclusion services: https://www.youngepilepsy.org.uk/what-we-do/support-inclusion 📢 Follow Young Epilepsy: Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy
In this episode, we talk about epilepsy and driving, and what it means for young people. Host Ellie is joined by Chris McCarthy and Elina from Young Epilepsy’s Youth Voice Network to explore the realities of learning to drive with epilepsy - from excitement and hope to frustration, disappointment, and finding new routes to independence. We unpack the DVLA rules around driving with epilepsy, including seizure‑free periods. The episode also looks at the emotional side of driving - how it can feel to be told you can’t drive, how this affects confidence and identity, and how young people can build independence in other ways. With lived experience, clear guidance, and practical tips, this episode offers reassurance and support for young people, families, and professionals navigating epilepsy and driving. NOTICE: Epilepsy is a highly individualised condition. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support. If you’re feeling sad, worried, or lonely, text ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout 🔗 Useful links: https://www.youngepilepsy.org.uk/i-have-epilepsy/the-channel/travel/driving-and-epilepsy https://www.youngepilepsy.org.uk/what-we-do/voice-support/youth-support https://www.youngepilepsy.org.uk/youth-voice-network Follow Young Epilepsy: Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy
We explore what young people wish they’d known when they were first diagnosed with epilepsy. Host Olivia sits down with Jasmine and Renell from the Youth Voice Network to share honest stories about the moment of diagnosis, the fears and misconceptions they faced, and the journey to independence. They discuss coping strategies, the importance of community, and how to break down stigma. This episode is packed with real-life experiences, practical tips, and hope for anyone navigating their own epilepsy journey. IMPORTANT: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Useful links: https://www.youngepilepsy.org.uk/abou... https://www.youngepilepsy.org.uk/yout... https://www.youngepilepsy.org.uk/get-... https://www.youngepilepsy.org.uk/abou... https://www.youngepilepsy.org.uk/firs... https://www.youngepilepsy.org.uk/shout https://www.youngepilepsy.org.uk/what... Follow us: X: https://x.com/youngepilepsy Facebook: / youngepilepsy Instagram: / youngepilepsy YouTube: / youngepilepsy LinkedIn: / young-epilepsy TikTok: / youngepilepsy Contact: communications@youngepilepsy.org.uk
We dive into the emotional journey of getting an epilepsy diagnosis. Host Kirsten McHale chats with Professor Mark Richardson, Dr Colin Dunkley, and Spencer from the Youth Voice Network. They talk about the diagnosis process, the challenges families face, and the cool new tech that's changing epilepsy care. This episode is packed with expert advice and real-life stories to help and empower young people with epilepsy and their families. IMPORTANT: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Useful links: https://www.youngepilepsy.org.uk/about-epilepsy/diagnosis/ https://www.youngepilepsy.org.uk/youth-voice-network https://www.youngepilepsy.org.uk/get-involved/give-time/help-our-research https://www.youngepilepsy.org.uk/about-epilepsy https://www.youngepilepsy.org.uk/what-we-do/support-inclusion/youth-support Follow us: X: https://x.com/youngepilepsy Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy Contact: communications@youngepilepsy.org.uk
This episode explores the emotional journey of getting an epilepsy diagnosis for children and young people. Host Kirsten McHale speaks with Sarah, who shares her personal experience as a parent navigating her daughter Lexi’s diagnosis. It’s all about sharing stories and support to help others feel less alone. IMPORTANT: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Resources Young Epilepsy website https://www.youngepilepsy.org.uk/ E-Cure network: https://www.youngepilepsy.org.uk/get-... Information about epilepsy: https://www.youngepilepsy.org.uk/abou... Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/what... Follow us on socials: X: https://x.com/youngepilepsy/ Facebook: / youngepilepsy Instagram: / youngepilepsy YouTube: / youngepilepsy LinkedIn: / young-epilepsy TikTok: / youngepilepsy Contact: communications@youngepilepsy.org.uk
In our first LIVE episode, renowned broadcaster, Edith Bowman hosts a powerful panel discussion with Netflix and Hollyoaks actor Ellie Henry, Fashion PR Hum Fleming, and student Mariam Hussain who share their personal stories of diagnosis, school, work, memory loss, and the importance of support networks. We also explore the impact of epilepsy on mothers as BBC F1 host Jenny Gow, Dr Laura Cunnane and Kelly Norford open up about the challenges and resilience of families navigating epilepsy with their child. Dr. Tejal Mitchell, consultant neurologist, joins to answer questions and discuss the unique challenges facing women and girls, including hormonal changes, medication, and the transition from paediatric to adult care. Hear Her Voice centres the voices of women and girls living with epilepsy and is an example of how powerful a conversation can be. PLEASE NOTE: Epilepsy is a highly individualised condition, and each person’s experience can vary significantly. The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. ⚠️ Please proceed with care: This film discusses SUDEP (Sudden Unexpected Death in Epilepsy) and may be triggering for some viewers. For more information search 'SUDEP' on our website. If you’re sad, worried, or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Chapters: 0:00 Introduction and Overview 2:00 Living with Epilepsy: Ellie’s Story 7:30 School, Exams, and Advocacy: Maryam’s Experience 15:00 Memory, Support, and Openness: Hum’s Journey 29:00 Mothers’ Panel: Family Life and Resilience 50:00 Coping with Loss and Finding Community: Laura’s Story 61:00 Expert Q&A with Dr. Tejal Mitchell 79:00 Audience Questions and Reflections 89:30 Closing Thoughts and Support Useful Links: Young Epilepsy website: https://www.youngepilepsy.org.uk/ Information about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy Seizure first aid poster: https://www.youngepilepsy.org.uk/sites/default/files/2025-02/SeizureFirstAidPosterPrinterFriendly.pdf Youth Voice Network: https://www.youngepilepsy.org.uk/youth-voice-network/ Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/what-we-do/voice-support/support-inclusion Social Media: X: https://x.com/youngepilepsy/ Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy/ Contact: communications@youngepilepsy.org.uk
In this episode, we break down what seizures are and what they can look like. With help from healthcare professionals and real-life stories, we explain the different types of seizures in a way that’s easy to understand. Whether you’re a young person with epilepsy or a parent or carer, this episode gives you clear, helpful info and expert advice to support you on your journey. PLEASE NOTE: Managing Risks Linked to Epilepsy It's crucial to understand and manage the risks associated with epilepsy. One useful tool to help with this is the EpsMon app, developed by SUDEP Action. This app can assist you in monitoring your condition and taking proactive steps to reduce risks. Remember, managing your epilepsy effectively can significantly improve your quality of life. You can find this here: https://sudep.org/about-research/epsm... It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Useful links: • https://www.youngepilepsy.org.uk/ • Information about epilepsy: Information About Epilepsy | Young Epilepsy • Epileptic seizures: https://www.youngepilepsy.org.uk/about-epilepsy/epileptic-seizures • Young Epilepsy Youth Support Services: Youth Support | Young Epilepsy • You can help - seizure types: https://www.youngepilepsy.org.uk/about-epilepsy/epileptic-seizures/you-can-help/ Social Media: • X: https://x.com/youngepilepsy/ • Facebook: / youngepilepsy • Instagram: / youngepilepsy • YouTube: / youngepilepsy • LinkedIn: / young-epilepsy • TikTok: / youngepilepsy Contact: communications@youngepilepsy.org.uk
We talk about what it’s really like to be a young person with epilepsy. We look at why some people feel alone, how to find support, and how building a community can help. We also talk about bullying, mental health, and how to get help when you need it. In this episode: Feeling Alone: Why so many young people with epilepsy feel isolated, and what can help. Building Community: How making friends and joining groups can make life better. Online Support: How you can get help and join in, wherever you live. Real Stories: Young people share how meeting others changed their lives. Bullying and Ignorance: Why it happens, and what we can do about it. Mental Health: Why it matters, and where to find support. Hope: You’re not alone—there’s always someone who understands. NOTICE: Epilepsy is different for everyone. What works for one person might not work for another. The stories and advice in this podcast are not medical advice. Always talk to a doctor or nurse for help that’s right for you. If you’re feeling sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Useful Links: Young Epilepsy: https://www.youngepilepsy.org.uk/ Youth Support Services: https://www.youngepilepsy.org.uk/what-we-do/support-inclusion/youth-support Info about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy Social Media: X: https://x.com/youngepilepsy/ Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy/ Contact: communications@youngepilepsy.org.uk
We look at new medicines that are changing epilepsy treatment. We also talk about medication shortages and share NHS advice for health professionals on how to manage these challenges, especially around medications like Valproate. In this episode: Advances in Epilepsy Medications: Discussion on the most exciting emerging medicines in paediatric epilepsy care and their potential impact on patient outcomes. Medication Shortages: Exploration of the reasons behind medication shortages and strategies for managing patient treatments effectively. Sodium Valproate: Latest guidance on Sodium Valproate and the importance of adhering to updated treatment plans. NOTICE: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Useful Links: https://www.youngepilepsy.org.uk/ ASM booklet: https://www.youngepilepsy.org.uk/anti... Information about epilepsy: https://www.youngepilepsy.org.uk/abou... Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/what... Social Media: X: https://x.com/youngepilepsy/ Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy/ Contact: communications@youngepilepsy.org.uk Thank you to the sponsors of this episode, Desitin. Find out more: https://desitinpharma.com/
We chat with Sophie Bennett about the MICE project, which focuses on mental health support for children and young people with epilepsy. Sophie, a clinical psychologist and researcher, shares how mental health support can make a big difference. We know that getting an epilepsy diagnosis can be tough, and this episode offers expert info and connection through shared experiences. NOTICE: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Resources: • https://www.youngepilepsy.org.uk/ • https://www.youngepilepsy.org.uk/yout... • E-Cure network: https://www.youngepilepsy.org.uk/get-... • Information about epilepsy: https://www.youngepilepsy.org.uk/abou... •Young Epilepsy Youth Support Services: Youth Support | Young Epilepsy Social Media: X: https://x.com/youngepilepsy/ Facebook: / youngepilepsy Instagram: / youngepilepsy YouTube: / youngepilepsy LinkedIn: / young-epilepsy TikTok: / youngepilepsy Contact: communications@youngepilepsy.org.uk
We hear what it’s really like to be part of the Youth Voice Network at Young Epilepsy. Jasmine chats with Milla, who shares their personal story and how being involved has helped them feel more confident and connected. We also explain what the Youth Voice Network is, how it works, and how young people can get involved to make sure their voices are heard and their experiences shape the future of epilepsy support. PLEASE NOTE: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout Useful links: Young Epilepsy | Homepage Youth Voice Network | Young Epilepsy Youth Support | Young Epilepsy Information About Epilepsy | Young Epilepsy Follow us on Socials: X: https://x.com/youngepilepsy/ Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy/ Contact: communications@youngepilepsy.org.uk
Moving from children’s to adult healthcare can feel like a big step – but you’re not alone. In this episode, we chat about what this transition really means for young people with epilepsy, share real stories, and give you practical tips to help you feel confident and in control. A special thank you to the sponsors of this episode, Nutricia Ketogenics. Find out more: https://www.nutricia.com/ Please remember: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re feeling sad, worried or lonely, text ‘PURPLE’ to 85258 to chat with Shout. More info: https://www.youngepilepsy.org.uk/shout Useful links: Young Epilepsy | Homepage Transitioning to Adult Healthcare with Epilepsy Youth Support | Young Epilepsy Mental Health Support Network provided by Chasing the Stigma | Hub of hope Follow us on Socials: X: https://x.com/youngepilepsy/ Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy/ Contact : communications@youngepilepsy.org.uk
This episode focuses on how epilepsy can affect mental health and wellbeing. We explain why this happens and how young people, parents, and carers can get support. There are also tips for healthcare professionals on how to include mental health care in epilepsy treatment. NOTICE: It is important to understand that epilepsy is a highly individualised condition, and each person’s experience with epilepsy can vary significantly. The information, experience and views shared on this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult with a qualified healthcare provider for personalised medical advice and support tailored to your specific needs. If you’re sad, worried or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout A special thank you to the sponsors of this episode, Nutricia Ketogenics. Find out more: https://www.nutricia.com/ Useful links: Young Epilepsy | Homepage Youth Support | Young Epilepsy Mental Health Support Network provided by Chasing the Stigma | Hub of hope For professionals: NHS England » National bundle of care for children and young people with epilepsy OPEN UK (Organisation of Paediatric Epilepsy Networks in the UK) | RCPCH NHS England » Regional teams Epilepsy12 audit | RCPCH Follow us on Socials: X: https://x.com/youngepilepsy/ Facebook: http://facebook.com/YoungEpilepsy Instagram: https://www.instagram.com/youngepilepsy/ YouTube: https://www.youtube.com/user/youngepilepsy LinkedIn: https://www.linkedin.com/company/young-epilepsy/ TikTok: https://www.tiktok.com/@youngepilepsy/ Contact : communications@youngepilepsy.org.uk
