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Published by Born at the Right Time
Nurse, author and Director of Born at the Right Time, Rachel Wright talks to fellow parents of people with disabilities and others in their community. With the power of story telling, laughter, swearing and useful information they create solace in knowing the warts and all truth of this off piste version of parenting. Whether a well seasoned parent, newbie, one of many practitioners supporting families or simply someone wanting to peak over the fence - you’re welcome to listen in. We are better together, whatever Skies We’re Under.
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Our final episode of Season 5 is Rachel, Sarah and Lucy give the slightly sweary warts and all version of life, stresses and loves of parenting a disabled child with the full expectations of summer Less support + Less equipment + Less routine + Higher expectations = Holidays Lucy swears more than normal, spoiler alert (none of us have managed a relaxing summer break yet) and we’re all a bit p****d about all the Instagram spam of leisurely summer family trips away.* Please rate, review and follow the podcast. You can also email TSWUpodcast@gmail.com *There is much to be grateful for and we love our children Blah Blah Blah... Find more about Family Fund for financing holidays here and other grants available in the UK here . Find out about Camp Jojo here Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you. You can leave a message with us in a number of ways: Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . ‘The Skies We’re Under’ is taking a pause as we shore up funding (hopefully) for another season. Until then, we hope the rest of your 2026 brings some fun, joy and smiles, whatever Skies You Are Under.
Rachel and her husband Tim talk all things travel. From child-free teen-dom in Turkey to the highs and lows of ‘holidays’ when you choose to make life even more complicated than it is at home. Whilst it doesn’t shy away from the genuine sh*t show that we’re often presented with, they also share numerous top tips and moments of joy, including: The Bendrigg Trust Hippocampe Make A Wish Foundation Canvas and Campfires ; Center Parcs and Camp JoJo Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you. You can leave a message with us in a number of ways: Using Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . ‘The Skies We’re Under’ continues to go from strength to strength with over 100 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. Email us to find out more tswupodcast@gmail.com.
A special episode for The Skies We’re Under with Carrie Grant and Samantha Flynn, hosts of the Cerebra Podcast The Calm in the Complicated. As a part of Cerebra’s six-episode series, Rachel joined the conversation to explore the overwhelming life admin families face when raising a child with a brain condition. Together Carrie, Sam and Rachel unpack the emotional weight of endless paperwork and share practical, compassionate strategies to help parents feel less alone. This episode offers honest conversation, reassurance and practical strategies for managing the hidden second job that so often comes with parenting in the SEND world. A validating listen for any parent feeling overwhelmed by the systems surrounding their child. The episode covers: The emotional toll of constant paperwork and appointments EHCPs, assessments and advocating within complex systems Coordinating healthcare, education and social care support Managing information overload and staying organised Why parent carers need support too You’ll also hear lived experiences, practical advice and compassionate reflections to help families feel less alone while navigating the day-to-day realities of raising a child with a brain condition. With special thanks to all at Cerebra for this collaboration – you can find the rest of the brilliant Calm in the Complicated episodes wherever you listen to your podcasts. Connect Cerebra: Find out more: cerebra.org.uk Follow us: https://www.instagram.com/cerebracharity/ Get in touch: calm@cerebra.org.uk Follow Rachel Wright @bornatRightTime or connect with her https://www.bornattherighttime.com/ https://www.linkedin.com/in/rachel-wright-0610509a/ Connect with Mike Richmond@tutor_doctor_nwleeds www.linkedin.com/in/mistermiketd Useful Resources: SENDIASS: https://www.sendiass.org.uk IPSEA (education rights and SEND law): https://www.ipsea.org.uk/ Contact (support for families with disabled children): https://contact.org.uk/ Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes – please like and share the podcast with others.
Jo Holmes is our resident expert on all things communication (and put together this recast series). Blogger at Mummy Vs AAC, Speech and Language Therapist and parent of a daughter with complex needs. In this conversation she opens up about her relationship with laminators and gets real about the how she had to rediscover how to really connect with her daughter. TRIGGER WARNING – Please note – right from the start, we have discussions around end of life care plans and DNACPR. IF this is something that will be upsetting and triggering to you please skip this episode, or fast forward to 7 minutes. To find out more about Jo, and the resources she’s passionate about please go to: Mummy Vs AAC About Jo Resource Bank HOP | Hanging Out Program Interaction for People at Risk of Isolation Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you. If you have any ideas or resources might support us being able to continue the podcast we would also love to hear from you. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. Email us to find out more tswupodcast@gmail.com.
Dr. Beth Moulam, Paralympian, researcher, advocate and award-winning all-round superhuman chatted with Rachel back in season 4. Beth shared her thoughts on the communication tools we all use, and the tools she uses. The challenges she faces (spoiler alert – it’s normally other people), and the joy she finds in creating new connections, and creating community around her, in the breathtaking number of fields she’s involved in. Rachel, Sarah and Lucy bring updates and reflections, there’s news from the Moths, and Lucy broke a TSWU record, by swearing right from the outset – having to bring “all your BLEEPING podcast BEEP to work is not the best way to start the day! You can find more about Beth on her website and you tube page. Since this recording she’s also written a book which is due in the Autumn and available for pre-order now . Thanks to the lovely folk at Liberator for sponsoring this week’s episode. You can find more about them and their work here. Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you. If you have any ideas or resources might support us being able to continue the podcast we would also love to hear from you. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. Email us to find out more tswupodcast@gmail.com.
We’re in it for the parking with comedian Lost Voice Guy. We are so happy to re-share our Live Episode recorded at Kidz to Adultz Middle in 2025 when Rachel, Sarah and Lucy met Leed Ridley AKA Lost Voice Guy. He talks about the funny and not so funny experiences he’s had, from his relationship with Kit, ski trips with his family and whether there ever will be a cure for being a Geordie. We also hear the usual updates from Rachel, Sarah and Lucy. Lucy doesn’t swear once (she’s super proud of herself!) You can find out more about Lost Voice Guy’s work, and his writing here. Thanks to the lovely folk at Jiraffe for sponsoring this week’s episode. You can find more about them and their work here . Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you. If you have any ideas or resources might support us being able to continue the podcast we would also love to hear from you. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. Email us to find out more tswupodcast@gmail.com.
Dr. Mazal Tasgal joined Rachel and Sarah back in May 2024 and talked all things communication. They dared to go off the ‘middle of the road’ pathways to explore the ways to nurture and develop communication, building on our innate ability to communicate with our child, right from the start. You can learn more about Mazal’s work here , and also the wonderful charity who supported her family at the start of their journey at special effect . Rachel and Sarah also share their To-Do lists (even their secret ones!) and Rachel finally figures out what Number 5 actually meant – (it was Turtle Braces ). Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you. If you have any ideas or resources might support us being able to continue the podcast we would also love to hear from you. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. Email us to find out more tswupodcast@gmail.com
The final episode in our Parenting Differently recast series takes us back to season one episode thirteen as Lucy, Rachel and Sarah talk about feeling as though we are living in a goldfish bowl. The constant swimming as a parent carer is hallmarked by the watchful eye of professionals assessing and scrutinising our every move. But what is the impact of this version of support? How does observation change our lives, our relationships and levels of stress? Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. For questions, disability hacks or to share your story, you can email TSWUpodcast@gmail.com - we would love to hear from you. If you have any ideas or resources might support us being able to continue the podcast we would also love to hear from you. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more tswupodcast@gmail.com
With this recast we skip back less than a year to a practical episode with Rhiannon Gogh. Rhiannon is a SEND finance expert, mum to a boy with complex autism, trainer, presenter and award winning Financial Advisor. Rhiannon talks us through all the things we need to think about (even if it's difficult!) and helps explain terms like trustees, with informed, positive and helpful advice. You can find more about Rhiannon and her work at Carers Academy and SENDA . Rhiannon’s Book is available for order Planning With Love: A Guide to Wills and Trusts for Parents of Children With Special Needs Thanks to the lovely folk at Jiraffe for sponsoring this week's episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: • Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) • You can send us a voice note from your phone or even just an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. T Follow us on Instagram @BornatRightTime . Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers. ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more: tswupodcast@gmail.com
One of our most popular episodes with the fabulous Joanna Grace. Even through we’re going back to early 2024 Rachel, Sarah and Lucy sound as fresh as ever in season 3 episode 3 as they talk top titties, wimping out and attempting to gain work/life balance. Bring your tissues this week as Jo's words make us feel utterly seen. Her wisdom, wit and general wonderfulness. We are so grateful to also hear from our fantastic listeners. Jo can be found on many social platforms so find your favourite way to be in touch with her here https://www.thesensoryprojects.co.uk/contact We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: • Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) • You can send us a voice note from your phone or even just an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. Follow us on Instagram @BornatRightTime . Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers. ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more tswupodcast@gmail.com
In this recast from season 2 episode 3 Rachel talks to Lucy and Sarah about how being the parents of people with complex needs has taken over – well … everything. How we have changed and transitioned through seasons of our life and our child’s life. It covers: The emotional phases we go through – rage, resignation and resolve. Deputyship and power of attorney – who needs it and why? Realising there isn’t such a thing as ‘it’ll be easier when…’ How none of us is Mother Teresa incarnate. One of our biggest roles as parents is to enable our children to have fun and feel safe without us. We talk about how we might try and shift the idea of motherhood being at its best when we are frantically doing everything for our children, to one where we celebrate and share stories of our children loving life without us. #FunWithoutMum We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: • Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) • You can send us a voice note from your phone or even just an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. Follow us on Instagram @BornatRightTime . Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers. ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more tswupodcast@gmail.com
Our world has been turned upside down, hopes and dreams feel far away, and we’re grateful for the people who stepped in, stepped up, sat with us, supported us and celebrated our families. Listen to this week’s recast episode, as we look back at the Early Years, and reflect on the experiences of learning to navigate a world we never planned for. Join Rachel and Lucy consider Early Years experiences from a professional and parent perspective. We also hear from experienced Portage Worker Janet Rickman. She shares her experience and wisdom, and all she’s learned from working with families like ours. In addition, Rachel and Sarah share theme park stories, (including the fantastic Give Kids The World ) and Lucy is under ‘Techf*ckingnightmare’ Skies. To find the resources discussed by Janet and Lucy on the pod, please following the links below: Help for early years providers : SEND assessment guidance and resources Help for early years providers : Using the assessment tools National Portage Association Thanks to Jiraffe for sponsoring this week's episode. You can find more about them and their work here . We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: • Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) • You can send us a voice note from your phone or even just an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) Thanks for listening and being a part of our podcast community. It would make our day if you could like, follow and review the podcast wherever you listen. We’re so happy that The Skies We’re Under is a free, independent podcast. Follow us on Instagram @BornatRightTime . Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.
CONTENT WARNING – CONTAINS DISCUSSIONS RE: DIAGNOSIS/DIAGNOSES, CHILDHOOD CANCER AND TRAUMATIC BIRTHS. Back to Season 4, Episode 31 where Rachel, Sarah and Lucy took a deep dive into who were the people who really made a difference in the early days They’re remembering diagnosis, and the people who made a difference, the people that genuinely changed their world when it got flipped upside down. They reflect on the people who have help us hear the news we don’t want to, as they we to receive diagnoses, which never get easier to hear, no matter how ‘used to it’ we are. Thanks to the lovely folk at Jiraffe for sponsoring this week’s episode. You can find more about them and their work here. We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using Speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more. tswupodcast@gmail.com
Join Rachel, Lucy and Sarah for a step back in time to July 2024 when and Season 3, Episode 19 of The Skies We’re Under. They are joined by the sensational Melanie Dimmet, Writer, Author and Broadcaster. Rachel and Mel remember the very early stages following diagnosis, sharing messages of hope, connection and support and letting our children lead the way. You can find more about Mel’s work here: https://www.melaniedimmitt.com.au/ Her Book, Special is available to buy from all good retailers; The Blend Mag is the best looking magazine on the planet. Please note that the Hibi app that was referenced is no longer available in the same format. There is the usual sweary talk from the hosts, as they share updates in their lives, and plenty of excellent examples of faultless parenting – with no mistakes made at all, whatsoever… We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: https://www.speakpipe.com/TSWUpodcast (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. Follow us on Instagram @BornatRightTime . Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers. ‘The Skies We’re Under’ continues to go from strength to strength with almost 130 episodes already. There's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more tswupodcast@gmail.com
In this recast of the second ever episode of ‘The Skies We’re Under’ Lucy, Sarah and Rachel talk about some of the helpful and unhelpful ways they deal with times of stress and transition. This is not professional advice but an honest conversation about the trust of complex realities and how they try to live life well. Content warning: Very early on in this episode we talk about the fear and potential for childhood death, DNACPR, childhood cancer and stroke. They also do laugh a lot because this world we live in manages to have both sadness and laughter– despite the absurdity of it all. Please do not listen to this episode if this will not serve you well. They also discuss the importance of conversations about children’s end of life care. Details of resources are below. The following resources are discussed during the podcast: ReSPECT documents and end of life discussions. Completing the stress cycle. You can listen to the brilliant podcast with Brene Brown, Emily Nagoski and Amelia Nagoski, How to complete the stress cycle . Or read Emily and Amelia’s book. Affinity hub website : emotional support for parents of children with special needs. Day-by-Day: emotional wellbeing in parents of disabled children. Jo Griffin Since this episode the podcast has gone from strength to strength and almost 130 episodes later there's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more. Email your questions and comments to tswupodcast@gmail.com and don’t forget to rate, review, share and subscribe - this increases our chance of being able to keep doing The Skies We're Under podcast.
This week we're travelling back in time to the first ever episode of 'The Skies We're Under'. Back to a time when we didn't have studio production to keep the sound crisp and we still had the energy to beep out all the swears. Content warning the topics of childhood cancer, birth trauma, chromosome duplication and severe disability is discussed. Rachel Wright, Lucy Parr and Sarah Clayton introduce themselves and their families (as they were back in early 2022). They all have different experiences of becoming parents of children with complex needs and how that impacted their identity as women and parents. The conversations they have sometimes even makes them exclaim, “That’s not my name.” Since this episode the podcast has gone from strength to strength and almost 130 episodes later there's still so much to discuss and share with our wonderful listeners, the families of people with complex disabilities and the many practitioners that support us. Moving forward we need your help to keep producing new episodes. You or your organisation can sponsor a season or advertise within an episode. Email us to find out more. Email your questions and comments to tswupodcast@gmail.com and don’t forget to rate, review, share and follow the podcast.
Life updates, broken systems and tiny pockets of joy are packed into this week's episode of The Skies We’re Under. From continuing healthcare assessment clangers, post‑college provision crises and why SEND reform feels equal parts hopeful and terrifying. Rachel, Lucy and Sarah bring laughter, swearing, tears and truth as they talk about navigating everything from milestone birthdays to the minefield of adult social care and EHCP chaos. With the SEND white paper looming, they explore what real inclusion could look like and what families fear it won’t. Plus, a very special interview as Rachel’s 10-year-old son making his podcast debut freshly diagnosed and finding his voice. If you'd be interested in sponsoring an episode of The Skies We're Under, please contact us at TSWUpodcast@gmail.com . To help us keep podcasting we’d LOVE it if you could support the podcast, like, subscribe, review and share. The more listeners we get, the more we’ll be able to provide things to listen to - and we’re chock full of ideas! We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: · Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) · You can send us a voice note from your phone to our email address at tswupodcast@gmail.com · Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here … Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.
Happy New Year! There’s no better way to rid you of the January blues than to listen to Rachel’s conversation with the fantastic Sam Bowen. Sam is ‘one of us’, someone who has both lived and loved experience of raising and loving a child with complex disabilities. When the candle snuffer came down on her hopes for her career and her imagined life as a parent, Sam has used all the experience and knowledge she has to make museums a truly inclusive environment for everyone. Sam’s energy and enthusiasm for inclusion, and the power of museums shines through. She’s on a mission to highlight and eradicate ‘othering’, and we are here to champion her in all she does. You can read more about Sam and her book here: sambowen.co.uk sendinmuseums.co.uk The Phoenix and the Unicorn Thanks to the lovely folk at The Group for Education in Museums (GEM) for sponsoring this week's episode. You can find more about them and their work here. To help us keep podcasting we’d LOVE it if you could support the podcast, like, subscribe, review and share. The more listeners we get, the more we’ll be able to provide things to listen to - and we’re chock full of ideas! We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here … Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.
It’s party time - your favourite threesome have dressed up (sort of!) and are here to celebrate another year of The Skies We’re Under, making it through and remembering all the best bits, and filtering it so we forget all the worst bits! We reflect on the challenges that the systems we navigate create, the way that we’re forced into ‘fight mode’ armed with paperwork and legal references. Or, on the other hand, feeling the need to be overly kind to protect our children and young people. This is an episode full of wit and wisdom, about not letting fear rob you of joy, and looking for the glimmers amongst the triggers. The charity Lucy recommends is Jumbulance. If you'd be interested in sponsoring an episode of The Skies We're Under, please contact us at TSWUpodcast@gmail.com . To help us keep podcasting we’d LOVE it if you could support the podcast, like, subscribe, review and share. The more listeners we get, the more we’ll be able to provide things to listen to - and we’re chock full of ideas! We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.
Keeping your family safe, enjoying times of celebration and being real about what all that means. Rachel, Sarah and Lucy talk all the phases of life, getting used to new realities, and meeting the expectations of ourselves and others. Sarah and Lucy talk through their experiences of transitions around home ownership, packed with plenty of practical advice* Before the Big C is discussed. Talking all things Christmas planning, how to navigate gifts (both receiving and giving), and how to cope with the changes to routine that the period brings to try and make the most of the ‘most wonderful time of the year’. *The great resources that Sarah mentions include: My Safe Home HOLD - Home Ownership for Long Term Disability Small Support Programme Gloriously Ordinary Lives Thanks to the lovely folk at Safe Place Beds for sponsoring this week's episode. You can find more about them and their work here. If you'd be interested in sponsoring an episode of The Skies We're Under, please contact us at TSWUpodcast@gmail.com . To help us keep podcasting we’d LOVE it if you could support the podcast, like, subscribe, review and share. The more listeners we get, the more we’ll be able to provide things to listen to - and we’re chock full of ideas! We’d love to hear from you – we love sharing stories, we love hearing how things are going, the good, the bad, the snotty-crying ugly. You can leave a message with us in a number of ways: Firstly you can leave a message using speakpipe here: SpeakpipeTSWU (Please note calls need to be limited to 90 seconds) You can send us a voice note from your phone to our email address at tswupodcast@gmail.com Or, if the thought of hearing your own voice gives you ‘the ick’, then send us an email to tswupodcast@gmail.com Whatever way you choose to get in touch, we really want to hear your thoughts, views, musings, rants and confessions (we love a confession!) . Thanks for listening and being a part of our podcast community -It would make our day if you could like, follow and review the podcast wherever you listen. We’re so happy that The Skies We’re Under is a free, independent podcast. Any sponsorship received is used to cover the costs of the production of episodes and compensate our valuable guests for their time. The hosts provide their time and efforts for free. They do, however, appreciate any offers of caffeination to keep them going – you can buy them a cuppa here … Follow us on Instagram @BornatRightTime. Head to www.bornattherighttime.com to find a parent workshop or CPD-certified training for practitioners in communication, collaboration and personalised care with parents/carers.
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