ICU - "I See You" - Vestibular Conversations

For many people living with a vestibular disorder, treatment focuses on medications, vestibular rehabilitation, and lifestyle changes. But in some cases, surgery may be considered when symptoms are severe, persistent, or caused by a structural problem that cannot be addressed in other ways. The decision to undergo surgery is rarely simple. Patients and healthcare providers must carefully weigh the potential benefits against the risks, consider alternative treatments, and prepare for what can sometimes be a challenging recovery process. While surgery can be life-changing for the right candidate, it often comes with its own physical and emotional hurdles. In today's episode, we'll explore how doctors determine when an operation is appropriate, what patients can realistically expect before and after surgery, and how recovery unfolds over time. Guests Stefanie Adams suffered multiple traumatic brain injuries and had her third concussion in 2017. As soon as she hit her head, she felt off-balance and started to sway. Over the next year, she developed terrible migraines and dizziness. Eventually the migraines left, but the dizziness stayed. A year later she discovered that she had a perilymph fistula (a hole in the membrane separating the middle and inner ears) when she got the flu, blew her nose, and the room started to spin. She’s had surgery to repair the fistula and is now a VeDA Ambassador, Board Member, and vestibular advocate. Habib G. Rizk, M.D. grew up in Beirut, Lebanon. He attended the Faculty of Medicine-Saint Joseph University in Beirut, Lebanon, and pursued an Otolaryngology — Head & Neck Surgery residency at Hôtel-Dieu de France Hospital in Beirut, followed by an Otologic Medicine and Surgery Fellowship under the mentorship of Dr. Michael Teixido at Christiana Care in Wilmington, Delaware, and a two-year Neurotology fellowship at the Medical University of South Carolina. Dr. Rizk’s interests span all areas of otology and neurotology, with a specific focus on the medical and surgical management of vestibular disorders. He is a professor in the MUSC Department of Otolaryngology, Head & Neck Surgery , and the Director of the Multidisciplinary Vestibular Program. Dr. Rizk is currently on the board of directors and past president of the Vestibular Disorders Association. He is a member of the Bárány Society and a fellow of the American Neurotology Society and the American Otological Society. He is also a member of the American Balance Society and of the Otology and Neurotology Education Committee of the American Academy of Otolaryngology-Head and Neck Surgery.

Living with a chronic illness can challenge not only the body but also a person’s sense of identity, purpose, and hope. For many, spirituality becomes an important part of the healing journey—offering meaning in difficult moments, strengthening resilience, and helping people navigate uncertainty. Yet spirituality looks different for everyone, shaped by personal beliefs, values, and life experiences. In this episode of the ICU Podcast, we explore the role spirituality can play in coping with chronic vestibular conditions. We’re joined by Lynn Johnson, a vestibular patient and devout Christian, and Rev. Carol Rexroad Cannon, a vestibular patient and retired United Methodist pastor, as they share how faith and spirituality have supported their journeys and helped them find strength, connection, and hope. Guests Carol Cannon graduated with a BA in chemistry from Carleton College in Minnesota and received a Master's in Divinity (MDiv) in Biblical, Theological, and Pastoral training from Yale Divinity School. She served with her husband, Robert, as a United Methodist pastor for forty years. Carol was diagnosed with vestibular neuritis in 2016, which developed into PPPD. Vestibular rehab therapy has helped restore her balance. Carol enjoys hiking mountain trails near her home, visiting with family, and volunteering in the church and community to work for justice, peace, and wholeness. Lynn Johnson’s life changed in 2015 when she suddenly developed imbalance and loud tinnitus. After months of worsening symptoms and multiple doctor visits, she was diagnosed with Autoimmune Inner Ear Disease (AIED) and Bilateral Vestibular Hypofunction. She now lives with profound hearing loss, oscillopsia, and imbalance, which ended her career as a high school biology teacher and limited her mobility and independence. Lynn believes earlier diagnosis might have preserved her hearing. Despite these challenges, she remains determined to live fully. She is a VeDA Ambassador, co-leads a support group for vestibular patients with hearing loss, and facilitates an AIED Facebook support community. Attribution: The Lives We Actually Have: 100 Blessings for Imperfect Days by Kate Bowler and Jessica Ritchie. New York: Convergent Books, 2023. Blessing # 67: “For when you thought you would feel different by now." https://katebowler.com

On this episode of the ICU Podcast, we explore the emerging—and deeply relatable—connection between blood glucose regulation and vestibular migraine, a topic gaining attention across migraine, neurology, and nutrition research. Joining us are Dr. Kyle Bills, co-author of a recent paper examining glucose dynamics in vestibular migraine, and Rachel Weaver, author of Dizzy: A Memoir, who brings her lived experience perspective to the conversation. Together, we unpack how brain energy metabolism, insulin sensitivity, genetic links to glycemic traits, and everyday factors like diet and lifestyle may influence migraine biology—especially for people whose symptoms include dizziness and balance disruption. This discussion bridges cutting-edge science with real-world insight, offering listeners a clearer understanding of why blood sugar stability may matter in vestibular migraine and how this knowledge could shape more personalized management strategies. Guest Bios Rachel Weaver’s novel Point of Direction was named a Top Ten Book To Pick Up Now by Oprah Magazine and won the Willa Cather Award for Fiction. Rachel’s newest book, Dizzy , an “arresting new memoir” according to Maureen Corrigan on NPR’s Fresh Air, published in February of 2026. Her second novel The Last Run , is forthcoming in June 2026 with Lake Union Publishing. Prior to earning her MFA in Writing and Poetics at Naropa University, Rachel worked for the Forest Service in Alaska studying bears, raptors and songbirds. She teaches at Wilkes University and Lighthouse Writers Workshop and holds a CPA in Narrative Medicine from Columbia University. For twenty years, Rachel has lived with vestibular migraine. For more information visit https://rachelweaver.net/ . Dr. Kyle Bills is a neurologist and headache specialist with a clinical and research interest in vestibular migraine and the role of metabolism in migraine disorders. He is a co-author of a recent study examining glucose dynamics in vestibular migraine, contributing to a growing body of research exploring how blood sugar regulation, brain energy metabolism, and lifestyle factors may influence migraine symptoms. Through his work, Dr. Bills seeks to better understand the biological mechanisms underlying vestibular migraine and how this knowledge can improve diagnosis, treatment, and quality of life for patients living with dizziness and migraine. You can find Dr. Bill's most recent paper on Glucose dysregulation and glycemic phenotyping in chronic migraine here: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2025.1719724/full .

A blow to the head can do more than cause a concussion—it can disrupt the delicate systems that control balance, vision, and spatial awareness. In this episode of the ICU Podcast, we explore vestibular concussion: what it is, why it’s often overlooked, and how it can leave people feeling dizzy, disoriented, and disconnected from their surroundings. Our guests break down how the vestibular system is affected by head injury, why symptoms like vertigo, brain fog, and visual sensitivity can linger, and what recovery can look like with the right care. Whether you’re a patient, caregiver, or clinician, this conversation sheds light on an often misunderstood consequence of concussion and offers hope for healing through targeted support and rehabilitation. Guests Jess Winter is a school librarian with a background in teaching journalism and a deep passion for finding, organizing, and sharing information. After experiencing a concussion, Jess developed ongoing vestibular challenges, including vestibular migraine and persistent postural-perceptual dizziness (PPPD), which have shaped both her personal journey and her commitment to supporting others. She holds a Master’s degree in Library Science and is especially interested in pursuing work as a medical librarian, combining her love of research with a desire to help people navigate complex health information. Jess also supports VeDa through the annual Poetry-4-Balance contest and has led poetry writing for social hour. Dr. Danit Macklin, PT, DPT specializes in concussion and vestibular rehabilitation, holding certificates from the APTA in both pediatric and adult vestibular rehabilitation and certification as an Impact Trained Physical Therapist. She has served as faculty for the annual APTA Pediatric Vestibular Competency Conference and is a course instructor for Education Resources Inc. (ERI), where she teaches Leading-Edge Approaches for Concussion and Mild TBI Management: Applications for Comprehensive Assessment and Treatment. Dr. Macklin is the owner of Balance & Concussion Therapy Center, a private practice exclusively dedicated to concussion and vestibular rehabilitation. She serves on the BIANJ Concussion Committee, is the founder and chair of the APTANJ Vestibular Special Interest Group, and founded Concussion Awareness Day in New Jersey. She recently joined the International Neurologic Physiotherapy Association and is actively engaged with its vestibular special interest group.

In this episode of the ICU podcast, we’re exploring CANVAS —short for cerebellar ataxia, neuropathy, and vestibular areflexia syndrome—a rare, progressive neurological condition that disrupts the very systems our bodies rely on to stay balanced and oriented. CANVAS affects the cerebellum, sensory nerves, and inner ear balance system all at once, creating a “triple hit” that can lead to unsteadiness, dizziness, vision changes with head movement, and worsening coordination over time. Although researchers have only recently begun to understand its genetic cause, much remains unknown about how it develops and how best to manage it. Today, we’re joined by Celeste Suart, Patient Engagement Director at the National Ataxia Foundation, and Denise Luken, who is living with CANVAS, to share both the clinical perspective and the lived experience of navigating this complex and often misunderstood condition. Guest bios Celeste Suart, PhD, is the Patient Engagement Director for the National Ataxia Foundation . She earned her PhD in biochemistry at McMaster University, where her research focused on Ataxia, science communication, and adult education. Celeste leads the development of various patient-facing research communications, educational materials, and informational webinars. She also acts as a liaison between NAF, researchers, clinicians, industry professionals, and the ataxia community. Celeste strongly believes in the empowering nature of education. She is committed to supporting the agency of Ataxians and their families through access to research information and opportunities. Denise lives in North Carolina with her husband of nearly 25 years, Bill, and their two dogs. After an active life that included raising two children, working in IT, and enjoying sports like tennis and skiing, she began experiencing balance issues, falls, and coughing in her early 50s. Following years of testing, she was first diagnosed with idiopathic ataxia, and later with RFC1-related CANVAS. Now in her mid-60s, Denise stays active with regular exercise and physical therapy, using a cane or rollator for support.

In today’s episode of the ICU Podcast, we explore the fascinating connection between gut health and vestibular disorders—and why taking care of your digestive system might be an overlooked piece of your wellness puzzle. What happens in your gut doesn’t always stay in your gut: when the lining of the intestine becomes compromised, it can lead to systemic inflammation, nutrient malabsorption, and an imbalanced microbiome—all of which may influence vestibular symptoms like vertigo, dizziness, and balance issues. The gut is also a major producer of neurotransmitters that affect mood and nervous system balance, and imbalances there could potentially affect how your brain processes vestibular signals. Today, we’ll break down what gut health really means, how it intersects with vestibular function, and practical takeaways you can consider as part of your overall health strategy. Guest Bios Leigha Kingsley is an actress, writer, producer, and director. Her acting credits include films starring Will Ferrell and Woody Harrelson, and TV shows like Criminal Minds. She is a champion for female-driven stories, and her scripts have been finalists for Sundance, HBO Project Greenlight, and the New York Television Festival. Leaha has been experiencing Vestibular Migraines for the past year. She is still new to this journey, but one thing she has noticed is that the foods she consumes have a direct correlation with how well her brain and vestibular system operate. Carla Alpert, FDN-P, NBC-HWC, FMCHC , is a trauma-informed Board-Certified Health & Wellness Coach and Functional Medicine Practitioner. She focuses on gut health and how it affects overall health because, unlike Las Vegas, what happens in the gut doesn’t always stay in the gut. Symptoms become the way your body tells you there’s an imbalance. Many times, problems that seem unrelated to gastrointestinal health, such as brain fog, fatigue, anxiety, and even skin issues, can stem from an imbalance in the microbiome. Carla supports her clients in uncovering the root cause(s) of digestive problems and other chronic symptoms, restoring overall health and well-being. Her mission as a coach is to help her clients explore and discover solutions to live a life with renewed vitality, radiant health, authenticity, and purpose—without the overwhelm. Learn more about Carla here.

In this episode of the ICU Podcast, we explore how humor and gratitude can become powerful tools for coping with chronic vestibular disorders. Living with dizziness, vertigo, or imbalance can often feel isolating and overwhelming—but laughter and thankfulness can help restore balance to both body and mind. Research shows that humor can lower blood pressure, reduce stress hormones, boost immune function, and even trigger endorphins—our body’s natural painkillers. Similarly, practicing gratitude has been linked to better sleep, improved mood, and enhanced overall well-being. Our guests—a vestibular patient who’s found resilience through laughter, and health coach Hilary Russo, creator of the “HIListic” approach to mindful self-compassion—share how humor and gratitude have transformed their healing journeys and offer practical ways to bring more lightness and appreciation into everyday life. Guest Bios Mary Ziegler was once reliable, hard-working, and a dedicated wife and mother. But when Meniere's disease and vestibular migraine hit, she had to leave her job and stop driving. One of the things Mary misses the most is helping other people. She misses parties with friends and family. But she has devised ways to dwell in joy and gratitude. She likes being a VeDA Ambassador because it allows her to help people in Chicago, where she lives, and all over the world. She is grateful for her family and friends, and for the doctors who recognize her as an expert in her condition. Hilary Russo is a certified trauma-informed holistic mental health practitioner and health coach, one of only 50 certified Havening Techniques® Trainers globally, and one of the first 100 Certified Havening Practitioners in the United States. Due to her work in Havening and trauma-informed care, Hilary is a recommended referral partner with the nationally recognized Amen Clinics for brain health. Her extensive background in media and military life gives her a unique perspective on working with secondary trauma, chronic stress, and burnout. She is the host of the globally top-rated podcast HIListically Speaking® and creator of the HUG it Out® Method , which reminds you to access self-healing through Humor, Understanding, and Gratitude and be a Pioneer Practitioner™ of your own life. Connect with Hilary at hilaryrusso.com , on social @hilaryrusso , or on her Substack, The Brain Candy Blueprint.

In this episode of the ICU Podcast, we explore the powerful relationship between the mind and body—and how that connection can be both disrupted and harnessed in life with a vestibular disorder. From the ways stress and anxiety can amplify dizziness to the grounding effects of mindfulness, movement, and self-compassion, we’ll discuss the science and lived experience behind mind-body healing. Through personal stories and expert insights, listeners will discover how cultivating awareness, patience, and inner balance can help restore a sense of control and resilience on the path toward recovery. Guest Bios Sandy Brunner describes herself as an awesome stay-at-home mom and an okay housewife. Pre-kid, she was a speech-language pathologist and blogger for Life Without Land Legs. Sandy started her vestibular journey with Mal de Debarquement Syndrome, or MdDS, on a trip to Europe in 2018, adding vestibular migraine, PPPD, and cervicogenic dizziness to her vestibular bingo card along the way. She was in VeDA’s first season of the Life Rebalanced Chronicles docuseries. When she’s not doing mom stuff or at the gym, she is planning parties, going on random adventures, organizing something, reading, or doing crafts. Donna McArthur, DC has been a chiropractor for thirty years, sharing a wellness-based practice with her husband in the mountains of British Columbia. She provides patient-centered care aimed at restoring function to the neuro-musculoskeletal system, utilizing evidence-based therapies and drawing on her deep knowledge of biomechanical, neurological, and fascial approaches. Her work is grounded in a heart-centered, integrated philosophy of healing. Donna is passionate about offering people tools and choices that empower their own wellness—something she brings to her clinical practice, writing, and teaching. With a focus on general family practice, she has extensive training and experience supporting both pediatric and geriatric patients. You can follow Donna on Substack .

Welcome to this episode of the ICU Podcast, where we shine a spotlight on the often-overlooked world of vestibular migraine, a condition that affects more than half of all migraine sufferers at some point yet remains frequently misdiagnosed. Vestibular migraine can cause not only headaches but also vertigo, dizziness, imbalance, and sensory sensitivities—making it a formidable challenge for both patients and clinicians. Today, we’re joined by two remarkable guests: a dedicated volunteer with the World Migraine Summit (taking place March 11 – 18) who brings lived experience and advocacy insight, and Dr. Brian Ward, a neurotologist at Johns Hopkins Medicine. Together, we’ll explore how lifestyle management, medication, and other targeted therapies can help restore balance and hope to those navigating vestibular migraine. Guest Bios Dr. Bryan Ward is a Neurotologist with Johns Hopkins University who specializes in treating inner ear and skull base disorders that cause dizziness, such as superior canal dehiscence syndrome, Meniere’s disease, and bilateral vestibulopathy. His research interests focus on magnetic resonance imaging (MRI) and interactions between strong magnetic fields and the inner ear. He also works with Dr. Charles Della Santina on the development of a vestibular implant. Natanya Mandel is a migraine coach, mindfulness facilitator, and passionate patient-advocate whose own journey with frequent migraine attacks and disruptive neurological symptoms inspired her to shift her career and support others living with migraine and chronic pain. Natanya has volunteered with groups like Migraine Canada and the Migraine World Summit, facilitates virtual support groups, and helps people navigate the challenges of chronic migraine with compassion and evidence-informed guidance. Migraine World Summit Natanya’s coaching

In this episode of the ICU Podcast, we explore how yoga can be a powerful, complementary tool for improving balance in people with vestibular disorders. Vestibular conditions disrupt the delicate interplay between the inner ear, vision, and somatosensory systems, often leading to dizziness, instability, and compensatory stiffness. Yoga offers a gentle, embodied pathway to re-train balance by engaging controlled movement, focused breathing, and meditative awareness — all of which can help patients recalibrate their vestibular reflexes, reduce dizziness episodes, and restore coordination and confidence in movement. Speaker Bios Emma Rodgers is a certified yoga teacher, originally from the UK and now based in Melbourne, Australia. Emma's journey began after finding yoga and meditation incredibly beneficial for managing her own symptoms of Vestibular Migraine and PPPD, which led her to train as a teacher. She uses her personal experience to inform her teaching style, making it more accessible through safe, gentle practices. Denise Schneider is a physical therapist who has been practicing in outpatient orthopedics clinics for 23 years. During this time, she has furthered her education to receive a doctorate in physical therapy, a fellowship degree in differential diagnosis and manual therapy, a certificate in vestibular rehabilitation, and a certification in dry needling. She received her 200-hour yoga training certification in 2023. Since then, she has taught various classes and also utilizes this knowledge in her physical therapy practice. Denise is dedicated to providing the utmost patient experience by incorporating evidence-based practice and individualized care to include all aspects of one’s health and well-being. She is a proud ambassador of and contributor to VeDA. Resources Yoga for Balance article on the VeDA website.

In this episode of the ICU Podcast, we’re diving into the concept of pacing —a vital self-management strategy for people living with vestibular disorders. When dizziness, vertigo, brain fog, and fatigue are part of your daily reality, even routine activities can become overwhelming. We’ll explore how pacing helps individuals with vestibular dysfunction conserve energy, manage sensory overload, and create a more predictable rhythm in an often unpredictable life. Pacing isn’t about giving up—it’s about planning ahead, listening to your body, and protecting your vestibular system from being overstimulated. We’re joined by a patient who has learned to pace their days to avoid symptom flare-ups, and a healthcare professional who supports patients in integrating pacing into their treatment and rehabilitation plans. Guests: Tracey Franklin had just started a new job while recovering from a viral flu when she began experiencing fatigue, dizziness, and brain fog. A few months later, she went on sick leave, followed by disability. In 2018, she retired medically from her 30-year career as a publishing professional. Over the next six months, Tracey saw multiple doctors and underwent various tests and was diagnosed with Vestibular Migraine and Persistent Postural Perceptual Dizziness (PPPD). Along with ongoing VeDA support groups, vestibular rehab, cognitive behavioral therapy, and medical treatments, she manages these invisible disorders by getting adequate rest and pacing her commitments and activities. She hopes to build a bridge between the vestibular and medical communities, so others are diagnosed sooner. Tracey loves ice cream, writing, the beach, and snow. She lives with her husband of 21 years and their cat. She believes it’s her faith in God that continues to bless her with managing her conditions and having fewer symptomatic days. Steph Fowler is a Licensed Clinical Professional Counselor and Certified Alcohol and Drug Counselor (LCPC, CADC). She is also a chronically ill, disabled, and neurodivergent therapist, writer, consultant, and coach who has lived with Long COVID since early 2020. After her health, work, and life were dramatically changed by this condition, she shifted her business and rebranded as Misfit Mental Health. She now focuses on supporting people in the chronic illness, disability, and COVID Conscious communities - as well as their loved ones and care providers. Earlier this year, Steph was featured in TIME Magazine, sharing her personal and professional insights on navigating healthcare and medical gaslighting. When she's not depathologizing non-conformity, she enjoys taking care of her houseplants, building LEGOs, spending time with her partner and their cat Ziggy, and all things macabre. Check out Steph's pacing workshop and other resources here: https://linktr.ee/misfit.mental.health.

In this episode of the ICU Podcast, we’ll discuss how the brain interacts with the body and the specialized type of healthcare provider who studies this interaction. Chiropractic neurology, also known as functional neurology, is a specialty that branches from the traditional chiropractic methods. You might think of a conventional chiropractor as someone who performs manual adjustments on the neck and spine. Chiropractic neurologists aim to optimize neurological functions by leveraging the concept of neuroplasticity, which is the brain's ability to change and adapt. Chiropractic neurology offers a holistic approach for assessment and therapeutic interventions that may benefit patients with vestibular symptoms. By examining how brain function interacts with other bodily systems, chiropractic neurology can begin to unravel complex health conditions.

In today’s ICU episode, we’re exploring an important and often overlooked topic: how menopause can impact people living with a vestibular disorder. Hormonal changes during menopause can affect the inner ear and brain function, often intensifying symptoms like dizziness, imbalance, brain fog, and migraines. For those already managing a vestibular condition, this transition can bring new challenges — but also new opportunities for understanding and support. In this episode, we’ll dive into the connections between hormonal shifts and vestibular health and offer insights on how to navigate this complex time with greater resilience and hope. Speakers: Lara Bishop: Lara is a mother of twins who was diagnosed with vestibular migraines in 2012, vestibular neuritis in 2013, and PPPD in 2018 — all of which have been profoundly life-changing. Coping with invisible illnesses has been a challenging journey, often difficult for her family and friends to understand fully. In addition to her vestibular disorders, Lara also lives with Anxiety, panic Disorder, depression, as well as some other chronic conditions. Over the years, she has made significant lifestyle changes to help manage her conditions, including participating in Cognitive Behavioral Therapy (CBT) and Vestibular Rehabilitation Therapy (VRT), adopting a regular routine of daily exercise such as biking and weight training, and making critical dietary adjustments. Lara is passionate about raising awareness of debilitating vestibular conditions, supporting fellow sufferers, and educating both the general public and medical professionals. Despite the many challenges she faces, she maintains a positive outlook on life and is determined to share her optimism and motivation with others. See Lara’s presentation to the British Association of Audiovestibular Physicians on Vestibular Migraine in women - The Hormone Connection here: https://youtu.be/cVsVhtISFB8?si=VSUm2AB4NnIrOATg . Heather Bartos: Dr. Heather Bartos is an OB/GYN, menopause specialist, author, and speaker, recognized as one of the nation’s top five experts in menopause by Oprah Winfrey and Maria Shriver. Her mission is to dismantle the taboos surrounding menopause and sexuality, empowering women through transformative midlife transitions. Her latest book, Quickies: 100 Little Lessons to Living Sexily Ever After in Midlife, is out to rave reviews. Her diverse background, spanning PR, medicine, and Reiki practitioner, as well as her service in the Navy, underscores her holistic and personalized approach to healthcare. Featured in Shape, Glamour, Refinery29, ABC News, and more, her insights are pivotal in changing the narrative around midlife and menopause. Cosmo magazine celebrates her as a ‘supremely badass gyno,’ highlighting her significant impact on women’s health advocacy. Learn more about Heather Bartos at https://heatherbartosmd.com .

Welcome to the ICU podcast, where we illuminate invisible chronic illnesses and the people who live with them. In this episode, we’re spotlighting Balance Awareness Week, an annual event hosted by the Vestibular Disorders Association each September. This global campaign raises awareness about the impact of vestibular disorders—conditions that affect balance, dizziness, and spatial orientation—and connects patients, caregivers, and healthcare professionals through education and advocacy. In this episode, we talk with Paul Morris, VeDA’s Development Director, about how people can get involved in Balance Awareness Week, as well as Christian Chabbert, a French neurophysiologist who engages healthcare professionals across Europe in this event, and is spearheading a global walk for balance. Speaker Bios Paul Morris has over 30 years of experience in nonprofit fundraising, helping a wide spectrum of organizations raise millions of dollars to support their missions. He has led successful development efforts in direct health services at the state and national levels. He’s also helped raise funds for organizations that work in regional theater, architectural preservation, offering chess to low-income students, and more. For Paul, fund development isn’t just about raising money, but building relationships with people in your community so that they feel heard, valued, and are excited about supporting their shared mission. Christian Chabbert is a French neurophysiologist and Research Director at the French National Centre for Scientific Research. He is developing research on balance disorders at the Research Center in Psychology and Neurosciences at Aix-Marseille University. Since 2015, Dr. Chabbert has directed GDR Vertige, a national research consortium uniting clinicians, scientists, and industry partners to advance the understanding and treatment of vestibular disorders. His expertise in sensory neuroscience and molecular electrophysiology has contributed to over 90 scientific publications and the founding of two biotech companies—Sensorion Pharmaceuticals and Vertidiag—focused on developing therapies for balance-related conditions. Dr. Chabbert also plays a key role in the European PROVIDE network, promoting translational research and innovation in neuro-otology across Europe.

In this episode, we’re diving into a crucial yet often overlooked part of vestibular recovery: sleep. If you’re dealing with vestibular dysfunction, getting high-quality sleep isn’t just a nice-to-have—it’s a vital part of healing. When you're well-rested, your body is better equipped to handle treatment and manage symptoms. On the flip side, sleep deprivation can actually trigger or worsen dizziness, imbalance, and other vestibular issues. In this episode, we’ll explore how developing strong sleep habits—from setting a consistent bedtime to managing light and noise in your room—can become a powerful tool in your recovery toolkit. So grab a cozy blanket, and let’s talk about why it’s time to take sleep seriously. Speakers: Tiffany Kopp In June 2021, Tiffany woke up to her world spinning. It took 2 weeks for her to be diagnosed with BPPV, two months to be diagnosed with vestibular migraine, and a month later, she was also diagnosed with PPPD. It took almost six months to find a doctor who prescribed a treatment plan that works for her. She discovered VeDA’s website early on in her search for answers to her symptoms and connected with several VeDA Ambassadors, who helped her during her vestibular journey. Now she hopes that she can do the same for someone else. She volunteers as a VeDA Ambassador and believes that advocating is the best way to get the word out and help “make vestibular visible.” Nicole Acerra Nicole Acerra earned her psychology and physiotherapy degrees at Queen’s University. After working as a neurological physiotherapist in Canada, the United States, and Australia, she completed doctoral studies in neuroplasticity at the University of Queensland and post-doctoral studies at the University of British Columbia. She has 25 years of clinical experience in neurological and vestibular physiotherapy in acute and private practice. She enjoys working closely with patients and families to develop a customised treatment plan, which may include hands-on therapy, home-based exercises, management techniques, and coping skills. When not at work, Nicole enjoys spending time with her family and friends, road cycling, skiing, hiking, gardening, travelling, reading, and doing yoga. Sleep Assessments Pittsburgh Sleep Quality Index Sleep Quality Scale Insomnia Severity Scale

In this episode we explore the power of storytelling and the profound impact it can have on making sense of our lives. Our guests are a memoir expert and our very own co-host, Kimberly Warner. You don’t have to consider yourself a writer to gain something valuable from this conversation. We’ll delve into the stories that shape us, how we find meaning in them, and the transformative potential of sharing these stories with others. Kimberly Warner is a film director, producer, author, and a medical school drop-out who traded prescriptions for cameras in pursuit of narrative medicine. She founded Unfixed Media in 2019 to share stories of people living with chronic or rare conditions and how adversity can broaden our definition of what it means to live a “good life.” Christine Wolf is a trauma-informed memoir coach, developmental editor, and the traditionally published co-author of Politics, Partnership and Power -- a biography about one of the first 50 women to serve in the United States Congress. She runs a workspace for women writers and teaches about writing and entrepreneurship. An award-winning journalist and live storyteller, Christine regularly leads workshops and retreats centered around the science-backed benefits of expressive writing for emotional healing.

Persistent Postural Perceptual Dizziness. That’s a mouthful! No wonder we call it PPPD! This relatively new vestibular diagnosis helps explain why some people continue to experience vestibular symptoms when test results are normal. PPPD typically starts shortly after an event that causes acute vertigo, dizziness, or some other disruption of balance, but it may also occur for unknown reasons. PPPD causes dizziness without vertigo, and fluctuating unsteadiness provoked by environmental or social stimuli, such as crowded places. Some critics question whether this is a “garbage” diagnosis for people with unexplained vestibular-like symptoms. In a separate interview with Professor Jon Stone we learn that this is not the case, and indeed, that PPPD can co-exist with other vestibular disorders. In this episode of the ICU Podcast we’re going to talk with a patient who struggles with PPPD and a physical therapist who treats this complex condition. Speaker Bios: Susan Blount is a college professor, publishing and media executive, and certified health and wellness coach who has dedicated her career to education and well-being. After developing Persistent Postural Perceptual Dizziness (PPPD) following a trip to Alaska, she faced life-changing challenges. Yet, through vestibular rehab, cognitive behavioral therapy, and a commitment to strength training, she has redefined what it means to live fully. Now, Susan empowers others with the message that being both healthy and chronically ill is possible. With the support of the VeDA community, she continues to navigate life with resilience, purpose, and joy. Dr. Megan Daly is an experienced Vestibular Physical Therapist and Health Coach. She has her own physical therapy and coaching practice to help people address the root cause of their symptoms, navigate the healthcare system, and modify their lifestyle. She also runs Dizzy Coaches, a vestibular mentoring program for clinicians of all levels. She helps patients with dizziness, migraines, concussions, and balance issues manage their conditions so they can have fewer dizzy days. She has experienced many vestibular conditions personally and brings this empathy to all her patient interactions.

Did you know that vestibular disorders affect children as well as adults? There are increasing reports of vestibular deficits in children. One study suggests that as many as 1 in 5 children in the United States have problems with dizziness or balance. Pediatric vestibular disorders result in vertigo, gaze instability, delayed motor development, and problems with reading. These symptoms are difficult for anyone to cope with, but are especially challenging for children and their families. Pediatric vestibular healthcare specialists are hard to find, it can be difficult for a child to describe their symptoms, and delayed diagnosis can have devastating results. In this episode of the ICU Podcast we’re going to talk to a pediatric vestibular specialist and the mother of a young child who bravely battled vertigo, hearing loss, and a host of other vestibular symptoms. Guests: Andi Gilkey - Andi is a Licensed Clinical Social Worker and the proud mom of a vestibular warrior. Her son is an amazing 11-year-old who loves baseball, music, video games and his friends. He has bilateral sensorineural hearing loss, a unilateral Enlarged Vestibular Aqueduct, childhood vertigo, PPPD and vestibular migraines. His hearing journey has been well supported by an incredible team, but his vestibular journey has been one of the biggest challenges Andi has encountered as a mother. She says it felt like an endless roller coaster full of ups and downs since he was a toddler. Through hard work and the creation of an incredible vestibular team, she is proud to say that her son has been in remission of vestibular symptoms for 10 months. Her ongoing goal is to share her family’s story with others to provide hope and support to the vestibular community. Jennifer Braswell-Christy, PT, PhD, FAPTA : Dr. Jennifer Christy is a Professor in the Department of Physical Therapy at The University of Alabama at Birmingham. Her primary area of research is in the development of innovative intervention methods to improve gaze stability and balance in children with vestibular-related impairments. Related to this area of research, Dr. Christy teaches numerous continuing education courses in the U.S. and abroad.

In today’s episode of the ICU Podcast, we’re going to talk about brain fog. It kind of sounds like some sort of weather pattern. What is brain fog, and why do so many vestibular patients experience it? Some people describe it as forgetfulness, confusion, a lack of focus, difficulty concentrating or making decisions, or just a vague sense of blurry thinking, like your head is in the clouds. When the brain is dedicating a great deal of energy to maintaining equilibrium and staying steady, activities such as recalling details or short-term memory may become more difficult, and thinking might seem slow. First, I want you to know that this is NORMAL. Today we’ll talk to a patient who knows about brain fog all too well, and a doctor who has helped thousands of women learn to manage this frustrating symptom. Dr. Kathleen Jordan is the Chief Medical Officer at Midi, a virtual care clinic for women going through menopause and perimenopause. She has personally experienced the struggle to find a healthcare provider she can consider a partner in her journey toward wellness. She created Midi to put high-quality, patient-centered care within reach for all women at midlife. As an expert in women’s health, Dr. Jordan is very familiar with brain fog, otherwise known as “menopause brain”, and has some great suggestions for how to recognize and manage it. Ann Walder has struggled with migraines all her life. The word Vestibular Migraine entered her vocabulary after an illness that damaged her inner ears when she was 48. Early on Ann says her brain fog was fierce. She was blessed to connect with the vestibular community and find qualified healthcare providers early in her journey. Her family has been very supportive, and she’s found many friends among VeDA’s Ambassadors. She currently works as an activity specialist with the elderly and says that helping others brings her true happiness.

For many people who have a vestibular disorder, a trip to the grocery store can turn into a battle with dizziness. The bright lights, rows of shelves, patterns on the floor, and crowds of people can trigger symptoms such as dizziness, nausea, and light-headedness. Bending down or turning your head to scan for the items you need. All this can take a lot of energy to navigate. Visually induced dizziness is an umbrella term for a group of symptoms. It can also be referred to as visual vertigo, space and motion discomfort, supermarket syndrome or visual vestibular mismatch. Researchers think it is caused by a conflict between different parts of the brain’s balance system. In this episode of the ICU podcast, we’re going to talk to Elizabeth, who struggles with visual disturbances as a result of her vestibular disorder, and Dr. Morgan Kriz, a physical therapist who specializes in treating this condition. Elizabeth Schneider has been living with a Vestibular Disorder for 21 years. She was first diagnosed at age 36, when she lost her balance and experienced severe visual disturbances. She had to retire from her job as a Registered Nurse because she could no longer work due to her vestibular symptoms. Elizabeth knows what it’s like to struggle with career, money problems, and family stress, especially when you first get sick. Like many of you, she had to navigate through the medical system to get help, which is a taxing effort at best. She decided to become a VeDA Ambassador to bring awareness to this diagnosis and to help others get the help they need! Dr. Morgan Kriz has been practicing vestibular physical therapy for more than 10 years. She understands the journey that many vestibular warriors endure to get a proper diagnosis, obtain a supportive care team, and feel like they are on the right track to get their lives back. She is co-owner of Vestibular Therapy Specialists, with clinics in Seattle, WA and Bend, OR, where she resides with her family. She is also a consultant for Blue Marble Gaming Company, which is developing online home programs and protocols for Vestibular Rehabilitation. She’s a content creator and presenter for Vestibular IQ, a Continuing Education Platform for healthcare providers, and the volunteer director for a support group series called “Boost Your Brain’s Balance.”