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Published by Retina UK
Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
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In this episode of the Retina UK Podcast, we sit down with Tilly Dowler, known to many on social media as @the_blind_stylist . Living with stargardt disease, Tilly uses her platforms to share honest insights into life with sight loss while challenging common misconceptions about visual impairment. We discuss her diagnosis, her journey to becoming more confident about her sight loss, and how she built a supportive online community through social media. Tilly also shares her passion for fashion and beauty, offering practical advice for maintaining personal style, applying makeup, and building confidence after sight loss. The conversation explores her career journey, from running her own boutique to launching a new online styling service, as well as the importance of disability representation in the fashion and beauty industries.
Our monthly e-Newsletter featuring the latest updates from Retina UK.
Professor Robin Ali, Director of the Centre for Gene Therapy & Regenerative Medicine, KCL.
Tina Garvey, Chief Executive, Retina UK.
Stories from some of our fantastic fundraisers. Jess Mortlock, Interim Director of Income Development. Tam Sanford and Lisa Sanford, who have a child living with inherited sight loss.
Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.
Tina Garvey, Chief Executive, Retina UK. Professor Martin McKibbin, Consultant Ophthalmologist, University of Leeds. James Moore, who is living with inherited sight loss. Bhavna Tailor, Chief Executive, Stargardts Connected and Ethan Tailor, who is living with inherited sight loss.
A panel with representatives from biotechnology companies Sepul Bio, Alkeus and AAVantgarde.
Tina Garvey, Chief Executive, Retina UK.
Dr Henry Stennett, Senior Research Coordinator, Retina UK, Mark Baxter, Information and Support Coordinator, Retina UK. James Moore, who is living with sight loss
A panel session with members of our community. Paula McGrath, Deputy Chief Executive, Retina UK
Professor Susan Downes, Consultant Ophthalmologist Oxford Eye Hospital and Honorary Clinical Senior Lecturer at Oxford University. Dr Amanda Salisbury, Consultant Clinical Oncologist at Oxford University Hospitals NHS Trust. Clare Abbott, Senior Eye Clinical Liaison Officer
Kate Arkell, Research Director, Retina UK. Emma Rees, Genetic Counsellor, Birmingham Women’s and Children’s NHS Foundation Trust. Rob Sears, who is living with inherited sight loss.
Our panel of experts share their professional and personal experience to bridge the gap between cutting-edge innovation, including AI, and everyday reality. Barrie Lane, Tech Advisor at Beacon Centre. Keith Dear, Tech Advisor at Sight for Surrey. Mark Baxter, Information and Support Coordinator, Retina UK. Anna Holloway and Ellie Dowdy, Retina UK Tech Peer Support Group volunteers.
Tina Garvey, Chief Executive Retina UK
Our monthly e-Newsletter featuring the latest updates from Retina UK.
More information about our Professionals' Conference 2026 can be found on our website: RetinaUK.org.uk/event/professionals-conference/
More information about our Annual Conference 2026 can be found on our website: RetinaUK.org.uk/event/annual-conference/
This is the audio edition of the Retina UK Newsletter, Look Forward - Autumn 2026 (Issue 191). You can download a copy in PDF and Word format on the Retina UK website: https://retinauk.org.uk/resources . Contents in this edition are as follows: We're counting the days until our conferences Free CPD-accredited conference for professionals Retina UK Annual Conference Nutrition and inherited sight loss, promise vs proof Thank you Challenge yourself, change lives Research news round-up Volunteering, technology and community: Making a difference at Retina UK Bringing us closer to effective treatments Living life in full colour: Meet Tilly Dowler Dates for your diary PAID ADVERTISEMENT: Turn night into day - Luna PAID ADVERTISEMENT: Ran-Ban | Meta Wayfarer Donate to Retina UK this autumn
In this session, our speakers will explore what it means to navigate early adulthood with a visual impairment, offering insights into key areas of life including hobbies, friendships, travel, employment and being involved with Retina UK . This is a opportunity to hear real stories, learn from lived experiences, and gain practical perspectives on building independence, maintaining connections, and embracing opportunities. We will also be joined by Robert Quinn, CEO of MakeSense . MakeSense is developing the worlds first ultra precise navigation technology for people with sight loss. Whether you are personally affected by inherited sight loss, supporting someone who is, or simply looking to better understand these experiences, this webinar promises to be informative and uplifting. What to expect: Personal stories from young adults living with inherited sight loss Insights into everyday life, from social connections to travel Perspectives on getting involved with Retina UK An opportunity to feel inspired and connected
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Observed November 3, 2026. Cached outside the daily freshness window; the positions keep the date they were taken on.
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