Send us Fan Mail Long-Term Aphasia Support with Dyscover: Conversation Groups, Recovery, and Awareness Hosts Rob Edwards and Jonathan Hirons introduce their podcast follow-up to Hirons’ film on aphasia, a language impairment often caused by stroke or brain injury, affecting speaking, reading, writing, and texting; they note 350,000 people in the UK have aphasia and awareness is low. After an ad inviting sponsorships, they speak with Dyscover charity staff Julie Samuel and Caroline McDonald, plus members Sarah, Neil, and Deena. Dyscover, founded over 30 years ago, provides long-term, facilitated conversation groups (in-person and online) for about 100 members and families. The members describe their strokes and varied recovery, ongoing challenges like fatigue and noise, and how Dyscover’s patience, practice, friendships, ambassador talks, research/training roles, and activities support confidence, identity, and life participation; they discuss patchy access, funding limits, and joint awareness efforts through the Aphasia Alliance. 00:00 Podcast Welcome 00:30 What Is Aphasia 01:09 Sponsor Message 02:16 Meet Dyscover Team 03:34 What Dyscover Does 05:48 Members Stroke Stories 06:20 Sarah Living With Aphasia 08:39 Neil Recovery Journey 11:06 Deena Progress And Challenges 13:46 Long Term Support Gaps 18:39 How Dyscover Helps Members 22:05 Neil As Ambassador 23:59 Editing Skills Return 24:40 Back at BBC Freelance 24:48 Deena Finds Support 26:28 Future of Discover 28:12 Online Groups Reach 30:36 Government Awareness Gap 31:24 Ambassadors Long Term Support 36:30 Deena Cycling Story 38:09 Closing Thanks and Resources Dyscover webside: https://dyscover.org.uk Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Reimagining Creativity After Stroke with Dr. Jess Johansson
Send us Fan Mail Creativity, Hope, and Life After Stroke: Supporting People with Aphasia Beyond Rehab Hosts Rob Edwards and Jonathan Hirons introduce their “On the Tip of My Tongue” podcast, a follow-up to Jonathan’s film about aphasia, a brain-injury condition often caused by stroke that affects language in speaking, writing, reading, and texting; they note 350,000 people in the UK have aphasia yet public awareness is low compared with Parkinson’s. Guest Dr. Jess Johansson , a senior stroke researcher at the University of Leeds/Bradford Institute of Health Research, discusses her 13 years in stroke research and a planned NIHR fellowship application to integrate creative approaches into stroke care and extend support after services end. She describes using crafts like vision boards in stroke groups to promote relaxation, hope, and meaningful activity, emphasizing neuroplasticity and recovery beyond assumed plateaus. The conversation covers fragmented care, the value of groups and social connection, inclusion of people living alone or from deprived backgrounds, shifting away from deficit-focused models, engaging GPs, and raising aphasia awareness through public-facing art exhibitions. 00:00 Creativity After Stroke 00:25 Podcast Intro And Aphasia 01:22 Meet Dr Jess Johansson 02:00 Creative Care Fellowship Plan 03:28 Why Creativity Helps 05:04 Whole Person Recovery 07:16 Research With Stroke Groups 10:12 Access And Inequality 12:01 Living Alone And Support 13:28 Mental Health Adjustment 15:50 Recovery Beyond Plateau 19:43 GPs And Deficit Model 23:01 Raising Aphasia Awareness 25:47 Closing Thoughts And Thanks 26:42 Resources And Community http://www.linkedin.com/in/dr-jess-johansson-091923383/ Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future
Send us Fan Mail Aphasia Awareness Month Q&A: Myths, Carer Support, Recovery, and the Future During Aphasia Awareness Month, the podcast hosts a Q&A on aphasia—an often overlooked language disorder affecting speaking, understanding, reading, and writing, commonly after stroke or brain injury—with more than 350,000 people living with it in the UK. Guest Ann Hirons shares a carer’s perspective, discussing how aphasia is treated as a secondary condition, its “quiet crisis” impact on identity and family life, and the need to avoid carer burnout by creating therapy-free zones. The episode debunks the myth that impaired speech means impaired intellect, offers practical tips for everyday interactions (patience, simple questions, don’t finish sentences, use writing/pointing), and explores living with slowed communication and fatigue. It addresses the post-NHS-therapy “cliff edge,” benefits of peer groups, realistic recovery through practice and small steps, and roles for AI tools and creative outlets like film, art, and music supported by neuroplasticity. 00:00 Aphasia Awareness Intro 01:49 Why Aphasia Is Overlooked 03:53 Carer Burnout Balance 06:11 Everyday Anxiety And Support 09:20 Myths About Intelligence 11:36 Simple Communication Tips 13:41 Invisible Prison Advice 16:16 Aphasia Fatigue Reality 17:47 After Therapy Ends 19:08 Recovery Expectations 21:45 AI And Future Tools 23:10 Creativity And Neuroplasticity 25:53 Closing And Resources https://www.sayaphasia.org Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Speak Up for Aphasia: A Global Awareness Campaign Update
Send us Fan Mail Speak Up for Aphasia: A Global Awareness Campaign Update Guest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in multiple languages, launched worldwide with one consistent message. The Tavistock Trust for Aphasia has pledged £35,429 if matched; the campaign is at 57% (about £22,304/42,000 AUD) and aims to raise the remainder by end of June 2026, with a global launch targeted for Aphasia Awareness Month in June 2027. Partners include the Collaboration of Aphasia Trialists for native-speaker translations, champion networks, and free hosting of assets. The message emphasizes “recognize, respond and respect” and that aphasia does not affect intelligence; listeners are asked to donate, fundraise, provide support letters, and follow “Speak Up for Aphasia” on Facebook. 00:00 Welcome and Hosts 00:18 What Is Aphasia 01:24 Campaign Mission and Funding Goal 05:16 Global Partners and Translations 06:42 Public Message Recognize Respond Respect 09:03 Timeline to June 2027 Launch 11:09 How You Can Support 13:02 Wrap Up and Resources Facebook: https://www.facebook.com/profile.php?id=61572140991752 Donate to the International Aphasia Awareness campaign : https://justgiving.com/campaign/qarc-uq-aphasia-awareness Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail Hosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person and online groups to combat isolation. Genevieve describes her telepractice, 12-month care partner roadmap with weekly training and live support, plus a bootcamp and membership, addressing communication strategies and practical life needs like legal and emergency planning. They discuss collaboration via new websites and resources, and share links to the film and Genevieve’s podcast and sites. 00:00 Aphasia Needs Action 00:12 Podcast Welcome and Aphasia Basics 01:09 Care Partners Matter 02:05 US vs UK Support Systems 04:20 Groups and Ongoing Resources 06:46 Genevieve Care Partner Roadmap 10:24 How the 12 Month Program Works 11:42 Community Fights Isolation 13:05 Scaling Up and The Numbers 14:16 Life Logistics and Caregiver Tools 17:50 Building a Global Movement 19:07 Aphasia Energy and The Gas Tank 20:28 New Website and Collaboration 21:52 Genevieve Podcast and Bootcamp 23:13 Wrap Up Links and Resources 24:44 Final Credits and Sign Off Genevieve's websites: https://www.dolifespeechpathology.com https://www.lifeaphasiaacademy.co Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail Hanka Mayhew: A Polyglot’s Journey Through Aphasia and Advocacy Hanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English teacher and translator until a massive brain bleed left her with aphasia and unable to speak. After three months in hospital in Spain and three in England, she spent a year in a wheelchair relearning how to live. On the Tip of My Tongue podcast, she explains that English and German are easiest, Spanish is slowly returning with little practice, and she can understand some French and Russian but cannot speak them; she retained reading ability but reads more slowly. In February 2024 she joined the Aphasia International Association and became a Say Aphasia ambassador, traveling to assemblies and conferences across Europe and giving talks with therapist support to raise awareness and build an international aphasia community. 00:00 Life in Spain 00:22 Stroke and Aphasia 00:58 Recovery Journey 01:11 Languages After Stroke 03:09 Reading and Fatigue 03:57 Joining AIA and Speaking 05:20 Aphasia Day in Italy 05:53 Future Plans and Travel 07:36 AIA Community and Outreach 11:05 Final Reflections Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a musician using AI-based personalized voice technology. The conversation highlights both the promise and pitfalls of AI in this field, addressing issues such as AI's limitations in real-time conversations and the need for co-designing tools that are genuinely empowering for users with Aphasia. 00:00 Introduction to the Podcast 00:21 Understanding Aphasia and AI's Potential 01:03 Dr. Abi Roper on AI and Aphasia 01:42 AI's Role in Simplifying Text 02:39 Speech Recognition Challenges and Advances 04:48 Jez Hodgkinson's AI App for Word Finding 07:26 Chatbots and Human Conversation 10:41 AI's Limitations and Hallucinations 12:33 Visual Support and Multimodal Communication 14:09 Robert Baldock Personalized Synthetic Voice 17:03 Co-Designing AI Tools with People with Aphasia Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech recognition technologies and AI-driven text simplification, benefit individuals with Aphasia by aiding communication and daily tasks. She also addresses the limitations of AI, such as its inability to fully replicate human conversational skills and the importance of verifying AI-generated information. The episode highlights ongoing research and projects aimed at harnessing AI in therapy, underscoring AI's potential to support but not replace human therapists. 00:00 Introduction to AI and Aphasia 01:18 Meet Dr. Abby Roper 01:43 AI's Role in Assisting Aphasia 03:13 Speech Recognition and Practical Uses 05:25 Challenges and Limitations of AI 27:07 The Future of AI in Therapy 30:35 Conclusion and Resources Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and successes in creating community communication groups. They also touch on the difficulties of raising awareness about aphasia and the need for better support from businesses and transport facilities to help individuals access group sessions. 00:00 Introduction to the Podcast 00:38 Understanding Aphasia 01:16 Chris's Journey with Aphasia 01:42 Lisa's Role and Contributions 02:06 Chris's Aphasia Groups 04:58 Lisa's Connection to Say Aphasia 06:56 Challenges and Solutions in Aphasia Care 10:36 Group Activities and Social Impact 14:52 Transport Issues and Community Support 22:06 Raising Awareness and Future Goals 24:49 Conclusion and Resource https://www.sayaphasia.org/worcester Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson
Send us Fan Mail AI and Aphasia: Overcoming Communication Barriers In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing interest in AI, dating back to the 1980s, and explains how AI has significantly advanced in recent years. He introduces an AI-powered app he developed to assist Aphasia sufferers in recalling words more easily. The conversation highlights the potential of AI to support individuals with communication difficulties while noting the broader implications of AI technology in society. 00:00 Introduction and Guest Background 00:15 Overcoming Aphasia: Personal Journey 01:28 Community Involvement and Support Groups 03:17 Introduction to AI and Early Experiences 05:14 Developing an AI App for Aphasia 15:41 Practical Uses of AI in Daily Life 22:27 Challenges and Future of AI 25:17 Conclusion and Final Thoughts Say Aphasia Group Winchester and Southampton https://www.sayaphasia.org/winchester Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale"
Send us Fan Mail Transformative Power of Music Therapy with Elizabeth Nightingale In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Elizabeth shares insights into the innovative programs at Chilton Music Therapy, which blend music with community outreach and online learning. The conversation also covers the specifics of music therapy for Aphasia patients, highlighting the cognitive and emotional benefits, the development of new neural pathways, and the creation of supportive communities. The episode emphasizes the nationwide accessibility of these services through online platforms, making therapeutic music interventions available even in remote and under-served areas. 00:00 Introduction to the Podcast 00:54 Meet the Hosts and the Topic of Aphasia 01:49 Welcoming Elizabeth Nightingale 02:23 Overview of Chiltern Music Therapy 03:57 Impact of Music Therapy on Various Conditions 05:22 The Science Behind Music Therapy 07:23 Online Aphasia Music Therapy Groups 09:13 Access and Participation Details 18:23 Promoting the Online Groups 21:24 Concluding Remarks and Resources For more info about Chiltern and Aphasia https://www.chilternmusictherapy.co.uk/stories/use-your-voice-aphasia Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
International Aphasia Awareness Campaign with Claire Bennington
Send us Fan Mail International Aphasia Awareness Campaign with Claire Bennington In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with the Australian Aphasia Association since 2018, and discusses her PhD project, which focuses on co-designing a unified international Aphasia awareness campaign. The conversation covers the current fundraising initiatives, the challenges of raising awareness for Aphasia, and the ways listeners can get involved. Claire also highlights the importance of global collaboration and multi-language accessibility for the campaign materials aiming to make a significant impact on Aphasia awareness worldwide. 00:00 Introduction to the Podcast and Guest 01:24 Understanding Aphasia 02:01 Claire Bennington's Background and Role 03:47 Challenges and Activities of the Australian Aphasia Association 06:19 Fundraising Efforts and Campaigns 09:03 Global Aphasia Awareness Campaign 17:29 Conclusion and How to Get Involved To donate to Claire's Just Giving page, click here: https://www.justgiving.com/campaign/qarc-uq-aphasia-awareness To contact Claire about the Match the Momentum: Unite for Aphasia Awareness campaign Claire Bennington - c.bennington@student.uq.edu.au> Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail Overcoming Aphasia: Robert Baldock’s Journey and Advocacy This episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting in acute aphasia and severe verbal dyspraxia. Robert shares his journey through his stroke, the challenges he faced with communication, and his path to recovery. He discusses his innovative use of technology and alternative communication methods, including a synthetic voice developed from his radio recordings. Additionally, Robert talks about his advocacy efforts for the reinstatement of the thrombectomy procedure in Scotland, demonstrating his resilience and commitment to helping others. For more information on strokes and aphasia, listeners are directed to several helpful resources. 00:00 Introduction to Robert Baldock 00:50 Understanding Aphasia 01:33 Robert's Stroke Experience 03:26 Life After Stroke 07:09 Communication Challenges and Solutions 08:43 Advocacy and Campaigning 09:33 Conclusion and Resources For more information about Robert and Andy Fielding (AKA MC Zirconium) is on their website https://www.projectmoonbase.com Robert's original music can be found on his Band Camp website https://aleatorymusicsystems.bandcamp.com/music Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Life in the key of Aphasia - Graham Hall
Send us Fan Mail Join us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him overcome challenges. Listen today! 😊 #Aphasia #MusicHealing #Podcast Living with Aphasia: A Journey Through Music and Recovery Rob Edwards and Jonathan Hirons discuss the impact of Aphasia following a stroke experienced by Graham 10 years ago. The podcast, titled 'On the Tip of My Tongue', complements a film about Aphasia made by Jonathan. Aphasia impairs language skills and affects 350,000 people in the UK, yet remains relatively unknown. Graham shares his journey of adapting to life post-stroke, highlighting his transition from performing with Opera North to creating music and lyrics to aid his recovery and raise awareness. The discussion underscores the therapeutic power of music, the struggle with word-finding, and the broader impact of Aphasia. 00:00 A Life-Changing Stroke 01:03 Introduction to the Podcast 01:22 Understanding Aphasia 01:59 Personal Journey with Aphasia 03:20 Musical Career and Aphasia 05:02 Creating Music with Aphasia 07:48 Future Aspirations and Reflections 11:49 Conclusion and Resources Graham's website: https://grahamhall.bandcamp.com/music Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail Aphasia in Popular Culture and Awareness: Exploring the Silent Struggle In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of Aphasia—a condition caused by brain injury that significantly impacts communication abilities. They discuss its portrayal in popular culture, specifically referencing a character with Aphasia in the detective series 'Department Q.' The hosts highlight the importance of Aphasia awareness, especially during June, the designated Aphasia Awareness Month. They share insights about various types of Aphasia, mention notable individuals like Maurice Ravel and Bruce Willis who have faced the condition, and the impact and advances in therapy. The conversation also touches on diverse topics including a musician friend, Graham Hall, and a nostalgic reflection on Rob's appearance in 'Doctor Who.' The episode underscores the significance of awareness and community support in understanding and managing Aphasia. 00:00 Introduction to the Podcast and Hosts 00:45 Understanding Aphasia 02:05 Aphasia in Popular Culture 04:51 Interview with Graham Hall 07:27 Famous People with Aphasia 14:37 Rob's Doctor Who Experience 19:58 Podcast Growth and Listener Demographics 21:23 Conclusion and Resources Life in the key of Aphasia - https://grahamhall.bandcamp.com Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Navigating Conversations with Aphasia: Insights from Iain Stansfield
Send us Fan Mail Navigating Conversations with Aphasia: Insights from Iain Stansfield In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of living with aphasia through a conversation with Iain Stansfield and Dr. Suzanne Beeke. Iain shares his personal journey following a stroke, emphasising the challenges of communicating with aphasia and the impact on relationships. The discussion delves into experiences from the 'Better Conversations with Aphasia' therapy group, a program developed by Dr. Beeke at UCL. Key points include the significance of video reflection in improving communication strategies and the evolving dynamic between individuals with aphasia and their partners. Listeners are encouraged to support the podcast and can find more resources at stroke.org.uk, sayaphasia.org, or the NHS aphasia page. 00:00 Understanding Aphasia: A Shift in Conversations 00:34 Welcome to 'On the Tip of My Tongue' 02:33 Introducing Iain Stansfield 03:06 The Therapy Group Experience 04:42 Reflections on Communication Challenges 06:40 Impact of Video Reflections 07:37 Changes and Insights Post-Therapy 10:49 Future Directions and Final Thoughts 12:33 Conclusion and Resources Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Dan's Journey: Triumph Over Aphasia
Send us Fan Mail Dan's Journey: Triumph Over Aphasia In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head injuries from a cycling accident in 2016. These injuries resulted in Aphasia and mobility challenges. Despite his struggles, Dan founded the Minds Over Matter Social Group to create a supportive community for individuals with brain injuries. The episode explores Dan's daily routines, his love for social activities, and how he navigates the complexities of living with Aphasia. Listeners learn about the significance of shared experiences and community support in overcoming adversity. The hosts also highlight the importance of raising awareness about Aphasia, a condition that remains relatively unknown despite affecting 350,000 people in the UK. 00:00 Understanding Brain Injury and Aphasia 00:23 Introduction to the Podcast 00:41 What is Aphasia? 01:19 Dan Sutton's Inspiring Journey 02:07 Daily Life and Challenges 02:44 Social Activities and Hobbies 04:10 Struggles with Reading and Audio Books 05:54 The Power of Community and Support 09:10 Singing and Aphasia 10:14 Conclusion and Resources Visit the to Minds over Matter instagram account https://www.instagram.com/mindsovermatter.osm/ Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges and misconceptions surrounding disabilities, particularly aphasia. They are joined by Sarah Petherbridge, a disability trainer and speaker who shares her experiences of living with profound deafness and working in the corporate sector. Sarah emphasizes the importance of creating inclusive workplaces and the need for a shift from diversity initiatives to genuine inclusion. She discusses the impact of government policies on disability rights, the importance of technology, and the necessity of changing societal attitudes. The conversation also highlights strategies for small businesses to promote inclusivity without incurring substantial costs. The episode underscores the broader definition of disability and the significant progress needed to close the disability employment and pay gaps. 00:00 Introduction to the Podcast 00:36 Understanding Aphasia 01:13 Meet Sarah Petherbridge: Disability Trainer and Speaker 02:19 Sarah's Journey and Business 03:02 Challenges and Changes in Disability Inclusion 06:17 Employment Gaps and Workplace Adjustments 19:39 The Role of Technology in Disability Inclusion 20:30 Social Perceptions and Personal Experiences 31:29 Future Outlook and Final Thoughts 32:51 Conclusion and Resources https://www.sarahpetherbridge.co.uk Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Resilience and Recovery: Talia Lazarus' Inspiring Journey
Send us Fan Mail In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got Back Up.' Talia shares her harrowing story of a devastating electric scooter accident in 2021, which resulted in serious leg injuries and an 18-month rehabilitation journey. She discusses her physical and mental recovery, overcoming multiple surgeries, and even achieving the incredible feat of running a half marathon only 10 months post-surgery. The conversation delves into the power of mindset, the significance of embracing fears, and the transformative journey that led Talia to a successful career in sports broadcasting and mental health advocacy. With heartfelt anecdotes and insightful advice, this episode underscores the importance of resilience, community, and self-belief. 00:00 Introduction to Talia Lazarus' Journey 00:48 Understanding Aphasia 01:49 The Accident and Immediate Aftermath 03:59 The Road to Recovery 05:58 Running a Half Marathon 09:29 Starting the Podcast 13:56 Career as a Presenter and Broadcaster 21:44 Embracing Positivity and Overcoming Challenges 31:43 Reflections and Future Plans 36:56 Closing Remarks and Farewell Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
Send us Fan Mail Understanding Acquired Brain Injuries: Challenges and Support Systems plus Returning to Work In this episode, Jonathan interviews Tamsin Keyes, the Publications and Research Manager at HEADWAY, the Brain Injury Association. Tamsin provides an in-depth explanation of what constitutes a brain injury, ranging from traumatic incidents to medical complications like strokes and aneurysms. She also outlines the difficulties individuals face when returning to work post-injury, including cognitive challenges and workplace accommodations. The discussion highlights the hidden nature of brain injuries and the importance of awareness, support, and legal rights under the Equality Act. Tamsin also shares resources and services provided by HEADWAY, including their helpline, local support groups, and vocational rehabilitation options. The episode aims to raise awareness and offer practical advice for individuals affected by brain injuries and their families. 00:00 Introduction to HEADWAY and Brain Injury 00:28 Understanding Brain Injuries 02:50 Challenges of Returning to Work 08:14 Support Systems for Employment 14:37 HEADWAY's Services and Support 23:27 Conclusion and Final Thoughts www.headway.org.uk www.acas.org.uk www.gov.uk/government/collections/disability-confident-campaign www.jobcentreguide.co.uk/about-disability-employment-advisors www.gov.uk/guidance/equality-act-2010-guidance www.vrassociationuk.com/resources-for-individuals www.ncvo.org.uk/get-involved/volunteering/volunteering-opportunities Support the show Support the show: Donate Now This podcast is funded by https://www.bas.org.uk To watch Jonathan’s film: https://tipofmytonguefilm.com YouTube: https://www.youtube.com/@tipofmytonguefilm Linkedin: https://www.linkedin.com/in/jonathanhirons/ Instagram: https://www.instagram.com/tipofmytonguepodcast/ X: http://x.com/buffaloloungeuk The Tavistock Trust for Aphasia website http://aphasiatavistocktrust.org
