The Caregiver’s Journey podcast is an innovative and refreshing way to learn how to tackle day-to-day Alzheimer's and dementia family caregiving challenges with strength, patience, and peace of mind. Using practical tips and candid conversations, Sue Ryan and Nancy Treaster help you navigate caregiving’s ups and downs, so you move from feeling frustrated, overwhelmed, and sometimes frightened - to confident, balanced, and supported.
“When I look back on my caregiving experience, I found a purpose and a true sense of self that I didn’t know I had. Yes, there was a lot of drama and a lot of trauma, but I look back and think - this was a great experience and something I feel good about doing for the people I love.” - Nancy Treaster There’s a moment in dementia caregiving where you realize your relationship has fundamentally changed. Your loved one may no longer recognize your name, your face, or the decades you’ve shared together. How do you keep loving someone through that? How do you stay present when the person in front of you is both familiar and a stranger? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve navigated these moments personally - and we’re sharing what we’ve learned about showing up, staying present, and working to keep finding ways to connect with your loved one as their memory fades. Nancy’s chapter, “Love Beyond Memory,” is featured in the Caregivers Advocate, Volume 3. Let’s explore four tips for loving beyond memory - even when the person you love doesn’t remember who you are. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/67-show-up-stay-present-keep-finding-ways-to-connect-four-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney The Caregiver’s Advocate Volume 3: https://amzn.to/4vS5Cy8 The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 4 tips: Don't flip the switch Let go of who they were, and fall in love with who they are now Redefine what connection means Give yourself permission to get help — before you are drowning Read More in This Blog https://thecaregiversjourney.org/67-love-beyond-memory-four-tips-for-showing-up-staying-present-and-staying-connected/
Have you ever felt overwhelmed searching for the right information at the right time, or found yourself drowning in conflicting resources that leave you more confused than when you started? You’re not alone. Dementia family caregiving is a long journey, and it looks very different depending on where you are in it. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we built the Navigating Dementia Caregiving Roadmap to help you find the right resources at the right time. As with all our resources, it’s a free, 20-step roadmap available on our website thecaregiversjourney.org . The roadmap page also includes a self-assessment tool to help you identify which caregiving stage you’re in right now. Revisit this assessment tool throughout your caregiving journey to help you know the caregiving stage you’re currently in. Let’s walk through the three distinct stages of dementia family caregiving so you know what to expect and where to focus your energy. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/66-what-stage-of-dementia-caregiving-are-you-in-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways The three stages of dementia family caregiving and the self-assessment tool on the caregiving roadmap page of our website, thecaregiversjourney.org. The first stage is “In the Beginning.” The second stage is “The Messy Middle.” The third stage is “Later On.” If our self-assessment tool shows you are further along in your journey, start there. Once you feel confident in where you are, we encourage you to go back and explore the earlier steps. You may find helpful tips that apply to where you are today, even if those steps were designed for an earlier part of the journey. Read More in This Blog https://thecaregiversjourney.org/66-what-stage-of-dementia-caregiving-are-you-in/
Do you feel completely alone in your caregiving journey? No family backup, friends have faded away, and you can’t afford professional help? You are not alone — and there is real help available, often at little or no cost. We are Elizabeth Miller of Happy Healthy Caregiver and Sue Ryan and Nancy Treaster of The Caregiver's Journey. In this podcast we’ve joined forces with - together we’ve lived it, learned from it, and made it our mission to walk alongside family caregivers. We’re sharing four key resource areas that can provide real relief without breaking the bank. Think about the analogy of a frog in water. If a frog jumps into boiling water, it immediately jumps out. But if the water starts lukewarm and slowly heats up, the frog doesn’t realize the danger until it’s too late. That’s how burnout works for caregivers — especially solo caregivers with fewer helping hands. The average caregiver is in this role for four and a half years. For dementia family caregivers, it can stretch to ten years or more. You can do it alone for a while, but not indefinitely. Here’s where to turn. Full Show Notes https://thecaregiversjourney.org/podcast/ Additional Resources Mentioned Happy Healthy Caregiver website: https://happyhealthycaregiver.com/ Area Agency on Aging Finder: https://eldercare.acl.gov/home Lifespan Respite Voucher Program: https://archrespite.org/ta-center-for-respite/respite-voucher-programs/apply-for-state-lifespan-respite-voucher-programs/ Veterans Administration office locator: https://www.va.gov/find-locations/ Elizabeth Dole Foundation Respite: https://hiddenheroes.org/resources-online-education/respite/ Medicare Guide Program Eligible: https://www.cms.gov/priorities/innovation/guide/faqs#ben-cgs Medicare Guide Program locator: https://bit.ly/4n3uArv Dementia Support Group finder: https://www.alz.org/event-search?category=Support+Groups Virtual Support Group: daughterhood.org Adult Day programs - ask your Area Agency on Aging to help find one: https://eldercare.acl.gov/home National Adult Day Services Finder: https://www.nadsa.org/locator/ Dementia Adult Day Programs Finder - choose Community Service: https://www.communityresourcefinder.org/ Dementia Friendly America's Memory Cafe Directory: https://dfamerica.org/memory-cafe-directory/ The Caregiver’s Journey Podcast on Palliative Care: https://thecaregiversjourney.org/42-when-to-call-in-palliative-care-four-essential-tips-alzheimers-and-other-dementias/ Seth Rogan and his wife Lauren HFC respite grants: https://wearehfc.org/care-grants/ Home Instead grant application: https://www.homeinstead.com/home-care-services/alzheimers-dementia-care/HFCgrant/ Memory Board - HHC10 saves 10% at checkout: https://memoryboard.com/?utm_source=happyhealthycaregiver&utm_medium=referral&utm_campaign=promo_page Care Yah-Ya: https://www.careyaya.org/ Papa companion care: https://www.papa.com Zinnia TV: https://www.zinniatv.com/ Vivo Virtual Exercise: https://teamvivo.com/ Singing at Home - Bridgetown: https://www.bridgetownmt.com/singingathome#section-1704859821310 Dementia Minds support groups for people living with dementia: https://dementiaminds.org/ncdm-groups/ Cognitive stimulation therapy: http://Newdays.AI Dementia Care Service finder - choose are at home or housing options: https://www.communityresourcefinder.org/ Alzheimer's Association emergency respite grants - call 800.272.3900: https://www.alz.org/help-support/caregiving/care-options/respite-care The Caregiver’s Journey Podcast 26 Emergency Plan: https://thecaregiversjourney.org/are-you-ready-for-an-emergency-get-a-plan-four-essential-tips-alzheimers-other-dementias/ The Caregiver’s Journey Podcast 33 Care Plan: https://thecaregiversjourney.org/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias/ Read More in This Blog https://thecaregiversjourney.org/65-help-for-solo-caregivers-four-resource-areas/
“When families are prepared — physically, emotionally, logistically — they are able to handle these moments a lot differently. There’s less panic, less guilt, and a little bit more empowerment.” — Dr. Taylor Rush One minute, everything’s fine. The next minute, your loved one is on the floor. If fall prevention isn’t on your radar yet — or if you’re waiting until after the first fall happens — you’re not alone. But there’s a lot you can do right now to be better prepared. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know firsthand how frightening falls can be — and how much the fear of a fall can affect both the person you’re caring for and yourself. We’re sharing five practical tips drawn from the expertise of Dr. Taylor Rush, clinical health psychologist and director of behavioral sciences and interdisciplinary programs at the Cleveland Clinic Center for Neurological Restoration. Taylor specializes in chronic neurological conditions including Parkinson’s and movement disorders, with a deep focus on supporting care partners through the challenges they face every day. Let’s walk through five essential tips for preventing falls, handling them when they happen, and managing the emotional aftermath — for both you and your loved one. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/64-falling-spot-risks-stay-calm-heal-afterwards-five-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Taylor Rush: https://www.linkedin.com/in/taylor-rush-phd-488149352/ Cleveland Clinic for Neurological Restoration: https://my.clevelandclinic.org/departments/neurological/depts/neurological-restoration The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 5 tips: Know your loved one's fall risk factors Reduce risk with practical prevention strategies Start the conversation early — and have a plan Stay calm and assess — don't panic in the moment Manage the emotional aftermath of a fall Read More in This Blog https://thecaregiversjourney.org/64-falling-spot-risks-stay-calm-heal-afterwards-five-essential-tips/
"Once caregivers get it, they're like, 'My gosh.' You just have to train yourself to walk around the brick wall to the moment, the now, and the imagination." — Anne Basting Do you struggle to create meaningful connections with your loved one living with dementia? Almost all of us do. You're not alone — and there are concrete tools you can learn right now to change that. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how isolating it can feel when conversations stall and connection seems just out of reach. We're sharing five tips for creating intentionally meaningful moments with your loved one, from Anne Basting, founder of the award-winning nonprofit TimeSlips, who has spent 30 years developing and researching creative storytelling approaches for people living with dementia. Let's explore five essential tips for creating meaningful connections — from believing in your own creativity to turning shared moments into lasting gifts. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/63-meaningful-conversation-five-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney TimeSlips: https://www.timeslips.org/ Dementia Friendly America: https://dfamerica.org/timeslips/ The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 5 tips: Believe in your own creativity Forget memory Open with a beautiful question Use beautiful listening Create gifts from the experience Read More in This Blog https://thecaregiversjourney.org/63-meaningful-conversation-five-essential-tips-alzheimers-and-other-dementias-2/
“I don’t think any of us should be trying to assist a person with dementia without first walking in their shoes.” — PK Beville, Ph.D. Have you ever wondered what it actually feels like to live with dementia? Do you find yourself struggling to understand why your loved one behaves the way they do, wishing you could see the world through their eyes- even for a moment? There’s a powerful tool that can help you do exactly this. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we know how much empathy and understanding matter in day-to-day care. We’re sharing insights today from PK Beville, Ph.D. , founder of the global nonprofit Second Wind Dreams® and inventor of the Virtual Dementia Tour, a simulation experience that has changed how nearly five million people worldwide understand and care for people living with dementia. If you’re following along with the Navigating Dementia Caregiving Roadmap, this is part of Step Seven — educating yourself. You can find the full roadmap as an interactive page on our website at thecaregiversjourney.org . Steps one through six help you build your foundation right after a diagnosis. Steps seven through ten are about deepening your understanding, and the Virtual Dementia Tour is one of the essential resources we recommend in this phase. Let’s explore three essential tips — from understanding what the Virtual Dementia Tour is, to applying what you learn at home, to finding one near you. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/62-what-is-a-virtual-dementia-tour-three-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Second Wind Dreams: https://secondwind.org/ The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 3 tips: Learn what happens in a Virtual Dementia Tour Apply what you learn at home Find a virtual dementia tour near you Read More in This Blog https://thecaregiversjourney.org/62-what-is-a-virtual-dementia-tour-three-essential-tips-alzheimers-and-other-dementias-2/
WOOP is a very practical technique for anything from emotions to something on your to-do list — it can be used for many different kinds of wishes." — Donna Fedus How many times have you been told that taking care of yourself is really important — and felt overwhelmed just thinking about it? You are not alone in this struggle, and there is a simple, evidence-based process that can help. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how hard it can be to find time — and energy — for your own wellbeing. We are sharing insights from Donna Fedus, gerontologist and founder of Borrow My Glasses, about an evidence-based process called WOOP — yes, WOOP — and how it can help caregivers turn their wishes into reality. Donna has been a gerontologist for 35 years and a dementia educator for nearly 20. She founded Borrow My Glasses in 2013 and has been instrumental in bringing WOOP to dementia family caregivers through a nationally funded study conducted with Yale University. Let's explore three essential tips for putting WOOP to work in your caregiving life. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/61-turn-your-wishes-into-reality-three-essential-tips-alzheimers-and-other-dementias-2/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Donna Fedus at BorrowMyGlasses https://borrowmyglasses.com/ The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 3 tips: Tip 1: WOOP it up Tip 2: Hone in on your wish Tip 3: Make it work! Read More in This Blog https://thecaregiversjourney.org/61-turn-your-wishes-into-reality-three-essential-tips-alzheimers-and-other-dementias/
"While we can't reverse aging, regular mental activity — these exercises, regular cognitive engagement — helps keep cognitive skills stronger for longer. It's like exercising your body." — Dr. Daniel Fenton What if you could make small changes and have more intentional conversations with your loved one that actively stimulate their brain? You're not doing one more thing — you're simply being more deliberate about conversations you're already having and sneaking in more benefits along the way. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how meaningful it is to find ways to help our loved ones function at their best for longer. We're sharing insights about cognitive stimulation therapy (CST) from Dr. Daniel Fenton, head of neuropsychological services at New Days, a virtual clinic specializing in care for people with mild cognitive impairment and early-stage dementia. Let's explore three essential tips for bringing cognitive stimulation therapy into your everyday conversations at home. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/60-use-cognitive-simulation-therapy-at-home-three-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney https://www.newdays.ai/ The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 3 tips: Tip 1: Create A Simple Structure Tip 2: Leverage These Types Of Activities Tip 3: Don’t Forget To Wrap Up And Reflect Read More in This Blog https://thecaregiversjourney.org/60-three-tips-for-using-cognitive-stimulation-therapy-at-home/
As a family caregiver, you spend so much time worrying about your loved one's brain health. But what about your own? The good news is that there are real, evidence-backed steps you can take to improve your brain health and reduce your risk of cognitive decline — even in the midst of a demanding caregiving journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we know how easy it is to put yourself last. That's why we're sharing insights from Shelby Roberts, Senior Director of Public Health for the Alzheimer's Association, about protecting your brain health and reducing your risk of cognitive decline and dementia. We're sharing three tips. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/59-protect-your-brain-health-three-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Alzheimer’s Association 24/7 Helpline: 800–272–3900. Masters-level counselors can help with crisis intervention, finding resources including support groups, and they offer interpretation in over 200 languages. Alzheimer’s Association Brian Health Habit Builder: https://www.alz.org/help-support/brain_health/brain-health-habit-builder Alzheimer's Association Brain Health Resources : https://www.alz.org/help-support/brain_health The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 3 tips: Tip 1: Learn about the 10 health habits for your brain Tip 2: Know yourself Tip 3: Pick a place to start Read More in This Blog https://thecaregiversjourney.org/59-protecting-your-brain-health-three-essential-tips-for-dementia-caregivers/
Have you ever heard of a certified senior advisor? Would you even know what you needed or how to find one? You're not alone if the answer is no — and there are clear steps you can take to get the right help at the right time. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how overwhelming it can be to recognize when something has changed and know where to turn next. We're sharing insights from Cynthia Perthuis, principal owner of Senior Care Authority in Southwest Florida and a certified senior advisor, about finding, evaluating, and implementing solutions along the caregiving journey. If you're following along with the Navigating Dementia Caregiving Roadmap, this aligns with Step Eight . You can find the roadmap as a downloadable digital guide on the guides page of our website, and we've also created it as an interactive page where you can click directly into each step. Let's explore three essential tips for navigating this process — from recognizing when something is wrong, to finding the right help, to building a strategy that works for your whole family. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Society of Senior Care Advisors: https://www.csa.us/ Cynthia Perthuis: https://www.seniorcare-nyfl.com/eldercare-consultants-in-new-york-city-and-southwest-florida.html#about The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 3 tips: Tip 1: Evaluate your situation Tip 2: Reach out for help Tip 3: Create a strategy Read More in This Blog https://thecaregiversjourney.org/58-what-is-a-certified-senior-advisor-three-essential-tips-alzheimers-and-other-dementias-2/
“Support groups are like lifelines — we’re around other people who are going through the same thing we are, and we know we’re not alone.” Kim Franklin Do you wonder if support groups are right for you? Do you know how to find one that fits your needs? Are you feeling overwhelmed and isolated in your caregiving role? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that support groups can be transformative resources on this journey. In this post, we’re sharing insights from Kim Franklin , Senior Program Manager with the Alzheimer’s Association , about how to find the right support group for you. Support groups offer more than just information — they provide therapeutic spaces where caregivers can come together, share their frustrations, breathe, and hear from others in similar situations. Yet many caregivers resist joining groups, thinking they don’t have time, don’t need help, or feel caregiving is a private family matter that should be handled alone. If you’re following along with the Navigating Dementia Caregiving Roadmap , this post supports Step Four, Find a support group. Let’s explore four essential tips for finding the right support group for your caregiving journey. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/57-find-the-right-support-group-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Alzheimer’s Association 24/7 Helpline: 800–272–3900. Masters-level counselors can help with crisis intervention, finding resources including support groups, and they offer interpretation in over 200 languages. Community Resource Finder : https://www.communityresourcefinder.org/ Visit the Alzheimer’s Association website and enter your zip code to find support groups and other services in your community. The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: https://roadmap.thecaregiversjourney.org/ Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free. Takeaways We shared 4 tips: Start with what you need right now Choose the best format for you Explore groups that match your situation Don't settle, but don’t give up either Take Action: Support Groups as Self-Care If you haven’t yet tried a support group, consider committing this month to looking for one. Keep in mind that attending a support group isn’t just about learning how to care for your loved one — it’s also a form of self-care. You’re taking care of yourself while learning valuable information and building connections with others who understand. Resources to Get Started: Alzheimer’s Association 24/7 Helpline: 800–272–3900. Masters-level counselors can help with crisis intervention, finding resources including support groups, and they offer interpretation in over 200 languages. Community Resource Finder : Visit the Alzheimer’s Association website and enter your zip code to find support groups and other services in your community. The Caregiver’s Journey Navigating Dementia Caregiving Roadmap: Available as an interactive page on our website that walks you through the three stages of your dementia family caregiver journey. Includes the option to download the guide for free.
"One of the hardest parts in spousal caregiving is accepting that we're no longer just partners. We're now caregiver and care receiver. The loss of our emotional and physical partner and the emotional responsibilities we're taking on can really take an enormous toll." Are you struggling to find balance between being a spouse and being a caregiver? Do you find yourself wondering when the shift happened—when your partner became your patient? Have you noticed yourself "forgetting to be a spouse" because you're so focused on getting the caregiving right? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've experienced firsthand the complex role transition that happens when your spouse becomes your care receiver. This journey isn't a sudden switch that flips on diagnosis day—it's a slow, gradual transition that unfolds over years. There's a moment when you realize your relationship has fundamentally changed. Your spouse, your partner, your companion—they're still there. But the person you used to bounce ideas off of can't be that person for you anymore. This transition brings unique challenges, from managing new responsibilities to redefining intimacy to letting go of promises made years ago. Let's explore four essential tips for navigating the changing role from spouse to caregiver while preserving your relationship and your own wellbeing. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/56-when-your-spouse-becomes-your-patient-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways We shared 4 tips: 1. Find the balance in your changing role 2. Give yourself permission to get help 3. Keep connection while intimacy is redefined 4. Give yourself permission to let go of promises you made years ago. Read More in This Blog https://sueryansolutions.medium.com/the-changing-role-navigating-the-transition-from-spouse-to-caregiver-90acd5fde819?postPublishedType=repub
“What really helps is grounding yourself in three things: what change you’re noticing, how different it is from who this person has always been, and whether it’s getting worse over time.” — Dr. Anna Chodos Are you concerned that your loved one is showing early signs of dementia? Do you find yourself noticing changes but unsure whether they’re significant? You’re not alone in this uncertainty, and there are clear steps you can take to address your concerns. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we understand how challenging it can be to recognize early signs of dementia and know what to do next. We’re sharing insights about practical guidance for managing through those early signs of dementia from Dr. Anna Chodos, professor of medicine in geriatrics at the University of California, San Francisco, and executive director of Dementia Care Aware, and Dr. Barry Jacobs, clinical psychologist, family therapist, and co-author of the AARP Caregiver Answer Book. Let’s explore three essential tips for recognizing early dementia signs — starting difficult conversations with your loved one and communicating effectively with healthcare providers. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/55-is-it-an-early-sign-of-dementia-three-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Alzheimer’s Association 10 signs of dementia: https://www.alz.org/alzheimers-dementia/10_signs Dementia Care Aware: https://www.dementiacareaware.org/ Barry’s website www.caregiveranswerbook.com Buy the Caregiver Answer Book on Amazon https://amzn.to/4i9V9ZL Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Know What Signs to Look For — They’re More Than Just Memory Tip 2: Start Early and Normalize Health Conversations Tip 3: Plan Ahead for the Doctor’s Appointment Read More in This Blog https://sueryansolutions.medium.com/55-is-it-an-early-sign-of-dementia-three-essential-tips-alzheimers-and-other-dementias-5a1278aa1c2f
“An accurate early dementia diagnosis is essential. It can make a significant difference in how families navigate the diagnosis.” Esther Kane, MSN, RN Your loved one has been diagnosed with dementia… but do you ever wonder if they’ve been diagnosed with the correct type? Do you find yourself thinking: “This diagnosis doesn’t quite fit what I’m seeing.” You’re not alone. Getting the correct diagnosis opens the right doors to support, care, and community that you might not have known existed. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned firsthand that not all dementias are the same. Understanding the specific type of dementia your loved one has ensures they’re receiving the correct medical care and helps you connect with the education, targeted support groups, and research opportunities tailored to your loved one’s specific needs. In this post, we’re sharing insights from Esther Kane , a registered nurse and the Director of Support and Education for the Association for Frontotemporal Degeneration (AFTD). As a director of nursing in multiple memory care facilities, Esther’s entire career has been supporting and caring for individuals living with all types of dementia. In her role at AFTD, Esther works to advance early, accurate FTD diagnoses in order to improve the quality of life for those impacted by the disease. We’re exploring five essential tips for ensuring your loved one receives the correct dementia diagnosis and how to leverage this knowledge for better care. Full Show Notes https://thecaregiversjourney.org/54-why-the-right-dementia-diagnosis-matters-five-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Alzheimer’s Association 10 signs of dementia: https://www.alz.org/alzheimers-dementia/10_signs Navigating Dementia Caregiving Roadmap guide: https://thecaregiversjourney.org/guides/ Association for Frontotemporal Dementia (AFTD): https://www.theaftd.org/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Learn More About Dementia and Push to Dig Deeper Tip 2: Find Your Specific Diagnosis Community, Resources, and Support Tip 3: Monitor Disease Progression and Prepare Tip 4: Investigate Clinical Trials Tip 5: Understand the Genetic Risk Associated with This Diagnosis Read More in This Blog https://sueryansolutions.medium.com/53-why-the-right-dementia-diagnosis-matters-five-essential-tips-alzheimers-and-other-dementias-b6afe1179898?postPublishedType=repub
"Dementia is not just a medical journey, but it's a financial and emotional one." – Devon Banning, CFP Are you avoiding the financial conversation with your loved one because it feels uncomfortable or overwhelming? Do you find yourself wondering how you'll afford care as your loved one's needs increase? Are you concerned about making the right financial decisions during this challenging time? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we know that money is often the last conversation we want to have, but it's inevitable. We have to have it. Today, we're sharing five essential tips for navigating the financial aspects of dementia caregiving with Devon Banning, a Certified Financial Planner with Moran Wealth Management. Devon has more than 15 years of experience across a range of roles in the financial industry, and he brings invaluable depth of experience with dementia family caregiving. He's spent the majority of his career managing financial lives for individuals and families, many of whom were suddenly thrust into the caregiving role due to dementia. Here's what makes this conversation easier: it'll be much more manageable when we respect our loved ones' dignity, independence, and their wishes throughout all of our conversations. Today is about helping you learn options for taking your next step—options that are going to make you feel more confident without needing to have all the answers at one time. This episode supports step three of our Navigating Dementia Caregiving Roadmap Guide: understand the financial situation. If you've been putting this conversation off, you're definitely not alone. This is an area many caregivers hesitate to step into. It's deeply personal, and it can feel intimidating—especially if we wish we'd addressed it sooner. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/53-the-dementia-care-financial-conversation-five-essential-tips-alzheimers-and-other-dementias-2/ Additional Resources Mentioned Moran Wealth Management https://moranwm.com/ Disclaimer:This podcast is for educational and informational purposes only and does not constitute investment, legal, or tax advice. The views expressed are those of the participants as of the date recorded and may change without notice. Nothing discussed should be considered a recommendation or solicitation to buy or sell any security or to engage in any particular investment strategy. Listeners should consult their own financial, legal, or tax professionals before making any financial decisions. Moran Wealth Management is an SEC-registered investment adviser. Registration does not imply a certain level of skill or training. Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Get the Financial Conversation Started Use these 8 steps to guide the conversation Understand the different stages of financial considerations Understand The Financial Position of Your Loved One Consider Leveraging a Financial Planning Expert Read More in This Blog https://medium.com/@sueryansolutions/financial-planning-for-dementia-caregiving-five-essential-tips-edf00b98be82
Are you prepared if a major storm threatens your area? Do you know whether to evacuate or shelter in place with your loved one who has dementia? Have you created a communication plan that accounts for potential power outages and cell tower failures? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we understand how storm season brings critical decisions that require advance planning. Whether your loved one lives at home or in a care community, preparing for storms demands special considerations for people living with dementia. Recently, we spoke with Celeste Lynch, Executive Director at Moorings Park Grand Lake in Naples, Florida. With nearly 40 years of experience in senior living leadership, emergency planning, and resident safety, Celeste shared invaluable insights on storm preparedness from both the care community and at-home perspectives. If you're following along with the Navigating Dementia Caregiving Roadmap Guide, today's topic aligns with Step 14: Create a Care Plan and Family Emergency Plan . Let's explore four essential tips for weathering storms safely with your loved one who has dementia. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/52-preparing-for-stormy-weather-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Navigating Dementia Caregiving Roadmap guide: https://thecaregiversjourney.org/guides/ Moorings Park community: https://www.mooringspark.org/ FEMA assistance programs: https://www.fema.gov/ DisasterAssistance.gov : https://www.disasterassistance.gov/ Relief organizations such as the Red Cross : https://www.redcross.org/ Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways We shared 4 tips: Preparing Ahead of Time Decide whether you will shelter in place or evacuate Strengthen Your Communication Plan Before, During, and After the Storm Post storm, safely get them back in their routine Read More in This Blog here
"The difference between TV as comfort and TV as chaos isn't the screen—it's understanding how the changing brain experiences what's on it." Do you rely on television to help occupy your loved one's time? Does your care receiver seem agitated or anxious when the TV is on? Have you noticed them leaving the room when a show is playing or struggling to follow programs they once enjoyed? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that what soothes us as caregivers can actually cause distress for people living with dementia. In this episode, we spoke with Allyson Schrier, co-founder and president of Zinnia TV and former caregiver for her husband with frontotemporal dementia, about why regular TV can be problematic and what we can do about it. Let's explore four essential tips for managing TV time effectively. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes Additional Resources Mentioned Zinnia TV https://www.zinniatv.com Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Be Thoughtful About What’s On TV The answer isn’t to take TV away completely. We need to be thoughtful about what we put on the TV and pay close attention to how our loved ones respond. Tip 2: Target Something That Creates Curiosity Without Agitation The goal is to find programming that engages without overstimulating or causing your loved one to fall asleep (because daytime sleeping can lead to nighttime wakefulness). Tip 3: Leverage Simulated Presence Therapy The innovative approach of simulated presence therapy takes advantage of how people with dementia can experience confusion between what’s on screen and what’s actually happening — and uses it to benefit them. What is simulated presence therapy? Research has shown that when someone will only take medication or follow instructions from a specific person (like a daughter or doctor), showing them a video of that person giving the instruction can work just as effectively as having the person physically present. Tip 4: Create Engaging Alternatives On Your Own Beyond television, there are creative ways to provide visual engagement that work better with how the dementia brain processes information. Observe and Adjust Managing the television experience for someone with dementia isn’t about finding one perfect solution. What works today may not work next month as the disease progresses, and that’s reasonable. The process is about observing how your loved one responds and adjusting accordingly. The key is understanding the changing brain experiences television very differently than we do. Through being thoughtful about what’s on the screen, targeting content that engages without overwhelming, leveraging simulated presence therapy, and creating our own alternatives, we can turn TV time from a potential source of agitation into a positive opportunity for comfort and connection. Read More in This Blog here
Are you struggling to pull your family together to create a working support system for someone living with dementia? Do you find family members disagreeing on what needs to be done or how to help? You're not alone, and there's a path forward. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that transforming family dynamics into effective teamwork is one of the most challenging—yet most rewarding—aspects of the caregiving journey. In this episode, we spoke with Dr. Barry Jacobs, a clinical psychologist and family therapist who brings both professional expertise and personal caregiving experience to this conversation. Barry cared for his mother with vascular dementia and his stepfather with Alzheimer's disease for seven years, and he co-authored the AARP Caregiver Answer Book with his wife, psychologist Julia Mayer. This content aligns with Step 8 of our Navigating Dementia Caregiving Roadmap: Start Planning for the Next Stage of Care, particularly when building your personal support network of family and friends. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/ , https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org , nancy@thecaregiversjourney.org Full Show Notes https://thecaregiversjourney.org/50-family-dynamics-in-caregiving-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Barry’s website www.caregiveranswerbook.com Buy the Caregiver Answer Book on Amazon https://amzn.to/4i9V9ZL Navigating Dementia Caregiving Roadmap guide https://thecaregiversjourney.org/guides/#guides Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Transforming your family into an effective caregiving team isn’t easy. It’s worth the effort — not just for your loved one with dementia — but for every member of your family. These four tips provide a framework: Create consensus (everyone on the same page). Define an ongoing format for decision making (regular meetings with clear rhythm). Build a family caregiving plan (who does what and when). Plan to deal with conflict (don’t let disagreements become disrespectful).
Do you know what you need to do immediately after your loved one passes? Many caregivers don't. Are you worried about missing important tasks or feeling overwhelmed by the sheer volume of administrative, financial, and legal responsibilities? We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've navigated the challenging process of handling death-related responsibilities firsthand. Between us, we've experienced the loss of multiple loved ones and learned valuable lessons about what needs to be done and when. Connect with us and share your tips: Website: https://thecaregiversjourney.org/ Donate: https://give.cornerstone.cc/thecaregiversjourney Instagram: https://www.instagram.com/thecaregiversjourney/ Facebook: https://www.facebook.com/thecaregiversjourneys/ Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/ Email: sue@thecaregiversjourney.org, nancy@thecaregiversjourney.org Full Show Notes If you are following along with our 20 step Navigating Dementia Caregiving Roadmap guide this is part of Step 20. This is the first guide listed on our guides page. There are many things that can be done ahead of time. We covered these in podcast episode 30 - End of life preplanning and blog as well as in the matching worksheet you can find on our website in the guides section called ‘End of Life Service Worksheet’. Click here to get to the Guides page, scroll down to find the sheet. Tip 1: Prioritize these things immediately after death1. Tip 2: Move to this list within the first few days and weeks Tip 3: Over the next few weeks and months - manage their estate Tip 4: Focus on the things to prioritize once the estate has been closed
