The Chemical Sensitivity Podcast

For many people with Multiple Chemical Sensitivity (MCS), diagnosis and appropriate healthcare remain out of reach. In this episode, Aaron Goodman speaks with Dr. Pilar Muñoz-Calero , a leading MCS expert and founder of the Alborada Foundation in Spain, who brings both clinical knowledge and lived experience of the illness. Aaron hiked for an hour to her home outside Madrid to record this conversation and bring her insights to clinicians, researchers, and people living with MCS around the world. Topics include: Barriers to diagnosis and healthcare The impact of disbelief and delayed recognition The physiological nature of MCS and the harm caused by mischaracterizing it as psychological Why researchers and clinicians need to learn from people with lived experience Listen and subscribe: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19933696-what-medicine-needs-to-hear-about-mcs-dr-pilar-munoz-calero Watch and subscribe on YouTube: https://www.youtube.com/watch?v=XMOB84Z5ByI DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images, and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website. No material or information provided by The Chemical Sensitivity Podcast, or its associated website is intended to be a substitute for professional medical advice, diagnosis, or treatment. Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Para muchas personas con Sensibilidad Química Múltiple (SQM), el diagnóstico y una atención sanitaria adecuada siguen estando fuera de su alcance. En este episodio, Aaron Goodman conversa con la Dra. Pilar Muñoz-Calero , una destacada experta en SQM en España que aporta tanto conocimientos clínicos como su propia experiencia de vivir con la enfermedad. Aaron caminó durante una hora para llegar a su casa, a las afueras de Madrid, y grabar esta conversación, compartiendo sus reflexiones con profesionales de la salud, investigadores y personas que viven con SQM en todo el mundo. Los temas incluyen: Las barreras para acceder al diagnóstico y a la atención sanitaria El impacto de la incredulidad y del reconocimiento tardío La naturaleza fisiológica de la SQM y el daño que causa atribuirla erróneamente a causas psicológicas Por qué los investigadores y los profesionales de la salud deben aprender de las personas que viven con la enfermedad Escucha la conversación original en español: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19933422-lo-que-la-medicina-necesita-escuchar-sobre-la-sqm-dra-pilar-munoz-calero Mira la conversación y suscríbete en YouTube: https://www.youtube.com/watch?v=OtIMrQaFDvw&t=117s También está disponible una versión de esta conversación doblada al inglés. AVISO LEGAL: ESTE SITIO WEB NO OFRECE ASESORAMIENTO MÉDICO La información contenida en este sitio web, incluidos, entre otros, textos, gráficos, imágenes y otros materiales, tiene fines exclusivamente informativos. Ningún material de este sitio pretende sustituir el asesoramiento, diagnóstico o tratamiento médico profesional. Consulte siempre a su médico u otro profesional sanitario cualificado si tiene preguntas sobre una afección médica o un tratamiento, y antes de iniciar un nuevo régimen de atención sanitaria. Nunca ignore el asesoramiento médico profesional ni demore la búsqueda de atención médica por algo que haya leído en este sitio web. Ningún material ni información proporcionados por The Chemical Sensitivity Podcast o su sitio web asociado pretenden sustituir el asesoramiento, diagnóstico o tratamiento médico profesional. Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

What happens when researchers treat Multiple Chemical Sensitivity primarily as a psychological condition? In this episode of The Chemical Sensitivity Podcast , Aaron Goodman speaks with Christine Malfay-Regnier , an ophthalmologist based in Perpignan, France, who lives with MCS and is a member of SOS MCS . Topics include: The psychologization of MCS in French research How research may influence the healthcare people receive Stigma, isolation and the difficulty of being heard Why people with MCS should be involved in research and medical training Christine shares her concerns about the effects of a primarily psychological approach to MCS and calls for clinicians and researchers to listen more closely to patients. 🎧 Listen and subscribe where you get your podcasts: ▶️ Listen and subscribe on YouTube: Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Que se passe-t-il lorsque des chercheurs considèrent la sensibilité chimique multiple avant tout comme un trouble psychologique ? Dans cet épisode de The Chemical Sensitivity Podcast , Aaron Goodman s’entretient avec Christine Malfay-Regnier , ophtalmologue à Perpignan, en France. Elle vit avec la sensibilité chimique multiple, ou SQM, et fait partie de SOS MCS . Ils abordent : La psychologisation de la SQM dans la recherche en France L’influence possible de cette recherche sur les soins reçus La stigmatisation, l’isolement et la difficulté à se faire entendre Les aménagements qui ont permis à Christine de continuer à exercer La place des personnes atteintes de SQM dans la recherche et la formation médicale Christine explique pourquoi cette approche de la SQM l’inquiète et appelle les médecins et les chercheurs à écouter davantage les personnes concernées. 🎧 Écoutez et abonnez-vous: ▶️ Écoutez sur YouTube et abonnez-vous: Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

For people with Multiple Chemical Sensitivity (MCS), everyday spaces can become inaccessible — from healthcare and workplaces to public buildings and transportation. In this episode, Aaron Goodman speaks with María López Matallana , President of CONFESQ in Spain, about why people with MCS cannot keep waiting for recognition, protection, and meaningful accessibility. Topics: The everyday reality of living with MCS in Spain Barriers in healthcare and public spaces Exposure to fragrances and chemicals Disability rights and accessibility Why action is needed now 🎧 Listen now and subscribe: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19783018-mcs-in-spain-why-accessibility-can-t-wait-maria-lopez-matallana-confesq ▶️ Watch and subscribe on YouTube: https://www.youtube.com/watch?v=HSF6q8ov9mk&t=2s GREEN BOOK on Workstation Adaptation for People with Multiple Chemical Sensitivity and/or Electrohypersensitivity https://confesq.org/wp-content/uploads/2026/06/Green-Book-on-SQM-and-EHS-in-English.pdf #MCS #MultipleChemicalSensitivity #ChemicalSensitivityPodcast #Accessibility #Spain Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Para las personas con Sensibilidad Química Múltiple (SQM), los espacios cotidianos pueden volverse inaccesibles: desde la atención sanitaria y los lugares de trabajo hasta los edificios públicos y el transporte. En este episodio, Aaron Goodman conversa con María López Matallana , presidenta de CONFESQ en España, sobre por qué las personas con SQM no pueden seguir esperando reconocimiento, protección y una accesibilidad real. Temas: La realidad cotidiana de vivir con SQM en España Barreras en la atención sanitaria y los espacios públicos Exposición a fragancias y productos químicos Derechos de las personas con discapacidad y accesibilidad Por qué es necesario actuar ahora 🎧 Escúchalo ahora y suscríbete: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19782886-sqm-en-espana-por-que-la-accesibilidad-no-puede-esperar-maria-lopez-matallana-confesq ▶️ Míralo y suscríbete en YouTube: https://www.youtube.com/watch?v=14d4l9CFQhU&t=2s #SQM #SensibilidadQuímicaMúltiple #SensibilidadQuímica #Accesibilidad #España Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Can people with MCS fight discrimination even without full medical recognition? In this episode of The Chemical Sensitivity Podcast , Aaron Goodman speaks with human-rights lawyer Paloma Torres López , co-founder of MEDUSA Human Rights in Madrid, Spain. They discuss: Why people with MCS shouldn’t have to wait for full medical recognition Disability rights and the social model of disability Accessibility and reasonable accommodation Discrimination at work, in schools, healthcare and public spaces Fragrance-free environments as an accessibility measure Paloma explains how environmental barriers can prevent people with MCS from participating equally in society — and why disability and human-rights law may offer another path toward recognition, access and equality. 🎧 Listen and subscribe where you get your podcasts: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19721803-beyond-medical-recognition-mcs-disability-human-rights-paloma-torres-lopez ▶️ Listen and subscribe on YouTube. Transcription available in all languages: https://www.youtube.com/watch?v=CbVdvkyZO_A DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images, and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website. No material or information provided by The Chemical Sensitivity Podcast, or its associated website is intended to be a substitute for professional medical advice, diagnosis, or treatment. Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

How can better measurement of MCS and chemical intolerance help reduce misunderstanding, missed cases, and misdiagnosis? In this episode of The Chemical Sensitivity Podcast , Aaron Goodman speaks with Raymond Palmer, PhD , a biostatistician and research professor at the University of Texas Health Science Center at San Antonio who has studied chemical intolerance for more than a decade. You'll hear: Why better recognition may help address misunderstanding and misdiagnosis How the QEESI can help identify and measure MCS and chemical intolerance The TILT model and the potential role of environmental exposures Research into genetics, mast-cell activation, and biomarkers Why listening to patients and improving recognition matter A conversation about how researchers are working to better measure and understand MCS and chemical intolerance — and why doing so could help change how people with the illness are recognized and treated. Links: The QEESI (Quick Environmental Exposure and Sensitivity Inventory) Raymond Palmer, PhD Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Fragrance pollution, known as kogai, has become a growing public-health concern in Japan, affecting millions of people with Multiple Chemical Sensitivity (MCS) and others who experience adverse health effects from everyday fragranced products. In this episode, Aaron Goodman speaks with Keiko Fukaya , Professor Emeritus Ryoichi Terada , and Yuri Kitagawa about the rise of fragrance pollution in Japan, its impact on daily life, and the movement to reduce unnecessary chemical exposures. Topics include: Fragrance pollution and Multiple Chemical Sensitivity (MCS) Living with MCS in Japan Schools, workplaces, and public accessibility Environmental justice and social exclusion Fragrance microcapsules and laundry products Consumer advocacy and public policy What other countries can learn from Japan 🎧 Listen and subscribe: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19587898-mcs-and-the-hidden-costs-of-fragrance-pollution-in-japan ▶️ Listen and subscribe on YouTube: https://youtu.be/EzLPXZr0EOc Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

How do regulators decide that a chemical exposure is safe—and what happens when those standards fail to protect people with Multiple Chemical Sensitivity (MCS)? In this episode, Professor Laura Vandenberg from the University of Massachusetts Amherst explains why testing chemicals one at a time, relying on the “average” person, and assuming low doses are harmless may overlook real-world exposures and vulnerable populations. We discuss: Fragrance Chemical mixtures Endocrine disruptors Industry influence And what a more precautionary approach to chemical safety could look like. 🎧 Listen now & subscribe: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19539201-mcs-and-the-limits-of-chemical-safety-laura-vandenberg-phd ▶️ Watch & subscribe on YouTube: https://www.youtube.com/watch?v=B6r3pSMPqpo Laura Vandenberg and colleagues' 2023 paper: A science-based agenda for health-protective chemical assessments and decisions: overview and consensus statement Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Why do some health conditions gain recognition while others remain difficult to classify, diagnose, or accommodate? Aaron Goodman speaks with Geoffrey Bowker, Professor of Informatics at the University of California, Irvine, and author of Sorting Things Out: Classification and Its Consequences , about medical classification systems and what they can teach us about MCS. You'll hear: • Why MCS remains difficult for many healthcare systems to classify and recognize • How medical classifications influence diagnosis, accommodation, and support • Why some health conditions fit established categories while others remain contested • The role of patient knowledge and lived experience in healthcare • What lessons Long COVID may offer for the future recognition of MCS • What could help MCS gain broader recognition within medicine and society 🎧 Listen now and subscribe: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19445366-the-recognition-gap-mcs-medical-classification-geoffrey-bowker-phd ▶️ Watch & subscribe on YouTube: https://www.youtube.com/watch?v=6yjGCEIMre0 Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

This episode discusses Medical Assistance in Dying (MAiD), suicide, disability, chronic illness, and end-of-life decision-making. Please listen with care. If you need support, call or text 988 in the United States or 9-8-8 in Canada (24/7). Outside the United States and Canada, contact your local crisis line, healthcare provider, or emergency service. If you or someone else is in immediate danger, call your local emergency number. About the episode: What can Sophia's story teach us about disability, housing, healthcare, and Medical Assistance in Dying (MAiD)? This episode features two conversations: one with disability ethicist Heidi Janz, PhD, and another with a Toronto woman living with severe MCS who was friends with Sophia, a woman whose 2022 MAiD death brought international attention to the challenges many people with disabilities and chronic illnesses face. Together, they explore disability rights, healthcare, housing, social support, and the broader questions Sophia's case continues to raise. Professor Janz participated in this interview with the assistance of a support person who repeats her words for listeners. 🎧 Listen now and subscribe: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19402510-mcs-medical-assistance-in-dying-the-limits-of-choice ▶️ Watch & subscribe on YouTube: https://www.youtube.com/watch?v=vWO2hTuc8nM&t=61s Professor Heidi Janz: 2025 paper - "First they came for the Physical Crips: The Eugenic Logic Driving MAiD." https://www.erudit.org/en/journals/bioethics/2025-v8-n4-bioethics010388/1121337ar.pdf Faculty profile: https://www.ualberta.ca/en/john-dossetor-health-ethics-centre/about/people/adjunctmembers/heidijanz.html #MCS #MultipleChemicalSensitivity #DisabilityRights #MAiD Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

This episode marks the 100th episode of The Chemical Sensitivity Podcast! Thank you very much to the Marilyn Brachman Hoffman Foundation for its support that makes this work possible. Gratitude to listeners and viewers around the world for being part of this journey. If you enjoy the podcast, please subscribe wherever you listen to podcasts and on YouTube, and share it with others who may benefit from these conversations. http://listen.chemicalsensitivitypodcast.org/ Here's to 100 episodes and more to come! In this episode: What can the history of lead exposure teach us about risk, regulation, and MCS? Aaron Goodman speaks with Bruce Lanphear, MD, PhD, about lead as a model for understanding chemical harm. Topics include: What lead teaches us about body burden and cumulative exposure Risk, regulation, and the precautionary principle Why listening to affected people matters—and lessons for MCS Listen and subscribe: http://listen.chemicalsensitivitypodcast.org/ Watch & subscribe on YouTube: https://www.youtube.com/@podcastingMCS Link: Dr. Bruce Lanphear https://www.sfu.ca/fhs/about/people/profiles/bruce-lanphear.html Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

What can the daily chemical exposures faced by nail salon workers teach us about MCS, chronic illness, and the environments many people live and work in every day? Aaron Goodman speaks with Reena Shadaan, PhD, from the University of Toronto, about chemical exposure, worker health, body mapping, and chronic illness in nail salon environments. Topics include: • The hidden chemical exposures faced by nail salon workers • What nail salon environments may reveal about MCS and chronic illness • Body mapping and citizen science as tools for advocacy and documenting lived experience • How marginalized workers are pushing back against unsafe environments 🎧 Listen & subscribe: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19262474-nail-salon-workers-chemical-exposure-body-mapping-mcs-reena-shadaan-phd ▶️ Watch & subscribe on YouTube: https://www.youtube.com/watch?v=VhaCO-FAYgU Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

The Chemical Sensitivity Podcast has a new trailer! Please share with anyone interested in learning more about Multiple Chemical Sensitivity (MCS). 🎧 Listen to the podcast — new episodes twice a month! http://listen.chemicalsensitivitypodcast.org/ ▶️ Watch on YouTube: https://youtu.be/8HJadAGuLaE Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Can public spaces ever truly be safe for people living with Multiple Chemical Sensitivity (MCS)? In this episode of The Chemical Sensitivity Podcast, Aaron Goodman speaks with Aimi Hamraie, Associate Professor at York University whose work focuses on disability justice, accessibility, and inclusive design. They explore: • Why MCS is often overlooked in accessibility conversations • Remote access as a vital form of inclusion • How chemicals and fragrances can make public spaces inaccessible • Why some people with MCS leave cities • What truly MCS-inclusive public spaces could look like 🎧 Listen now: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19185636-can-public-spaces-be-safe-for-mcs-aimi-hamraie-phd ▶️ Watch on YouTube: https://youtu.be/thzV3GgBsHw Subscribe for episode takeaways, research insights, and updates on Multiple Chemical Sensitivity (MCS): https://bit.ly/42N3Geh Links: Aimi Hamraie Remote Access Archive – Critical Design Lab Fragrance-free resources compiled by Leah Lakshmi Piepzna-Samarasinha Sick Building Syndrome and the Problem of Uncertainty by Michelle Murphy Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

This episode is great to share with your doctor or healthcare provider. We explore how medical visits could become more supportive for people living with Multiple Chemical Sensitivity (MCS). We focus on listening, trust, and the responsibility clinicians have to support people with chronic illness. And how small changes can lead to more respectful, effective care. Aaron Goodman speaks with Téa Christopoulos, PhD candidate and sessional instructor at the University of Toronto, working across the Faculty of Kinesiology and the Joint Centre for Bioethics. Her research explores narrative medicine and Chronic Invisible Disabilities, examining how lived experience can reshape care to be more ethical, responsive, and truly patient-centered. 🎧 Listen: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19104690-from-dismissal-to-support-rethinking-care-for-mcs-tea-christopoulos-phd-candidate ▶️ Watch on YouTube: https://youtu.be/m1txBxi03Bc Subscribe for episode takeaways, research insights, and updates on Multiple Chemical Sensitivity (MCS): https://bit.ly/42N3Geh 2025 paper by Téa Christopoulos: An Ethics of Care, Relational Suffering, and Contested Invisible Disability DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images, and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website. No material or information provided by The Chemical Sensitivity Podcast, or its associated website is intended to be a substitute for professional medical advice, diagnosis, or treatment. Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

What happens when people's lived experience with Multiple Chemical Sensitivity (MCS) is dismissed in medicine? And how can it become a vital form of knowledge? In this episode, Aaron Goodman speaks with Megan Moodie, a medical anthropologist and disability studies scholar at the University of California, Santa Cruz. Her work explores patient activism and how knowledge is produced in medicine. Megan also brings lived experience to this conversation, including Ehlers-Danlos syndrome and chemical sensitivities. You'll hear Aaron and Megan discuss: Why people with MCS are often dismissed or psychologized in clinical settings. How lived experience becomes meaningful knowledge in medicine. What more equitable collaboration between researchers and affected communities could look like. And more! 🎧 Listen now: https://www.chemicalsensitivitypodcast.org/1970633/episodes/19037045-mcs-when-lived-experience-becomes-knowledge-in-medicine-megan-moodie-phd Watch on YouTube: https://youtu.be/k4aNnImGMd4 The podcast has a new webpage! http://listen.chemicalsensitivitypodcast.org/ Please share with anyone interested in learning more about MCS. DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images, and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website. No material or information provided by The Chemical Sensitivity Podcast, or its associated website is intended to be a substitute for professional medical advice, diagnosis, or treatment. Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Long COVID has pushed millions into a reality people with Multiple Chemical Sensitivity (MCS) have faced for decades: severe symptoms, disbelief, and no clear diagnosis. This episode of The Chemical Sensitivity Podcast explores what these conditions share: Medical dismissal. Stigma and social isolation. And epistemic injustice— when patients’ knowledge of their own bodies is questioned or ignored. Aaron Goodman speaks with Professor Deborah Lupton, a leading sociologist of health and medicine at the University of New South Wales in Sydney, Australia, and editor of the recent book, Long COVID and Society: International Perspectives. It's always great to hear from people who listen and watch the podcast! Please share your experiences with MCS, Long COVID, or about anything you hear on the podcast. Listen now: https://www.chemicalsensitivitypodcast.org/1970633/episodes/18945867-mcs-long-covid-shared-struggles-stigma-endurance-deborah-lupton-phd Watch on YouTube: https://youtu.be/pN6UGkaddis The podcast has a new webpage! http://listen.chemicalsensitivitypodcast.org/ Please share with anyone interested in learning more about MCS. DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images, and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website. No material or information provided by The Chemical Sensitivity Podcast, or its associated website is intended to be a substitute for professional medical advice, diagnosis, or treatment. Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok

Brain fog is something many people with Multiple Chemical Sensitivity (MCS) experience. In this episode, we explore what brain fog is, how it affects thinking, memory, and what research reveals about its links to distress and quality of life. Aaron Goodman's guests are researchers Tara Packham, PhD, and PhD candidate Ronessa Dass from McMaster University in Hamilton, Ontario, Canada. It's always great to hear from listeners! Please share your experiences with brain fog and MCS or about anything you hear on the podcast. Listen now: https://www.chemicalsensitivitypodcast.org/1970633/episodes/18821290-brain-fog-mcs-ronessa-dass-and-tara-packham-phd Watch on YouTube: https://youtu.be/j4PulfsHX_U The podcast has a new webpage! http://listen.chemicalsensitivitypodcast.org/ Please share with anyone interested in learning more about MCS. Links: Ronessa Dass - email: dassr5@mcmaster.ca Pain and Movement Research in the IMPRinT Lab, McMaster University: https://painmovementresearch.healthsci.mcmaster.ca/people-2/ Understanding the Experience and Impacts of Brain Fog in Chronic Pain: A Scoping Review - Ronessa Dass, Tara Packham, et al. (2023): https://pubmed.ncbi.nlm.nih.gov/37441085/ DISCLAIMER: THIS WEBSITE DOES NOT PROVIDE MEDICAL ADVICE The information, including but not limited to, text, graphics, images, and other material contained on this website are for informational purposes only. No material on this site is intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health care provider with any questions you may have regarding a medical condition or treatment and before undertaking a new health care regimen, and never disregard professional medical advice or delay in seeking it because of something you have read on this website. No material or information provided by The Chemical Sensitivity Podcast, or its associated website is intended to be a substitute for professional medical advice, diagnosis, or treatment. Support the show Thank you very much to the Marilyn Brachman Hoffman Foundation generously supporting the podcast! If you find the podcast helpful, please consider becoming a monthly or one-time supporter: https://www.chemicalsensitivitypodcast.org/1970633/supporters/new https://buymeacoffee.com/mcspodcast Follow the podcast on YouTube ! Captions available in any language. Please follow the podcast on social media: Facebook Instagram X BlueSky TikTok