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Published by Clare Fuller
Welcome to conversations about Advance Care Planning. This is the podcast where we talk about Advance Care Planning, what it is, how to do it and why it matters. Conversations about Advance Care Planning has grown from my passion to support professional understanding and promote public awareness about planning ahead. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to https://www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. After listening, please give the podcast a 5* rating or leave a review and tell us about what you've done for your advance care planning. If you take something of value fromlistening, please consider buying me a coffee to go towards making more valuable podcast episodes: https://www.buymeacoffee.com/6nQVJqVgLY
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What are fears associated with dying and how can we support patients, carers and staff? In this episode I am joined by Dr Andrew Thorns, a consultant in palliative care at Pilgrims hospices in East Kent and East Kent Hospitals. Andrew is involved nationally with research and ethics as part of the Association for Palliative Medicine and is a facilitator for advanced communication skills. Andrew introduces me to the concept of terror management theory and focuses on the work of Sheldon Soloman to answer these profound questions. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
What challenges are faced by people who are LGBTQ+ when accessing funeral care? This is a question I put to Poppy Mardall, founder of Poppy's funerals. Poppy champions better after death care, and describes what this look like for people who are LGBTQ+, as well as sharing brilliant information and resources that you can access. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
How do you make sense of the choices, costs and practicalities whilst navigating bereavement too? Jason Ghous is the founder of Funeral Experts; he set out to provide free, independent, and practical support to people at the end-of-life care or who are bereaved, helping families understand their choices and make sense of bereavement admin. In our conversation, you'll learn about the service and find out how to access the brilliant support offered. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
Lucy Carpenter leads the Compassionate Employers Programme at Hospice UK, supporting organisations to better care for employees experiencing grief, caring responsibilities, or life-changing diagnoses. Lived experience shapes Lucy's passion. In our discussion, Lucy describes being a carer for her Dad in her early 20s, her Dad's experience of working while living with a terminal illness and the simple steps all organisations could take to support employees. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
Imogen Benson is a product and tech leader who is deeply passionate about holistic end-of-life planning and care. Imogen brings a great mix of knowledge gained through personal experience, working as a leader in tech start ups and voluntary work in a hospice. Imogen is Head of Product at Aura Life and has particular interest in how technology can support rather than replace compassion. Our conversation explores societal norms around death and dying, reveals the story behind Aura Life, and reflects on technology. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you: If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
Dr Colette Hawkins is an Academic Consultant in Palliative Medicine at University Hospital Tees, and an Honorary Clinical Senior Lecturer at Newcastle University. Motivated to understand more deeply what it means to live with a serious illness,and how to deliver the care people really want, Colette began a series of research studies. Our conversation explores the catalyst to this, identifies what the research found and Colette shares the next steps of her innovative work. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
Rosalie Kuyvenhoven is an award-winning celebrant,speaker, celebrant tutor and Death Cafe host. I had the pleasure of meeting Rosalie at the launch of Evie King's book, Get Ahead of Being Dead and was fascinated to talk with her. Listen as we explore the experiences that have shaped Rosalie's work and find out how she brings ritual and meaning to funerals. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
In this episode it is my pleasure to talk with Caro Syson, founder of Your Final Matters. If you are listening and are thinking that you need to get your ducks in a row, this episode is for you. Caro shares how she works with groups and individuals to support later life planning and the story behind her sunflower journey. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
In this episode it is my pleasure to talk with Professor Julian Abel. Julian became a consultant in palliative care in 2001 and was Vice President of Public Health Palliative Care International. He is an international keynote speaker and has published regularly on models of public health palliative care. We talk about his new work in the National End of Life Care Coalition and explore a community based approach to care and why this is so important. This episode has been kindly supported by the Living Well Dying Well Trust. The creation, development and content of the episode remains the responsibility of Clare Fuller. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you: If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
Get Ahead of Being Dead is Evie King's new book. In this discussion Evie shares why the book has been written and takes us on a journey through the chapters in classic Evie King style. Listen, learn…and laugh too. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
The ReSPECT process has been widely implemented. It stands for the Recommended Summary Plan for Emergency Care and Treatment and, when used well, it provides a guide for clinicians to ensure people's wishes and values are respected in an emergency situation. Communication is at the heart of ReSPECT. In my conversation with Sharan Harris-Christensen we explore what good communication means and how this is delivered. Resource mentioned in this episode RealTalk: Engaging people in end of life talk - Real Talk - Real Talk Education with Treetops Hospice: Education and development - Treetops Hospice Treetops Hospice Education and Development | LinkedIn ReSPECT for healthcare professionals LinkedIn: Sharan Harris-Christensen: Sharan Harris-Christensen - United Kingdom | Professional Profile | LinkedIn Contact Sharan at: education@treetopshospice.org.uk This episode was released to celebrate Dying Matters Awareness 2026 For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
In this episode I talk with Dr Barny Hole, a kidney doctor and researcher, about patient preferences for kidney failure treatments. We discuss a review paper and focus specifically on the biomedical versus person-centred paradigms of nephrology practice. Our discussion has relevance to all long-term condition decision making. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
Talking with Jorden helped me to understand how not to compartmentalise EDI. Advance Care Planning is about what matters most to a person, with identity and inclusivity at the very heart of care. Find out more about EDI and planning ahead through the lens of patients, staff and systems in this fascinating conversation. Resource mentioned in this episode National Inclusion Week® | Inclusive Employers Equality, Diversity and Human Rights Week 2025 | NHS Employers Hiding who I am" The reality of end of life care for LGBT people Advance Care Planning with people from South Asian Communities It's more than rainbows in reception Podcasts mentioned in this episode: The Safari Concept with Dr. Christian Ntizimira Organ Donation with Dr Radha Sundaram No Barriers Here
Could we start planning ahead earlier? This question is asked by Dr Sonya Bushell as part of a research study and the results have implications for us all. Listen in to find out about Sonya's research, what inspired the work and how we can shift planning ahead from a medical to a societal model. Resource mentioned in this episode Read Sonya's research: Attitudes to earlier advance care planning: a qualitative interview study in general practice Find out more about the Waiting Room Revolution Access resource from Compassion in Dying For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
Communication underpins Advance Care Planning. But what is effective communication and how can it be taught? In my conversation with Sharan Harris-Christensen you will hear challenges, opportunities and the power of being vulnerable as we explore RealTalk. Resource mentioned in this episode RealTalk: Engaging people in end of life talk - Real Talk - Real Talk Education with Treetops Hospice: Education and development - Treetops Hospice Treetops Hospice Education and Development | LinkedIn No Barriers Here LinkedIn: Sharan Harris-Christensen: Sharan Harris-Christensen - United Kingdom | Professional Profile | LinkedIn Contact Sharan at: education@treetopshospice.org.uk This episode was released to celebrate Dying Matters Awareness 2026 For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
Dr Emma Clare is a Chartered Psychologist, End of Life Doula, and founder of Death Wired Differently, a platform providing resources, information, and training on neuro-affirming approaches to death, dying, caregiving, and grief support. In our conversation, Emma shares why so many Advance Care Planning conversations just don't work for neurodivergent people. Want to know what does work? Listen in to hear things we need to learn and how to access great new resource. Resource mentioned in this episode Access the Death Wired Differently website Previous podcast with Emma: Understanding death competency with Dr Emma Clare Find out more and hear Emma talk at the 2026 ACP Day Death Wired Differently Understanding death competency with Dr Emma Clare ACP Day Conference The Lancet: A new vision for death and dying | The Lancet Commission on the Value of Death Soul Paint enables people to express themselves when words are not enough Soul Paint For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
In this episode it is my pleasure to learn about the first ever national Power of Attorney Day from Alison Harvie, Power of Attorney Day campaign lead. It is a super discussion - listen in to hear about the brilliant resource available and how you can be involved. Key messages Alison shares her personal story of supporting her father with advanced Alzheimer's and the impact of Power of Attorney for them. We explore different types and names of powers of attorney across England and Wales, Scotland and Northern Ireland and why "Power of Attorney Day" is a UK–wide umbrella term covering all these legal frameworks. The resources for organisations include posters, slide deck with speaker notes, a toolkit, social media assets and prompts to review customer journeys. The resources for individuals include FAQs, myth–busting (especially around "next of kin"), a conversation starter guide, and lived–experience stories. We discuss the importance of normalising proactive Advance Care Planning rather than waiting for crisis or loss of capacity. Alison closes with a great call to arms: take small, practical first steps – any action that starts you on the path to putting a Power of Attorney in place. Resource mentioned in episode Access Power of ATtorney Day for resource and information Read the report Power of Attorney, why public engagement is so low and why that matters for background information For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
What is realistic choice and how is this supported by shared decision making? I was privileged to ask Dr Jude Partridge, a consultant geriatrician with the POPS Team at Guys and St Thomas' hospital these questions. Listen in to hear what the evidence tells us, how this can be operationalised and what a tremendous difference it makes. Resource mentioned in this episode Making shared decision-making a reality No decision about me without me BRAN: helping patients ask the right questions Shared decision making in the Comprehensive model of personalised care Do Interventions Designed to Support Shared Decision-Making Reduce Health Inequalities? A Systematic Review and Meta-Analysis Cost–benefit analysis of implementing comprehensive geriatric assessment enhanced shared decision making into aortic aneurysm pathways Preoperative clinical characteristics and 12-month outcomes following operative or non-operative management of asymptomatic aortic aneurysms Working together to provide the care that's right for you. Demonstrating professionalism through approach, behaviours and attitudes of Realistic Medicine Implementing shared decision making according to the choosing wisely programme: Perioperative medicine for older people undergoing surgery Effectiveness of emergency surgery for five common acute conditions: an instrumental variable analysis of a national routine database Key messages Realistic choice means offering evidence‑based, tailored options that are genuinely appropriate, not an "illusion of free choice". Shared decision making ensures patients understand realistic options, benefits and harms, then choose based on their own values. Shared decision making is now a legal standard in the NHS personalised care model. Clinical encounters are power‑imbalanced, we need honest, open communication to level this. Decisions should follow a holistic assessment (frailty, comorbidities, cognition, function, values). "Just because we can, doesn't mean we have to" – non‑intervention can be the most appropriate care for a person. Shared decision making also means positively recommending treatment when it supports what matters most. Shared decision making relies on strong communication skills and data‑driven discussion of risk and outcomes. Evidence shows benefits for patients and systems. People in more deprived areas may benefit especially from shared decision making. There is a need for better public health messaging on realistic choice and shared decision making. For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
I am delighted to open the new season with Professor Jugdeep Dhesi, geriatrician and President of the British Geriatrics Society. Listen in as we explore the changing demographics of dying and the vital role geriatricians play in joining the dots in Advance Care Planning. This episode is a personal one. I have recently experienced how easily care can become fragmented - and focus on isolated problems rather than seeing the whole person. I am dedicating this episode to the geriatrician who chose to see the whole person - and in doing so, made all the difference. In her own words: "I am just one of many Geriatricians across the country doing this work every day. I am sure Jugdeep will agree this is 'bread and butter' geriatric medicine that the whole profession should get credit for." Resource mentioned in this episode Cost–benefit analysis of implementing comprehensive geriatric assessment enhanced shared decision making into aortic aneurysm pathways Understanding variation in the management of AAA in the UK: composition and function of multidisciplinary team meetings and information resources provided to patients Preoperative clinical characteristics and 12-month outcomes following operative or non-operative management of asymptomatic aortic aneurysms For information about Advance Care Planning, see the Advance Care Planning Explained resource on my website Find out more about how I can work with you If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to www.speakformelpa.co.uk where I provide details on how I can help you. You will also find information about my Lasting Power of Attorney consultancy and the talks I offer for organisations. If you enjoy the episode or learn something new, please consider buying me a coffee to go towards making more valuable podcasts: https://www.buymeacoffee.com/6nQVJqVgLY
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Observed September 19, 2026. Cached outside the daily freshness window; the positions keep the date they were taken on.
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