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Published by Dee Moore
Diary of a Kidney Warrior Podcast is an award-winning kidney health podcast hosted by Kidney Patient, Vlogger, Speaker and Advocate, Dee Moore . Each episode features either a kidney patient (including people: living with chronic kidney disease not yet on dialysis, on dialysis, and kidney transplant recipients), a leading healthcare professional, a living donor or a carer , sharing their unique experiences and expertise across every stage of the kidney journey—from chronic kidney disease (CKD) and kidney disease prevention to dialysis, transplantation, living donation, nutrition, emotional wellbeing and the latest advances in kidney care. Whether you are living with kidney disease, supporting a loved one, working in healthcare or simply want to understand kidney health better, this podcast is here to educate, empower and inspire. Expect real stories, expert advice and practical information to help you navigate life with kidney disease with greater knowledge, confidence and hope. Diary of a Kidney Warrior Podcast is proud to partner with Kidney Care UK , helping to raise awareness of kidney disease and amplify the voices of the kidney community. Educate. Empower. Inspire.
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🎙️ Diary of a Kidney Warrior Podcast is 6 years old! On 31st August 2020, Dee Moore officially launched Diary of a Kidney Warrior Podcast with a mission to educate, empower and inspire people living with kidney disease and those who support them. Six years later, that mission continues. In this special anniversary message, Dee reflects on the journey so far and says thank you to the kidney patients who have trusted her with their stories, the health professionals who have shared their knowledge and expertise, and every listener who has supported, shared and been part of the podcast community. Dee also acknowledges Kidney Care UK, who she has proudly partnered with since 2021, and their continued support of Diary of a Kidney Warrior Podcast. Thank you for being part of the journey — and here’s to year seven! 🎉🎙️ #DiaryOfAKidneyWarriorPodcast #KidneyHealth #KidneyDisease #KidneyPatient Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org
What does it really mean to become a living kidney donor — and what would inspire someone to donate a kidney to a complete stranger? In this episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Hayley about her remarkable living kidney donation journey, which began with a dream she first had at just eight years old. Years later, Hayley turned that childhood ambition into reality, becoming an altruistic living kidney donor and giving a stranger the gift of a kidney transplant. Hayley takes us through the living kidney donor process from beginning to end: finding a potential recipient, undergoing donor assessment and matching, initially being turned down by one transplant centre, navigating the medical evaluation process, preparing for surgery and recovering after donating a kidney. Remarkably, Hayley’s journey from contacting the organisation that helped facilitate her donation to undergoing surgery took approximately eight weeks. In this conversation, Dee and Hayley discuss: • Why Hayley wanted to become a kidney donor from the age of eight • What motivated her to donate a kidney to someone she had never met • Direct kidney donation and paired kidney exchange • Being initially rejected as a potential donor and why she continued • The medical assessment and kidney donor matching process • Meeting her kidney recipient before transplant surgery • What living kidney donor surgery and recovery were like for her • Walking six miles just three days after donating her kidney • Returning to exercise, weightlifting and martial arts after donation • What life with one kidney looks like for Hayley today • The emotional impact and personal meaning of living kidney donation • The importance of support before and after donor surgery • Why more people need to know that living kidney donation is possible • How Hayley turned her experience into work supporting other potential kidney donors • Her advice for anyone considering becoming a living kidney donor • Her message of hope for people waiting for a kidney transplant Hayley also addresses a question many people may wonder about living organ donation: what does the donor get from giving a kidney? For Hayley, the answer goes far beyond the physical act of donation. She describes the profound impact of knowing that her decision helped another person, their family and potentially even the next person waiting for a kidney transplant. Today, Hayley continues to raise awareness of living kidney donation and supports others considering taking the same journey. Whether you are living with kidney disease, waiting for a kidney transplant, considering living kidney donation, supporting someone through transplantation, or simply want to understand why someone would choose to donate a kidney to a stranger, this conversation offers an insightful first-hand perspective. 🎥 WATCH THE AUDIO + VISUAL VERSION The audio and visual version of this conversation is available on the Diary of a Kidney Warrior Podcast YouTube channel. 💚 HELP MORE PEOPLE FIND THIS CONVERSATION If this episode has helped you, please follow or subscribe to Diary of a Kidney Warrior Podcast, leave a review and share this episode with someone who may benefit from hearing Hayley’s story. Sharing these conversations helps raise awareness of kidney disease, kidney transplantation and living kidney donation — and could help this information reach someone who needs it. Until next time, take care and choose to live. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Hayley 🤝LinkedIn: https://www.linkedin.com/in/hayley-slaughter-54a8302b8/ Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org For more information about DOVE 🤝LinkedIn: https://www.linkedin.com/company/dovetransplant/posts/?feedView=all 📘Facebook: https://www.facebook.com/DoveTransplant 💻Website: https://dovetransplant.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #LivingKidneyDonation #LivingKidneyDonor #KidneyDonation #KidneyDonor #KidneyTransplant #KidneyTransplantation #OrganDonation #LivingDonation #KidneyDisease #KidneyHealth #Transplant #kidneywarrior
What is vasculitis, and how can it affect your kidneys? In this episode of Diary of a Kidney Warrior Podcast, Dee Moore is joined by Dr Lauren, a Specialist Training Registrar in Renal Medicine with a special interest in vasculitis. Dr Lauren completed a PhD in ANCA-associated vasculitis at the University of Manchester and has collaborated with vasculitis experts across the UK and internationally. Dr Lauren breaks down vasculitis in clear, accessible language, explaining how inflammation of the blood vessels can affect the kidneys and potentially lead to kidney damage and kidney failure. Together, Dee and Dr Lauren discuss: 🩺 What vasculitis is and what happens inside the body 🫘 Why vasculitis can affect the kidneys 🔎 ANCA-associated vasculitis and the different types of vasculitis ⚠️ Symptoms and signs to be aware of 🧪 How vasculitis affecting the kidneys is diagnosed 💊 Treatment, including steroids and immunosuppressive therapies 🩸 Dialysis and whether kidney function can recover following treatment 🔄 Remission, relapse and ongoing monitoring 🫶 Living with vasculitis and managing its impact on everyday life Dr Lauren also explains why early diagnosis and treatment can be so important and discusses the possibility that some people who initially require dialysis may recover enough kidney function to come off dialysis following treatment. Whether you are living with vasculitis or kidney disease, supporting someone who is, or simply want to understand more about vasculitis and kidney health, this episode offers practical, accessible information to help you feel better informed. 🎧 Listen to the full episode on your favourite podcast platform. 🎥 Prefer to watch? The audio and visual version of this interview is also available on the Diary of a Kidney Warrior Podcast YouTube channel. If you find this episode helpful, please follow Diary of a Kidney Warrior Podcast, share it with someone who may benefit and help us continue raising awareness of kidney disease. ⚠️ This episode is for general educational purposes only and should not replace personalised medical advice. Please speak with your healthcare professional about any concerns regarding your health, medication or treatment. #DiaryOfAKidneyWarriorPodcast #Vasculitis #ANCAAssociatedVasculitis #KidneyDisease #KidneyHealth #KidneyFailure #ChronicKidneyDisease #CKD #Dialysis #VasculitisAwareness #KidneyWarrior #RenalHealth
What happens when recurring kidney infections begin in childhood but the full picture isn’t discovered until years later? In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Andrea, who shares her remarkable Kidney Warrior story. Andrea reflects on the first signs of kidney problems as a teenager, years of recurrent kidney infections, living with ureteric stents, and the long journey to finally being diagnosed with chronic kidney disease (CKD). She speaks honestly about the difficult decision to have a severely damaged kidney removed, the emotional impact of losing an organ, and the strength she found through her Christian faith. This honest conversation explores the physical, emotional and psychological realities of living with kidney disease, while offering hope and encouragement to anyone facing their own health challenges. In this episode you’ll hear about: Andrea’s first kidney problems during childhood Recurrent kidney infections and living with ureteric stents The long road to a chronic kidney disease diagnosis Why one kidney eventually had to be removed The emotional impact of major kidney surgery Living with one kidney Finding hope, resilience and faith through life’s challenges Why it’s important to listen to your body and advocate for yourself Whether you’re living with chronic kidney disease, receiving dialysis, have had a kidney transplant, care for someone with kidney disease, or simply want to understand more about kidney health, Andrea’s story is one that will educate, encourage and inspire. 🎥 Watch the full audio and video version of this episode on the Diary of a Kidney Warrior Podcast YouTube channel. If you enjoyed this episode, please follow the podcast, leave a review, and share it with someone who may benefit from hearing Andrea’s inspiring story. Your support helps us reach more people living with kidney disease around the world. Thank you for listening to Diary of a Kidney Warrior Podcast—the kidney health podcast that educates, empowers and inspires. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #KidneyDisease #ChronicKidneyDisease #CKD #KidneyHealth #KidneyWarrior #KidneyWarriorStory #KidneyPatient #KidneyAwareness #KidneyPodcast #ChronicIllness #LivingWithKidneyDisease #PatientStory #HealthPodcast #Podcast #DiaryOfAKidneyWarriorPodcast
🎉 Exciting News! 🎉 I’m absolutely thrilled to share that Diary of a Kidney Warrior Podcast has been nominated for a GX Award in the Outstanding TV Programme/ Podcast category! I only recently found out about the nomination, so I wanted to let you know and ask for your support. If the podcast has ever educated, empowered or inspired you, I would be incredibly grateful if you could take a moment to vote. 🗳️ Please vote for: Category 28 – Outstanding TV Programme/ Podcast Diary of a Kidney Warrior Podcast – Dee Moore The good news is you don’t have to vote in every category—you can simply vote for Category 28. Voting closes on Wednesday 5th August, so every vote really does make a difference. 🗳️ Vote here: https://www.thegxawards.com/voting/ Thank you for listening, for sharing the podcast, and for being part of this incredible community. Your support has helped Diary of a Kidney Warrior Podcast continue to educate, empower and inspire people living with kidney disease and those who support them. Thank you so much for your support—it truly means the world. Dee Moore Host, Diary of a Kidney Warrior Podcast Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org #DiaryOfAKidneyWarriorPodcast #GXAwards #KidneyHealth #KidneyDisease #ChronicKidneyDisease #Dialysis #KidneyTransplant #KidneyWarrior #Podcast
Have you heard of Farxiga (dapagliflozin), Jardiance (empagliflozin), Ozempic, Wegovy, Mounjaro, or finerenone, but aren’t quite sure what they do or whether they’re right for people living with kidney disease? In this episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Professor Alex, Consultant Nephrologist and researcher, for an essential conversation about some of the biggest breakthroughs in kidney medicine in recent years. Originally developed for diabetes, SGLT2 inhibitors have transformed kidney care and are now helping to protect kidney function, reduce protein in the urine and improve outcomes for many people living with chronic kidney disease (CKD). We also explore the growing role of GLP-1 receptor agonists and finerenone, and explain what patients need to know about these treatments. Whether you’re living with chronic kidney disease, caring for someone who is, or you’re a healthcare professional wanting a patient-friendly explanation, this episode is packed with practical, evidence-based information. In this episode, you’ll learn: ✅ What SGLT2 inhibitors are and how they protect the kidneys ✅ Why medications developed for diabetes are now transforming kidney care ✅ How GLP-1 receptor agonists (including Ozempic, Wegovy and Mounjaro) may benefit kidney health ✅ What finerenone is and who may benefit from it ✅ Why your eGFR may temporarily fall after starting treatment—and why this isn’t always a cause for concern ✅ The benefits and possible side effects of these medications ✅ Which kidney patients may be suitable for these treatments ✅ The latest developments in kidney research and future treatments This episode shares expert insight designed to educate, empower and inspire people living with kidney disease and those who support them. 🎥 Prefer to watch? The full video version of this episode is also available on the Diary of a Kidney Warrior Podcast YouTube channel: https://youtu.be/wIigNxUEXyI 💚 If you found this episode helpful, please: ⭐ Follow or subscribe to Diary of a Kidney Warrior Podcast ⭐ Leave a rating and review on your favourite podcast platform ⭐ Share this episode with family, friends, your renal team and anyone living with kidney disease—it could make a real difference. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Professor Alex: 🔗LinkedIn: https://uk.linkedin.com/in/alexander-woywodt-380a9834 Follow Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org (UK only) Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyDisease #ChronicKidneyDisease #CKD #KidneyHealth #KidneyFailure #Nephrology #KidneyPatient #KidneyCare #SGLT2 #SGLT2Inhibitors #GLP1 #Finerenone #Farxiga #Jardiance #Ozempic #Wegovy #Mounjaro #Proteinuria #eGFR #Diabetes #KidneyResearch #Renal #Healthcare #PatientEducation #renal #healthpodcastseries #healthpodcast
What happens when a childhood kidney condition goes undiagnosed for years? In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore speaks with Noël, who was born with vesicoureteral reflux (VUR), also known as kidney reflux. Although she experienced repeated urinary tract infections (UTIs) throughout childhood, her condition wasn’t diagnosed until she was seven years old. By then, irreversible kidney damage had already occurred, leading to chronic kidney disease (CKD). Noël shares her remarkable Kidney Warrior journey—from growing up with chronic kidney disease, to unexpectedly crash landing onto dialysis, and ultimately receiving the life-changing gift of a kidney transplant. This honest, emotional and inspiring conversation explores the realities of living with kidney disease, navigating childhood and adulthood with a lifelong condition, advocating for your health, and finding hope through resilience and community. In this episode, we discuss: 💚 Childhood kidney disease (CKD) 💚 Vesicoureteral reflux (VUR) (kidney reflux) 💚 Recurrent urinary tract infections (UTIs) 💚 Recognising the signs and symptoms of kidney disease 💚 Living with chronic kidney disease 💚 Starting dialysis unexpectedly 💚 Receiving a kidney transplant 💚 The importance of self-advocacy and asking questions 💚 Finding hope while living with chronic illness 💚 Why sharing patient stories can educate, empower and inspire others Whether you’re living with kidney disease, supporting a loved one, working in healthcare, or simply want to understand more about chronic kidney disease, Noël’s story is one of courage, resilience and hope. 🎥 Prefer to watch? The full video version of this episode is available on the Diary of a Kidney Warrior Podcast YouTube channel. If you enjoyed this episode, please follow the podcast, leave a review, and share it with your family, friends and healthcare professionals. Every listen, review and share helps us reach more people affected by kidney disease and organ transplantation. Together, we can educate, empower and inspire. Follow Diary of a Kidney Warrior: 📸 Instagram: @diaryofakidneywarrior 📘 Facebook: Diary of a Kidney Warrior 🐦 Twitter: @diaryofakidneywarrior 🎵 TikTok: @diaryofakidneywarrior 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow the Podcast on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Noël: 📸 Instagram: @_labridy_ LinkedIn: www.linkedin.com/in/noël-labridy-108391317 Kidney Care UK 💻 Website: www.kidneycarekuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyWarrior #KidneyDisease #ChronicKidneyDisease #CKD #KidneyFailure #KidneyTransplant #Dialysis #KidneyPatient #KidneyHealth #KidneyAwareness #LivingWithCKD #VesicoureteralReflux #KidneyReflux #UTI #OrganDonation #PatientStory #ChronicIllness #HealthPodcast #healthpodcastseries
How do you ask someone to donate a kidney? For many people living with kidney failure, this can be one of the most difficult and emotional conversations they will ever face. Fear of rejection, concerns about damaging relationships, feelings of guilt and uncertainty about where to begin can prevent people from exploring living kidney donation as an option. In this episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Jen Lumsdaine, Lead Nurse for Living Donation. Jen previously worked as a Living Donor Transplant Coordinator in Edinburgh, completed a PhD examining the quality-of-life impact of living kidney donation for donors and recipients, and has worked to improve equitable access to living donor transplantation across Scotland. Together they discuss: 💚 How to prepare emotionally before talking about living kidney donation 💚 Whether you should ask directly or raise awareness more generally 💚 How to keep the conversation open without putting pressure on others 💚 What to do if someone says no 💚 How to protect important relationships during the transplant journey 💚 Common misconceptions about living kidney donation 💚 Why every potential donor undergoes an independent assessment process 💚 The support available for donors and recipients 💚 Where to find trusted information and resources Whether you’re waiting for a kidney transplant, supporting a loved one, considering becoming a living donor or simply want to learn more, this episode offers compassionate, practical guidance from one of the UK’s leading experts in living donation. A special thank you to Jen and NHS Blood and Transplant for helping to make this episode possible. 🎧 Listen now and share with someone who may benefit from this important conversation. Follow Diary of a Kidney Warrior: 📸 Instagram: @diaryofakidneywarrior 📘 Facebook: Diary of a Kidney Warrior 🐦 Twitter: @diaryofakidneywarrior 🎵 TikTok: @diaryofakidneywarrior 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow the Podcast on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Become a living donor - NHS Organ Donation https://www.organdonation.nhs.uk/become-a-living-donor/ Kidney Care UK 💻 Website: www.kidneycarekuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org For more information about GOLD (Gift of Living Donation) Website: www.giftoflivingdonation.co.uk Instagram: @giftoflivingdonation Twitter: @delaidowu Email: info@giftoflivingdonation.co.uk Robert Dangoor Partnership | Give a Kidney | Kidney Donation | Live Kidney Donor https://www.giveakidney.org/considering-donation/how-do-i-donate/robert-dangoor-partnership/ Donate A Kidney | Kidney Donation UK | Make Your Mark https://www.donateakidney.co.uk/ Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyTransplant #LivingKidneyDonation #KidneyFailure #KidneyDisease #CKD #OrganDonation #TransplantJourney #KidneyPatient #NHSBloodAndTransplant #LivingDonation #KidneyHealth #RenalCare
In this powerful episode of Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Rebecca Griffiths, who shares her extraordinary journey through kidney failure, dialysis, kidney transplantation and transplant loss. Rebecca’s story is one of resilience, determination and hope. After gaining approximately 25kg of fluid in a matter of days and requiring emergency treatment to drain fluid from around her heart, she found herself facing kidney failure without the support of a renal team. What followed was a life-changing journey that included dialysis, a kidney transplant, the devastating loss of that transplant and the challenge of starting again. In this episode, Rebecca discusses: 💚 Her diagnosis and rapid decline in kidney function 💚 Gaining 25kg of fluid in just one week 💚 Having fluid drained from around her heart 💚 Being sent home under palliative care 💚 Starting dialysis and adapting to a new way of life 💚 Receiving a kidney transplant 💚 The emotional impact of transplant failure 💚 Returning to dialysis and rebuilding her confidence 💚 Speaking in Parliament to advocate for kidney patients 💚 Finding purpose, strength and hope despite adversity 💚 Why life is not over on dialysis Rebecca’s story is a powerful reminder that even in life’s darkest moments, hope remains possible and that a meaningful life can still be lived despite kidney disease. 🎧 Listen now and be inspired by a remarkable Kidney Warrior who refused to give up. If you enjoyed this episode, please: ✅ Follow Diary of a Kidney Warrior Podcast ✅ Leave a rating and review ✅ Share this episode with family, friends and healthcare professionals ✅ Help us raise awareness of Chronic Kidney Disease (CKD), dialysis, transplantation and organ donation Medical Terms Explained eGFR — a blood test score for how well your kidneys filter. A healthy result is around 90 or above. Rebecca's was 5. Tessio line — a soft tube placed in the chest to connect you to a dialysis machine. Uremia — a dangerous build-up of waste in the blood when the kidneys can't filter it out. TPN — nutrition fed directly into a vein when you're too unwell to eat. Renal nutcracker syndrome — a rare condition where a vein near the kidney gets compressed, causing pain and damage. SPK (Simultaneous Pancreas and Kidney transplant) — receiving a new pancreas and kidney in the same operation, often offered to people with type 1 diabetes. ICU — Intensive Care Unit, where the most seriously ill patients are monitored closely after major surgery. HDU — High Dependency Unit, a step down from intensive care for close monitoring during recovery. Biopsy — taking a tiny sample of tissue to check how the transplanted kidney is working. Anti-rejection drugs — medicines that stop the body's immune system from attacking a transplanted organ. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Rebecca 📸Instagram: www.instagram.com/Rebecca.c.griffiths 📘Facebook: www.facebook.com/Rebecca Griffiths Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyWarrior #KidneyDisease #CKD #ChronicKidneyDisease #KidneyFailure #Dialysis #Haemodialysis #KidneyTransplant #TransplantJourney #TransplantFailure #OrganDonation #RenalPatient #KidneyHealth #PatientStory #ChronicIllness #InvisibleIllness #HealthPodcast #PatientAdvocacy #KidneyCommunity Keywords: Kidney disease, CKD, chronic kidney disease, kidney failure, dialysis, haemodialysis, kidney transplant, transplant failure, organ donation, kidney patient, renal patient, kidney advocacy, patient experience, kidney warrior, chronic illness, transplant journey, kidney awareness, living well on dialysis, kidney health podcast, Diary of a Kidney Warrior Podcast.
Welcome to another episode of Diary of a Kidney Warrior Podcast. In this powerful Kidney Warrior Story episode, host Dee Moore is joined by Johanna, who shares her lifelong journey living with Chronic Kidney Disease (CKD). Diagnosed as a young child after years of unexplained symptoms, Johanna opens up about growing up with kidney disease, navigating dialysis, experiencing transplant loss, and undergoing multiple kidney transplants. She speaks honestly about the physical and emotional realities of living with CKD for decades, including the uncertainty that comes with transplantation and the challenges of returning to dialysis. Johanna also shares the impact kidney disease has had on her mental wellbeing, family life, pregnancy, identity, and future plans. Throughout the conversation, she highlights the importance of resilience, support, advocacy, and finding joy in life despite the ongoing challenges of chronic illness. This episode is an honest and deeply moving insight into the realities of long-term kidney disease and the strength it takes to keep moving forward through every stage of the journey. In this episode, Johanna discusses: Being diagnosed with kidney disease as a child Growing up with CKD The symptoms that led to diagnosis Starting dialysis Receiving her first kidney transplant The emotional impact of transplant loss Returning to dialysis Undergoing further kidney transplants Pregnancy after transplantation The uncertainty of living with CKD Mental health and emotional resilience Finding hope whilst living with chronic illness If you are living with kidney disease, supporting someone who is, or want to better understand the realities of CKD, this episode is not to be missed. 🎧 Listen now and join the conversation. Until next time, take care and choose to live. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Johanna 📸Instagram: @mrsjohannabridges Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #KidneyDisease #CKD #KidneyTransplant #Dialysis #ChronicIllness #KidneyWarrior #TransplantJourney #KidneyFailure #KidneyHealthPodcast #DiaryOfAKidneyWarriorPodcast
In this powerful episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Lynsey, living kidney donor and sister to Carla, whose story listeners heard in the previous episode. This conversation explores the other side of kidney transplantation: the perspective of the person who makes the life-changing decision to donate. Lynsey shares the emotional reality of watching her sister become seriously unwell, the moment she realised something was wrong, and the journey towards becoming a living donor. Together, Dee and Lynsey discuss family, fear, love, guilt, hope, and the extraordinary bond between sisters. This deeply moving episode shines a light on living kidney donation, the impact of kidney disease on families, and the incredible gift of life that living donors provide. Topics discussed include: • Recognising that something was seriously wrong • Watching a loved one face kidney failure • The emotional impact of living donation • Family dynamics during chronic illness • Testing and preparing to become a donor • Recovery after kidney donation • Life after transplant • The importance of raising awareness about living kidney donation If you or someone you love is navigating kidney disease, dialysis, transplant, or considering living donation, this episode offers insight, honesty, and hope. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r For more information about living kidney donation and support services: Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org NHS Blood & Transplant: Website: www.organdonation.nhs.uk Twitter: NHS Blood & Transplant: @NHSBT NHS Organ Donation: @NHSOrganDonor Facebook: www.facebook.com/nhsorgandonor Instagram: NHS Organ Donation: @nhsorgandonor YouTube: www.youtube.com/user/nhsorgandonation/channels For Further Information Visit: National Black, Asian, Mixed Race and Minority Ethnic Transplant Alliance Website: www.nbta-uk.org.uk/ GOLD (Gift of Living Donation) Website: www.giftoflivingdonation.co.uk Instagram: @giftoflivingdonation Twitter: @delaidowu Email: info@giftoflivingdonation.co.uk Give a Kidney Charity Website: www.giveakidney.or Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #DiaryOfAKidneyWarriorPodcast #KidneyTransplant #LivingDonation #LivingKidneyDonor #KidneyDisease #KidneyFailure #OrganDonation #TransplantJourney #KidneyWarrior #ChronicIllness #Dialysis #KidneyHealth #OrganDonationAwareness
Carla shares how she was diagnosed with stage 5 kidney failure without warning, leading to dialysis and ultimately a kidney transplant. This episode explores missed signs, sudden diagnosis, and the reality of living through kidney failure. In this episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Carla — a kidney warrior and former mental health nurse — about her experience of being diagnosed with stage 5 kidney failure without warning. After earlier test results showed declining kidney function, Carla did not receive follow-up — and later found herself sitting in front of a consultant being told her kidneys were functioning at just 12%. What followed was a sudden transition into dialysis, a challenging and emotional journey through treatment, and ultimately, a kidney transplant. Carla shares her story with honesty and insight — from the shock of diagnosis, to navigating dialysis access and setbacks, to the mental and emotional toll of living with kidney failure. This episode is a powerful reminder of how kidney disease can progress silently, and the importance of listening to your body, asking questions, and advocating for your health. 🔹 Key Topics Covered Stage 5 kidney failure diagnosis Kidney disease progression and missed signs Dialysis treatment and access challenges Emotional impact of kidney failure Kidney transplant journey Patient experience and advocacy If this episode resonated with you, please share it with someone who may benefit from hearing Carla’s story. Follow Diary of a Kidney Warrior Podcast so you never miss an episode — and join the Diary of a Kidney Warrior family for updates, support, and community. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. kidney failure stage 5 kidney failure kidney disease dialysis kidney transplant chronic kidney disease renal failure dialysis patient transplant journey kidney health patient story health podcast medical podcast chronic illness
What does the difference a year make? Less than a year ago, Cam was in hospital — so unwell that he didn’t want his children to see him. Now… he’s preparing to run a marathon and attempt a world record. In this powerful episode of Diary of a Kidney Warrior Podcast, Cam shares his journey from a seemingly minor ear infection… to crashing into emergency dialysis with no warning, no preparation, and his life turned upside down overnight. This is a story about shock, survival, and what it really takes to rebuild your life after a diagnosis you never saw coming. 💚 IN THIS EPISODE, WE DISCUSS: The early symptoms that were missed — and how everything escalated The reality of starting dialysis suddenly The emotional impact on family, especially children Adjusting to life with kidney failure Finding purpose and motivation after diagnosis Training for a marathon whilst on dialysis Attempting a world record to raise awareness Why hope is still possible — even in the hardest moments 🎥 WATCH ON YOUTUBE (2-PART SERIES) This conversation is also available as a 2-part visual episode on YouTube. 👉🏽👉 Part 1 https://youtu.be/7dGYoHE0xrY . and 👉🏽👉Part 2 https://youtu.be/AmyoG49k2-M include the full video experience, additional context, and the journey in full. 💬 WHY THIS EPISODE MATTERS Cam’s story is a reminder that kidney disease can happen suddenly — and without warning. But it is also a powerful example of resilience, determination, and choosing to move forward… even when life changes overnight. If you are on dialysis, awaiting transplant, or supporting someone who is — this episode is for you. 🤝 SUPPORT CAM Support Cam’s World Record Marathon—Sponsor His Run! Kidney Care UK: Manchester Marathon 2026 Follow Cam on Instagram https://www.instagram.com/dialysisdasher?igsh=MWI0ZHJnd2s4dHJqZQ%3D%3D&utm_source=qr 🔗 CONNECT WITH DIARY OF A KIDNEY WARRIOR 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org 💚 FINAL WORD If this episode encouraged you, please share it — because someone out there needs to hear this story. And as always, Until next time, take care and choose to live. 💚 Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. kidney disease, dialysis, kidney failure, marathon runner, chronic illness, transplant journey, kidney warrior, patient story, resilience, CKD, haemodialysis, fitness and chronic illness, UK kidney patient, health podcast, inspirational story, marathon world record attempt, Kidney Care UK, kidney awareness, Diary of a Kidney Warrior Podcast
What is it like to be diagnosed with polycystic kidney disease (PKD) at just 10 years old—and to know it runs through your family? In this powerful episode of Diary of a Kidney Warrior Podcast, Dee Moore speaks with Natasja about her lived experience of PKD, a hereditary kidney condition that has affected multiple generations of her family. From her great-grandmother to her mother and beyond, kidney disease is not just part of Natasja’s story, it’s part of her family history. In this honest and deeply personal conversation, Natasja shares what it’s like growing up with chronic kidney disease (CKD), navigating the emotional and physical realities of a lifelong condition, and facing serious complications along the way. In this episode, we cover: What polycystic kidney disease (PKD) is Being diagnosed with kidney disease at a young age The impact of hereditary kidney disease across generations Living with chronic kidney disease (CKD) Navigating serious health complications Finding strength through lived experience ⚠️ Content note: This episode includes discussion of serious complications related to kidney disease that some listeners may find difficult. This episode is a powerful reminder that behind every diagnosis is a real story, one of resilience, strength, and lived experience. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #PKD #PolycysticKidneyDisease #CKD #KidneyDisease #KidneyWarrior #ChronicIllness #HealthPodcast #PatientStory #KidneyHealth #HereditaryDisease #DiaryofaKidneyWarriorPodcast pkd, polycystic kidney disease, ckd, kidney disease, hereditary kidney disease, kidney health, chronic illness, patient story, kidney warrior, health podcast
Hi Kidney Warriors and friends, Dee Moore here! I wanted to share a personal update with you. Alongside the recent podcast episodes on weight and GLP-1, I’ve also shared a vlog on YouTube where I talk more openly about my own experience and how this connects to my kidney transplant journey. 📺 The vlog is available to watch on YouTube: https://youtu.be/RAa5ipo8b6k If you’re not already connected, you can also: Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the (free) Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp (free) Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r If you found this helpful, you can also watch/ listen to the recent episodes on weight, dialysis, transplant eligibility and GLP-1. Episode 155: GLP-1 Medications, Weight Loss & Kidney Transplant Eligibility | Beyond The Scale (Part 2) https://kidneycareuk.org/get-support/podcast/beyond-the-scale-glp-1-medications-weight-loss-and-kidney-transplant-eligibility/ Episode 154: Weight, Dialysis & Kidney Transplant Eligibility | Beyond The Scale (Part 1): https://kidneycareuk.org/get-support/podcast/beyond-the-scale-weight-dialysis-and-kidney-transplant-eligibility-part-1/ ⚠️ Disclaimer: This vlog is a personal update and is not part of the Diary of a Kidney Warrior Podcast partnership content. This content is shared for awareness and educational purposes only and is not medical advice. Please speak to your healthcare team for guidance specific to you. Until next time, take care and choose to live. #diaryofakidneywarriorpodcast #kidneydisease #ckd #kidneytransplant #dialysis #glp1 #weightlossjourney #patientstory #kidneyhealth kidney health podcast, kidney disease, chronic kidney disease, ckd, kidney transplant, dialysis, glp1, weight loss, transplant eligibility, patient story, kidney patient, uk health podcast, renal health, kidney awareness, health podcast
GLP-1 medications are being talked about everywhere right now — but what do they mean for people living with chronic kidney disease and dialysis? In Part 2 of this two-part series, we focus on GLP-1 receptor agonists, how these medications work, and what kidney patients need to understand when considering weight loss treatments in the context of kidney transplant eligibility. For many people living with chronic kidney disease (CKD), weight can influence access to transplant surgery. But navigating weight loss while on dialysis is complex, and treatments like GLP-1 medications should always be considered with specialist guidance. In this episode of the Diary of a Kidney Warrior Podcast, host Dee Moore is joined by Dr Adrian Brown, Associate Professor in Nutrition and Dietetics, NIHR Advanced Fellow, and Senior Specialist Weight-Management and Bariatric Dietitian. Together they explore: • What GLP-1 receptor agonists are and how they work • Why these medications must never be used without medical supervision • The risks of buying weight-loss treatments online • How GLP-1 medications may be considered for some kidney patients • Why conversations about weight and transplant eligibility are often more complex than people realise This episode highlights the importance of evidence-based information, patient safety, and open conversations between patients and their renal teams. ⚠️ This episode is for educational purposes only and does not replace personalised medical advice. Always speak with your healthcare team about your individual circumstances. 🎧 Listen now and continue the conversation. If you found this episode helpful, please consider sharing it with someone navigating chronic kidney disease, dialysis, or kidney transplant pathways. Part 1 of this series explores BMI, dialysis, and kidney transplant eligibility in more detail. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Dr Adrian Twitter (X) @brownadey; LinkedIn: Adrian Brown UCL Website: https://profiles.ucl.ac.uk/6560-adrian-brown Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. GLP-1 Kidney transplant Chronic kidney disease Dialysis Weight loss Kidney health Transplant eligibility CKD GLP-1 medications Kidney disease podcast
Can your BMI affect whether you are eligible for a kidney transplant? For many people living with chronic kidney disease and dialysis, weight is not simply about health advice — it can directly influence access to transplant surgery. In Part 1 of this two-part series, Dee Moore explores the realities of weight, BMI thresholds, and transplant eligibility. Joined by Dr Adrian Brown, Associate Professor in Nutrition and Dietetics, NIHR Advanced Fellow, and Senior Specialist Weight-Management and Bariatric Dietitian, this episode unpacks: • How BMI is used in transplant decision-making • Why weight can influence surgical eligibility • The challenges dialysis patients face when trying to lose weight • The emotional impact of weight-related conversations • The importance of patient advocacy For many kidney patients, these discussions can feel overwhelming and deeply personal. This episode aims to bring clarity, compassion and understanding to a complex topic. 📌 This is Part 1 of a two-part discussion. In Part 2, we explore GLP-1 medications, weight loss treatment options, and what kidney patients need to consider when navigating transplant eligibility. 🎧 Listen now and continue the conversation. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Dr Adrian Twitter (X) @brownadey; LinkedIn: Adrian Brown UCL Website: https://profiles.ucl.ac.uk/6560-adrian-brown Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #diaryofakidneywarriorpodcast #KidneyDisease #Dialysis #KidneyTransplant #BMI #TransplantEligibility #CKD #KidneyWarrior #chronickidneydisease #weight #livingwithobesity
What is it really like to grow up knowing kidney disease runs in your family? In this powerful episode of Diary of a Kidney Warrior Podcast, Dee is joined by Jamie from Texas, USA, who shares her lived experience of Autosomal Dominant Polycystic Kidney Disease (ADPKD) — a genetic kidney condition that affects generations. Jamie opens up about: 🟩 Living with a hereditary kidney disease 🟩 The emotional impact of growing up with uncertainty 🟩 Family history and genetic risk 🟩 Fear, resilience, and mindset 🟩 What living with ADPKD really looks like day to day This honest conversation shines a light on the realities of genetic kidney disease, while also sharing a message of hope, strength, and empowerment for anyone affected by chronic kidney disease (CKD), PKD, or long-term health conditions. 🎧 Listen now and share this episode with someone who may need encouragement or understanding today. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Jamie https://www.instagram.com/finchmod/ https://www.tiktok.com/@finchmodcc Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. #ADPKD #PolycysticKidneyDisease #KidneyDisease #CKD #GeneticDisorder #ChronicIllness #KidneyHealth #InvisibleIllness #HealthPodcast #ChronicIllnessAwareness #PatientStory #KidneyWarrior #DiaryOfAKidneyWarriorPodcast
In this powerful Kidney Warrior Story, host Dee Moore is joined by Hakeem, who openly shares his lived experience of growing up with sickle cell disease (SC genotype) and later being diagnosed with chronic kidney disease (CKD). From early health challenges to navigating kidney failure, dialysis, and the emotional impact of long-term illness, Hakeem reflects on the realities of living with multiple long-term conditions — and the resilience it takes to keep going. This conversation explores identity, acceptance, faith, mindset, and the importance of hope when the journey feels overwhelming. If you are living with kidney disease, sickle cell, dialysis, or supporting someone who is, this episode offers reassurance, representation, and a reminder that you are not alone. In this episode, we discuss: • Growing up with sickle cell disease and its impact on health • Being diagnosed with chronic kidney disease • Navigating dialysis and long-term treatment • The emotional and mental health challenges of CKD • Finding strength, purpose, and hope through lived experience • Why sharing kidney warrior stories matters 💚 Diary of a Kidney Warrior Podcast is a safe space for kidney patients, families, carers, and health professionals — sharing real stories, trusted information, and hope. 👉🏽👉 Listen now and don’t forget to follow, rate, and share to help this podcast reach more kidney warriors who need it. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Hakeem 📸 Instagram @hadizafoundation_uk https://www.instagram.com/hadizafoundation_uk?utm_source=ig_web_button_share_sheet&igsh=ZDNlZDc0MzIxNw== 📺YouTube: https://youtube.com/@hadizafoundation7243?si=fpPp3wG_4L4apI8l Kidney Care UK 💻 Website: www.kidneycareuk.org 📧 info@kidneycareuk.org 📞Tel: 01420 541 424 📘Facebook: www.facebook.com/kidneycareuk.org 📷Instagram: @kidneycareuk 🔵Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social 📺YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A 📩 To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. Hashtags: #KidneyWarrior #ChronicKidneyDisease #CKD #KidneyDisease #DialysisLife #SickleCell #SickleCellAwareness #KidneyHealth #PatientStories #LivedExperience #HealthPodcast #KidneySupport #YouAreNotAlone
New Year, New You: Why Gut Health Matters for Kidney Patients What does New Year, New You look like when you’re living with kidney disease? In this episode, we explore gut health and why it matters for kidney patients, including the relationship between the gut microbiome and chronic kidney disease (CKD), inflammation, diet and wellbeing. Kidney dietitian Tadala shares practical and realistic ideas for Kidney Warriors in 2026, covering: • gut health & kidney health • the gut microbiome • dietary restrictions in kidney disease • probiotics & prebiotics • plant diversity & fibre • slowing the progression of CKD • kidney-friendly nutrition • realistic lifestyle changes • supporting health in the new year If you have ever wondered what can I eat with kidney disease?, does gut health matter for CKD?, or what practical steps can Kidney Warriors take?, this episode will support you. This conversation focuses on education, empowerment and choice for people living with kidney disease, without pressure or perfection. Next episode: A powerful Kidney Warrior story — resilience, hope and choosing to live beyond a diagnosis. Follow Diary of a Kidney Warrior: 📸Instagram: www.instagram.com/diaryofakidneywarrior 📘Facebook: www.facebook.com/diaryofakidneywarrior 🐦Twitter (X): www.twitter.com/diaryofakidneyw 🎵Tik Tok: @diaryofakidneywarrior 📺Youtube: https://www.youtube.com/channel/UChGUfib7lu9eKENlLJ6lafw 🔵 BlueSky: @diaryofakidneyw.bsky.social 💌 Join the Diary of a Kidney Warrior Family Mailing List Get updates on new episodes, vlogs, newsletters, and more! 👉🏽👉 Sign up here: https://diaryofakidneywarrior.getform.com/rjv47 📲 Follow Diary of a Kidney Warrior on WhatsApp Stay updated with new episodes and exclusive content! 👉🏽👉 Join here: https://whatsapp.com/channel/0029VaO3ms71iUxipp1eeh2r Follow Tadala LinkedIn: https://www.linkedin.com/in/tadala-kolawole-3470381ba?utm_source=share&utm_campaign=share_via&utm_content=profile&utm_medium=android_app Kidney Care UK • Website: www.kidneycarekuk.org • Email: info@kidneycareuk.org • Tel: 01420 541 424 • Facebook: www.facebook.com/kidneycareuk.org • Instagram: @kidneycareuk • Blue Sky: https://bsky.app/profile/kidneycareuk.bsky.social • YouTube: https://www.youtube.com/channel/UCeqQTdAsEzXphqjHVtcTD-A To sign up to receive the Kidney Matters Quarterly Magazine Email: info@kidneycareuk.org Disclaimer: The information shared in this episode is for educational and informational purposes only and does not constitute medical advice. Always consult your doctor, consultant, or qualified healthcare professional regarding your individual health needs and before making any medical decisions. The views expressed by guests are their own and do not necessarily reflect those of the host, the Diary of a Kidney Warrior Podcast, or Kidney Care UK and are not intended to malign any religion, ethnic group, club, organisation, company, individual or anyone or anything. Keywords: kidney disease, chronic kidney disease, CKD, kidney health, renal health, kidney patients, kidney warrior, gut health, gut microbiome, probiotics, prebiotics, fibre, kidney diet, renal diet, kidney-friendly nutrition, slowing progression, chronic illness, new year new you, kidney dietitian, kidney care, kidney wellness
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